WeHaveAVoice
WeHaveAVoice
WeHaveAFace.org Inc. has created "WeHaveAVoice" Radio for the Huntington's and Juvenile Huntington's disease community. It is time for the community to speak out...speak up! We must openly share what all of us in the Huntington's community experience on a daily basis! Removing the stigmas and broadening social awareness and acceptance is paramount! Visit: www. WeHaveAFace.org/Radio for more information.
Where to listen?
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Episodes
May is HD/JHD Awareness Month! #WeHaveAFace LIVE Update! 01.05.2017 4:12
May is HD/JHD Awareness Month! Listen to this LIVE update and stay connected!
HD Care Improvement Project - #HuntingtonsDisease Survey! @HuntingtonSG 28.04.2017 2:13
Follow the link to the survey! We need your help! 👉 https://goo.gl/k9W0Rx
Dr. Herwig Lange wendet sich an unsere Patienten and Familien 27.04.2017 3:17
Unser Beratender Arzt Dr. Herwig Lange wendet sich an unsere Patienten und Familien in deutscher Sprache. Es ist wichtig, dass unsere Leidensgenossen an WeHaveAVoice-Radio teilnehmen. Wir sind nicht allein. Wir werden Sie wissen lassen, wenn Dr. Herwig Lange eine Show in deutsch geben wird. Vielen Dank!
WeHaveAFace Canada! Meet the Team! 20.04.2017 44:12
WeHaveAFace.org has grown substantially over the last year. We are proud to have nonprofit organizations in the USA, Canada, and the United Kingdom. Tonight, we will talk to with the team of WeHaveAFace Canada!
LIVE Update! WeHaveAFace Canada & Publications! 13.04.2017 2:58
A short LIVE update: WeHaveAFace.org Canada, "Blue and Purple" - Poetry Project, and the "WeHaveAFace" Magazine!
HSG: Dr. Frank Discusses TEVA's New Drug AUSTEDO - Treatment of Chorea in Huntington's Disease 06.04.2017 41:13
Tonight Dr. Samuel Frank of the Huntington Study Group (HSG) discusses TEVA's new drug - AUSTEDO for the treatment of chorea in Huntington's disease. There will be questions from the community! #YouAreLoved
LIVE UPDATE! TEVA Pharmaceuticals released HD Drug! 04.04.2017 2:46
#WeHaveAVoice LIVE Updated! LIVE UPDATE! TEVA Pharmaceuticals released HD Drug! Poetry Project - Volume 2! 2nd Annual WeHaveAFace Convention!
LIVE Show - Dr. Lange talks about HD Webinar! 30.03.2017 36:49
Stay tuned for the Genefo HD Webinar which will take place on April 6, 2017 with our very own Dr. Herwig Lange of the George Huntington Institute!
LIVE update from Costa Mesa California 24.03.2017 4:05
#WeHaveAFace travels to California - editing "The Warriors" the Juvenile Huntington's Disease documentary.
WeHaveAVoice - LIVE "Dental Care and HD/JHD" 09.03.2017 42:21
Today Dr. Herwig Lange of the George Huntington Institute will be answering questions about dental care and HD/JHD. We thank Dr. Lange for his ongoing support!
Cannabis Oils? Can they help patients with Huntington's and Juvenile Huntington's disease? 10.02.2017 1:15:16
#WeHaveAVoice LIVE Radio! Tonight: Let’s Talk About Cannabis Oils – Cindy Moore and Traci Pratt discuss their children's experiences using cannabis oils for Juvenile Huntington's Disease.
Let’s Talk About Cannabis Oils – Cindy Moore and Traci Pratt! 06.02.2017 2:11
WeHaveAVoice - Thursday, February 9, 2017! Let’s Talk About Cannabis Oils – Cindy Moore and Traci Pratt! We will hear from these amazing JHD Mothers and the miracle of Cannabis Oils which have helped their children! Stay tuned and join the conversation! #YouAreLoved
Listen to Dr. Herwig Lange: Discussion About CAG! 19.01.2017 55:44
WeHaveAVoice Radio with Dr. Herwig Lange from the George Huntington Institute in Germany! Dr. Lange has agreed to join us to discuss the topic of CAG.
WeHaveAVoice: "Behavior with Huntington's and Juvenile Huntington's Disease" with Dr. Herwig Lange from Germany 02.12.2016 1:06:44
#WeHaveAFVoice - Tonight's LIVE show will discuss "Behavior with Huntington's and Juvenile Huntington's Disease" with our great panel of guests! Tonight's topics: Aggression, Anxiety, and Altered Sexuality with HD and JHD!
LIVE Update - Brockville, Ontario Canada JHD Bowling Tournament on November 11, 2016 20.10.2016 6:37
Tonight Cindy Moore joins us from Brockville, Ontario Canada to give us an update on the upcoming JHD Bowling Tournament on November 11, 2016. We look forward to another amazing event with our friends in Canada! Stay Tuned!
Hurricane Matthew LIVE Update - Saint Cloud, Florida 07.10.2016 3:18
Hurricane Matthew is slowly making its way up the coast! We are coming to you LIVE from Saint Cloud, Florida! James Valvano and Mary Etta Robertson.
LIVE Update! "HD/JHD Community Events! 03.10.2016 3:52
On Thursday, October 6th, we will have another LIVE Broadcast regarding HD/JHD events within the community! Stay tuned...we will be discussing events here in the USA, and in England! #YouAreLoved
"Families torn apart by Huntington's and Juvenile Huntingtn's disease" - LIVE Radio Broadcast! 29.09.2016 1:25:02
#WeHaveAVoice" Radio: Families torn apart by HD/JHD" - Joining us for this LIVE show will be: Kevin Jess, June Brown, Sarah Parker Foster, Clarice Miller Deshalamar. #YouAreLoved
"All About CAG" - LIVE with Dr. Herwig Lange from The George Huntington Institute of Germany! 18.08.2016 55:41
"All About CAG" - LIVE with Dr. Herwig Lange from The George Huntington Institute of Germany! This is a much needed conversation regarding a true negative and a positive test result for Huntington's and Juvenile Huntington's disease. The discussion will include questions from the international community and answered by Dr. Herwig Lange.
Brockville, Ontario Canadian JHD Walk! LIVE with Dr. Kyle Fink and Dr. Jan Nolta of UC Davis California! 07.08.2016 14:31
LIVE from Brockville, Ontario Canada! Tonight we celebrate the 1st Canadian walk for Juvenile Huntington's Disease! We are LIVE with Cindy Moore, Erin Moore, Dr. Kyle Fink, and Dr. Jan Nolta! Fundraiser Show! #YouAreLoved
HD/JHD Awareness Events! LIVE Update! 27.07.2016 22:12
WeHaveAFace.org Global HUBS - Awareness events for Huntingotn's and Juvenile Huntington's disease! Today we are updating the community regarding some wonderful events we have scheduled for August and October 2016! For additional information: www. WeHaveAFace.org/Events
Community Address for John Valvano 20.07.2016 4:05
Our brother John gained his Huntington’s wings on July 17, 2016 and became an HD Angel. On behalf of my entire family, we thank you from the bottom of our hearts for your love, support, and strength during this time. It is impossible to reply to all of your wonderful and comforting comments, but we know they are there…we know that we have your love and support. We will continue the mission to broa...
Home Healthcare - Nursing Home Care, and Sexuality in Huntington's Disease. 31.03.2016 1:41:42
Tonight's show we will discuss home healthcare, nursing home care, and sexuality in Huntington's disease. Our guests: Mary Etta Robertson, Sarah Parker Foster, and Marie Clay. Sensitive subject matter is important to discuss to further educate our international Huntington's peers and caregivers. It is also necessary to remove stigmas regarding what we experience in our community. We thank you for...
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