WeHaveAVoice

James Valvano: New Horizons After 2020 08.03.2020 1:08:58 ↓

WeHaveAFace founder, James Valvano talks about his upcoming retirement and the future of WeHaveAFace.

Jimmy Pollard of CHDI: HD Education on a Global Scale 07.03.2020 58:21 ↓

Jimmy Pollard talks about his experiences and imparts lessons to apply to HD caregiving.

Gene Veritas: CHDI Therapeutics Conference 05.03.2020 53:48 ↓

Gene Veritas talks about his recent attendance at the CHDI Therapeutics Conference.

Karen Marais: HD in South Africa 03.03.2020 58:34 ↓

Karen Marais talks about her relationship with her partner Chris who has Huntington's Disease

Advocating in suicide prevention and other topics with Sarah Warehime and Dr. Herwig Lange 11.01.2020 57:35 ↓

Leanne and Kevin speak with Sarah Warehime, a beginner as a suicide prevention advocate and Dr. Herwig Lange. We talk about a range of topics including suicide prevention and how to get involved.

A caregivers experience with behaviorial issues with Huntington's Disease 29.12.2019 57:42 ↓

"Kay" talks about her relationship with her best friend who has Huntington's Disease and how her mood swings are affecting important decisions she has to make.

Diamonds on the Water 14.11.2019 9:04 ↓

Kevin Jess reads an excerpt from his novel that is still in progress.

One woman's experience with testing for Huntington's Disease 13.10.2019 1:10:23 ↓

Kevin Jess talks with his daughter about her recent experience with testing for Huntington's Disease

2019 Convention and Event update 27.09.2019 3:59 ↓

Our panel of speakers for our Convention in November, 2019

James Valvano talks with Kevin about his climb in Scotland 28.08.2019 1:10:03 ↓

James Valvano speaks with Kevin about his mountain climb at Ben Nevis, Scotland and a talk about future shows.

Juvenile Huntington's Disease: A Story of Friendship 08.08.2019 47:34 ↓

Kevin speaks with Rebecca Bratt, Erin Wade's best friend

Walk for a Cure 02.08.2019 35:22 ↓

Kevin and Leanne speak with Cindy Moore, President of WeHaveAFace Canada

Episode 104 - Milestones 23.06.2019 21:04 ↓

Kevin Jess talks about milestones

WeHaveAFace with special guest James Valvano 29.04.2019 48:31 ↓

Kevin and James talk about events and issues of the day relating to HD advocacy and upcoming events

The case for repurposing existing drugs for the fight against Huntington's Disease 26.04.2019 1:05:04 ↓

Jonathan Monkemeyer talks with Kevin Jess and Leanne Delong

Huntington's Disease Awareness Month (The Port Pub and Bistro) 22.04.2019 5:37 ↓

Spotlight on Huntington's Disease Awareness month initiatives for the month of May

WeHaveAVoice Radio Show Updates 24.03.2019 7:02 ↓

WeHaveAVoice Radio Show Updates

WeHaveAFace News and Events (TEVA Update!) 09.03.2019 7:00 ↓

WeHaveaFace news and updates concerning fundraising events from around the world as well as TEVA Pharmaceutical grant updates.

Difficulties with HD testing 08.03.2019 50:10 ↓

Leanne Delong interviews Kevin Jess in regards to his son being tested for HD

James Valvano: Climbing Mountains for Huntington's Disease 02.03.2019 47:12 ↓

James Valvano speaks candidly with Kevin about his journey to climb mountains for Huntington's Disease

How And When To Talk To Your Children About Huntington’s Disease 02.03.2019 48:08 ↓

Kevin and Leanne talk with Dr. Bonnie Hennig-Trestman, Leaha Mattinson and Dr. Herwig Lange about the importance of knowing when and how to talk to your children about Huntington’s Disease offering important strategies for best outcomes.

James Valvano Addresses HD/JHD Community about 2019 15.02.2019 12:21 ↓

Founder of WeHaveAFace.org, James Valvano Addresses HD/JHD Community about 2019.

A New Host for 2019: Kevin Jess (VP of WHAF Canada) 21.01.2019 3:49 ↓

A couple of announcements to our community.