Tom

Tom's Hirschsprung's Podcast

Society EN ↓ 137 episodes

Welcome to the #1 Hirschsprung's Disease podcast...in the world!!I provide a look into the remarkable experiences of some of the most inspiring people around this little known condition, that effects every 1 in 5000 people worldwide. This podcast must not be taken as generic medical advice, but please feel free to enjoy the positive stories and take inspiration from my guests journeys and achievements. My guests may not all have Hirschsprung's disease and may include people with Crohn's, Colitis or IBD as they show similar effects to Hirschsprung's Disease. Please enjoy the show!!!

Author

Tom

Category

Society

Podcast website

podcasters.spotify.com

Latest episode

Jul 9, 2026

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Episodes

Episode 11 - With Jonathan O'Konek 28.03.2024

My guest this week is Army veteran, Attorney and children's Author Jonathan O'Konek, who explains his fascinating life story, as well as how he became an advocate for rare diseases, through his son Sheamus. To date Jonathan has written 3 children's books with an exclusive update on the 4th in this episode!! Follow Jonathan on: Instagram -  @jonathanokonek facebook.com/jonathanokonek am...

Episode 10 - With Laquita Williamson 21.03.2024

In our landmark 10th Episode, I interview Laquita Williamson  @hairbylaquita_  who is the owner of She's Von Salon and mother to her son, Marcus jnr, who has  #hirschsprungsdisease . Laquita shares Marcus jnr's story, from the beginning right through to present day, as well as hopes for the future. Follow Laquita  @hairbylaquita_ Follow and listen to  @toms_hirschsprungs_podcast  on  @spot...

Episode 9 - Part 2 of my interview with Shellie Warner 14.03.2024

In part 2 of Shellie's interview, Shellie talks about her amazing charity work as well as how she has become involved in working for Footprints Foundation in Nottingham. Stay tuned until the end to find out the incredible activity Shellie will be doing for Footprints on 17th March!!! Check out part 1 to hear all about Adonis's incredible medical story follow Shellie at  @discoveringadonis...

Episode 8 - With Shellie Warner (Part 1) 07.03.2024

NEW EPISODE WITH SHELLIE WARNER  In part 1 of a 2 part special, I interview Shellie about her amazing and uplifting journey through her first year and half of motherhood. We talk about her son, Donny, and his early diagnosis of  #downsyndrome  and  #hirschsprungsdisease  as well as the incredible support from her family and nurses. Stay tuned for a special exclusive in part 2!!! follow Shellie at ...

Episode 7 - With Aimee Morrisby 29.02.2024

My guest this week is Aimee Morrisby, who is a fellow HD warrior and is currently starting a business called Fern and Flo. Aimee is a Bachelor of health science and nutrition, a Pilates instructor and is now starting a new business focusing on holistic health and well-being. Aimee shares her story with Hirschsprung's disease, as well as her quest to get others to become more active and look after...

Episode 6 - 'From struggle to strength' interview with Harvey Haworth 22.02.2024

Episode 6 tells an interesting story with Harvey Haworth, Harvey talks to me about his battle with Colitis, as well as his ambitions for the future - including running the upcoming Manchester Marathon!! We begin the story in 2016 with Harvey's first symptoms and follow his journey through his diagnosis and up to the present day

Toms Hirschsprung's Podcast Intro (Incomplete and reuploaded) 20.02.2024

A short introduction into Toms Hirschsprung's Podcast covering who I am, why I'm recording this, the aims of the podcast, when and where to find us, as well as details on upcoming special guests. Follow us on Instagram at @toms_hirschsprungs_podcast Contact us at tomshirschsprungspodcast@gmail.com

Episode 5 - With Carla Scaramella 15.02.2024

This week I chat with Carla Scaramella, our third  @toms_hirschsprungs_podcast  co-founder, about her fantastic work helping parents and families with  #hirschsprungsdisease  across Argentina. We will share stories about how and why Carla started the patient advocacy group, as well as the invention of the Spanish HD alert card! Listen and follow  @toms_hirschsprungs_podcast  on  @spotify  and  @sp...

Episode 4 - With Louisa and Andrew Shapton 08.02.2024

In this weeks episode, I chat with one of the co-founders of Tom's Hirschsprung's Podcast, and her father about her experiences with having Hirschsprung's disease, as well as her achievements as a business owner. Listen and follow Tom's Hirschsprung's Podcast on Spotify

Episode 3 - With Kyla Thomson (Part 2) 01.02.2024

Part 2 of my interview with Kyla Thomson, in which we will continue the discussion about her daughter Bella's captivating medical adventure, as well as their phenomenal charity work. We also talk about Bella's rise to fame and their mission to inspire others to be #BELLABRAVE Follow @kylact to see Bella's story on IG and @tiktok Please consider supporting Bella and her family by checking out her w...

Episode 2 - With Kyla Thomson (Part 1) 25.01.2024

The first half of my interview with the inspirational Kyla Thomson, where we discuss her daughter Bella's fascinating medical journey from the very beginning, right up until the incredible events that unfolded in August 2023! Subscribe to @toms_hirschsprungs_podcast on instagram Follow Kyla Thomson @kylact #hirschsprungsdisease #hirschsprungsdiseaseawareness #hirschsprungs #bellabrave #hdwarrior #...

Toms Hirschsprung's Podcast Intro - (incomplete version) 11.01.2024

A short introduction into Toms Hirschsprungs Podcast covering who I am, why I'm recording this, the aims of the podcast, when and where to find us as well as details on upcoming special guests. For a far better and more up to date introduction please listen to Episode 1. Follow us on Instagram @toms_hirschsprungs_podcast Contact us via email tomshirschsprungspodcast@gmail.com

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