Typically Unique

This is a "Real Talk" episode, about today's marriage counseling session. We are sharing our experience to not only help us debrief but to share what counseling is really like to help end the stigma.

We are being vulnerable and honest about our relationship and the events, thoughts and feelings that lead to a 17 day separation and seeking counseling ... finally.

We are starting a new series to share our experiences with the mental health system. As always we will keep it real as we share some unbelievable experiences and what we have learned along the way.

In this episode we discuss where we were and what we experienced on September 11, 2001. #September 11 #Remembrance #Memoir #Podcast

In this episode we describe bizarre coincidences that happen before we find out who the donor is and how we find out about the donor. We read messages we exchanged and describe the unbelievable gratitude we feel for this heroic person. #podcast #transplants #aml #bonemarrow #heroic

In this episode we explain what total recovery was like and the challenges that the trauma we all went through had on us. Find out what Ayden is up to today and his many accomplishments, trials and tribulations along the way. It was not a fairytale ending but it's our situation. #AML #CancerSurvivor #Podcast #Memoir #LifeStory

In this episode we discuss how and when Ayden was released from the hospital for good and what home care was like. We describe the after affects of a medical trauma and trying to get back to "normal" life. #podcast #bonemarrow #bonemarrowtransplant

In this episode we share what was going on right before and after the counts show up. It was an exciting day for sure and of course we had some challenges during this time.

[Video podcast] Carlos tells his story of an unexpected medical emergency while traveling in the Dominican Republic. It wasn't funny in the moment, but we can laugh now while looking back on that misadventure. We also point out huge discrepancies in health care.

[Video Podcast] It is the first week after the transplant and the recovery process is brutal before it gets better. In this episode we describe what those days were like and show some footage from that time. Cancer patients are called Warriors for a reason and this episode will make it clear why that is.

[Video Podcast] The cells have arrived and the transplant is happening. We did not get to this day without a few more issues though. Witness our archive footage of the actual transplant and as we will always say over and over .... THANK YOU DONOR!!

[Video Podcast] We just want to get Ayden safely to transplant day but many issues pop up that individually might be little, but collectively made it a very stressful situation.

[Video Podcast] Camp Quality provides a summer camp for kids with cancer and their siblings to have a week of care free fun, create friendships and have quality experiences. Get to know this fabulous organization and all they do for these young cancer warriors and their siblings. #AML #XLA #pediatricCancer #mentalhealth #advocacy #podcast

[Video Podcast] In this episode we discuss how hope was running out but a new doctor miraculously shows up to hopefully save the day. Fear doesn't even come close to describing how we felt. We are in a desperate situation and trying to make the best decisions to save our child.

[Video Podcast] In this episode we are in round 6 trying to get our son back into remission from a relapse of AML and now he needs a Bone Marrow Transplant. We have 2 perfect donor matches and we learn what the transplant process will be like. But can we get him into remission?

[Video Podcast] We are having another discussion to reflect on all of the emotional trauma we experienced from caring for our child going through AML treatment and a bone marrow transplant.

[video podcast] There are no words to describe the proverbial Gut Punch that we get from the cancer returning. The unknown creates a lot of fear and We don't know where we are going to get the strength to do this again. #AML #mentalhealth #XLA

[Video Podcast] 5 Intensive rounds of chemotherapy treatment over 8 months in 2011. Staying in the hospital for 5-6 weeks at a time. Over 240 days in the hospital for a 12 year old. How long did that treatment's remission last? Find out how we celebrated and enjoyed being home for the summer and our son's return to school... but for how long?

[Video podcast] We reveal Big news and details around that news. We have a discussion about reactions to the news, our feelings and steps that happened afterwards. Tune in to find out what we learned. We will discuss more details surrounding this at a later episode due to the timeline of our story. We revealed this news a little early in the story so that listeners wouldn't be left hanging, wo...

[Video Podcast] We get some lab results that point at our hypothesis possibly having promise. Unfortunately, we were the only ones to feel excited by this and that was disappointing but we persisted anyway, like we always do. #Brutons #XLA #immunology

In this episode we explain our understanding of how the AML and Bruton's are related and how the chemo is working. We go into further explanation of the information on the white board and what it means to us.

We think something is starting to look suspicious with our son's counts and no one else thinks so. In this episode we are using video clips from the time that our son was in the hospital to show what we were thinking and why we start to think a CURE for Bruton's could be possible. This is part 1 of 4. #Bruton 's #XLA #AML #immunology

We knew round 5 was going to be brutal treatment but we didn't know the length of time in the hospital was going to be so hard. We all had a hard time but our son really was struggling with being in the hospital for so long.

We finally ask for an evaluation for our son to find out what is going on behaviorally. They diagnosed him, but did not provide the treatment or plan that was needed. We have two points of view on this situation.

The behaviors and actions are finally interfering with daily life at the hospital so Carlos pushes for getting help. This is our first failed attempt at getting help. Watch to find out why.