Williams Syndrome Association

The Starry-Eyed Podcast®

Society EN ↓ 100 episodes

Presented by the Williams Syndrome Association, the Starry Eyed Podcast will explore the joys and challenges of living with Williams syndrome, a rare genetic disability. Each episode will feature interviews with adults with WS and professionals and caregivers who are dedicated to raising awareness and resources.

Author

Williams Syndrome Association

Category

Society

Podcast website

WSAStarryEyed.podbean.com

Latest episode

Jul 7, 2026

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Episodes

Ep 55 - A Three-fer with Brett Beger, Carl Hanson, & Ben Monkaba 08.04.2025

Today we have not one, not two, but three guests at once - A THREE-FER! Jen and Brendan are joined by Brett Beger, Carl Hanson, and Ben Monkaba to discuss what it's like living together as 3 dudes under the same roof. It's a fantastic story of friends, independence, and the courage to try something scary. Speaking of scary, we, of course, talk about the one clown who is an exception to Jen and Pro...

Ep 54 - Camp Blue Skies with Dick and Brent Sesler and a whoooole lotta campers! 25.03.2025

Gird your ears for Producer Joel has lost his voice. Before it went completely away, he was able to spend the week at Camp Blue Skies in Georgia, with around 75 adults with Williams syndrome.  Camp creator Dick Sesler and his son, Brent the Mayor of camp, sat down to talk about the need for community for our adults and what the future holds. Then, Producer Joel set up the camera and mics and inter...

Ep 53 - 2 Years, 1 Kent 11.03.2025

Two years! 53 episodes! 3 podlet mini-sodes! Two years is longer than Blackbeards reign of terror on the high seas! Two years is longer than the existence of the Pony Express! Technically our show has lasted longer than the Disco era (2 years...look it up)! On this episode, Jen and Brendan welcome Jon Kent, who has been a part of the Williams syndrome community for decades, but only recently joine...

Ep 52 - Sarah and Cara, Leading the Charge with Style and Flair-a! 25.02.2025

In this episode, Jennifer, Brendan, and Producer Joel kick things off with a celebration—Brendan’s appointment as WSA Secretary! He is the first person with WS to hold a position on the Executive Committee of the WSA Board of Trustees! Next, we welcomed newcomer Sarah Schaefer, the new Executive Director of the WSA (Just kidding, it’s the same Sarah we already know and love)! She shared her vision...

Ep 51 - Talking Without Words & Best Buddies for Life with Gabby Cornelio and Charles Calhoun 11.02.2025

This week, the pod is packed with big hearts & big laughs. First up, Gabby Cornelio joins Brendan and Joel to talk about life with her son's feeding challenges and his own unique way of communicating—because let’s be real, words are so overrated anyway. She also wrote a bilingual book, My Brother Doesn’t Speak, but His Heart Does, proving that sometimes, siblings just get each other—no words n...

Ep 50 - Tech Talk and Banjo AC/DC with Milton Neuenschwander and Christopher McClung 28.01.2025

It's tech time on the pod! Producer Joel got his son his own mobile phone and now he needs some help to make sure everyone stays safe and the technology can be used for good - not evil. Jen and Brendan are joined by Milton Neuenschwander from Tennessee's Department of Disabilities and Aging to talk about internet and phone safety, but also how assistive technology and AI can make navigating the wo...

Ep 49 - HeARTs in the New Year with Marna Kalman 14.01.2025

Let's make 2025 the year of Croutons and Hearts!! We kick it off with another longtime friend of Brendan's, Marna Kalman. She, Jen, and Brendan talk about living independently, working in a gallery, her jewelry business, and fine art! Check out her stuff at @mbymarna on Instagram . If you'd like to collaborate with her on jewelry or send her beads to create new work, email us at podcast@williams-s...

Ep 48 - Auld Shabang Syne with Sarah Giddings and Bret Fleming 31.12.2024

The final pod of the year means we take a moment to look back on the year that was 2024 with the woman who kept the WSA chugging along for most of it: Sarah Giddings. From Convention to Camp to upcoming cruises, it was a year of amazing accomplishments and there's so much to look forward to in 2025. Our final guest for 2024 is one of Brendan's best friends, Bret Fleming. They discuss all the music...

Ep 47 - Manaakiao with Paola Martínez Vélez and Li'l Henry 17.12.2024

The holidays are upon us and we are celebrating with a time traveler (no, not the Ghost of Christmas Future). Henry Stilwell (a.k.a. Li'l Henry) joins the pod from New Zealand to talk about the summer, his TV show, and his future aspirations. Then we welcome Paola Martínez Vélez from sunny Miami to discuss her journey with WS, advocating within the Latino and Hispanic communities, and her wonderfu...

Ep 46 - The Giving Season with Bethany Walton and the Gang 03.12.2024

Today the pod welcomes WSA Director of Operations Bethany Walton to talk about gift giving WSA-style! She discusses the new WSA Vendor Network, as well as highlighting store items in the WSA Store and at Outshine Labels. First, Producer Joel joins Jen and Brendan to talk about the NFL's My Cause My Cleats campaign, signature beers, and all sorts of other December wonderfulness! If you'd like to se...

Ep 45 - Loréal Lips and Dual Diagnosis with Anja Kaneski and Drs Elizabeth Barnhardt and Rebecca Lyren 19.11.2024

On this episode, Jen and Brendan welcome Anja Kaneski who lives on her own in a group home and holds down a job in Brainerd, MN! She shares how the sudden, exciting changes in her life also bring about anxiety and stress, and the techniques she relies on to even out. Then we explore the complex world of those who have a diagnosis of Williams syndrome and Autism. Dr. Elizabeth Barnhardt and Dr. Bec...

Ep 44 - Dancing Through Life with Rebekah and Ellie Stewart 05.11.2024

Today on the pod, we welcome from the great state of Iowa's Rebekah Stewart who had a up close view of her daughter Ellie's (13 WS) journey with the University of Iowa Dance Team through the Women's NCAA Basketball finals. Thanks to Team Impact (teamimpact.org) for helping Ellie get this amazing, once-in-a-lifetime opportunity! Jen, Brendan, Rebekah, Ellie, and eventually the whole Stewart fam tak...

Ep 43 - Fight for Your Rights with Delaney O'Connell and Chad Wilson 22.10.2024

Today's show exercises our civic duty as Jen and Brendan are joined by Delaney O'Connell, who is featured in the documentary Patrice, about a couple trying to fight the system that won't let them marry. On this show, we get to hear Delaney's story and how important self-advocacy is to her. Then we are joined by Chad Wilson from the Minnesota Disability Law Center to talk about how to make sure you...

Ep 42 - Old Friends/New Challenges with Seth Link and Lisa Elm 08.10.2024

Croutons and Hearts, my friends! This episode, Brendan introduces us to one of his longest and best friends: Seth Link. Seth tells us all about balancing the stress of his job with the rest of his life and how important the connection between friends is to him.  Then we are joined by Lisa Elm who manages PACER's National Bullying Prevention Center . We also get into the huge part she's played in t...

Ep 41 - Staying Busy with Leo Ryan 24.09.2024

After plotting a mob-like takeover of jobs at Disney, Jen and Brendan are joined by Leo Ryan! He took brief break from doing seemingly everything to chat about working, volunteering, and giving back to the younger members of the WS community. You can look for him probably zooming from activity to activity on the WSA Adventure Seekers cruise next summer! Reach out to us at podcast@williams-syndrome...

Ep 40 - Back to It with Joelle Packard and Robin Pegg 10.09.2024

It feels like an eon since we did a "regular" podcast, but here we are! Brendan is sandwiched between Producer Joel and Joelle Packard - who tells us all about her experience in college. Back-to-School continues with Robin Pegg joining Jen and Brendan to really get into the nuts and bolts of how students with Williams syndrome learn. The materials Robin references are found here: https://www.willi...

Ep 39 - 15 Minutes of Fame Live from Camp Whispering Trails! 20.08.2024

Jen and Producer Joel are live at the WSA's Whispering Trails Camp for the Teen Camp's "15 Minutes of Fame" Talent Show! Join them as they channel their inner Gail and John from Pitch Perfect and provide commentary and cheers for the performers.  Honestly I don't know if this show will be any good on audio, but we had a lot of fun recording it and I wanted to give people a taste of what WSA Camp i...

Ep 38 - I Got Next! Live at the 2024 WSA Convention 06.08.2024

Recorded live in Phoenix at the 2024 WSA National Convention, Jen, Brendan, and Producer Joel welcome Emmy Coggshall and Chris Baxter to discuss their upcoming movie "I've Got Next" and the aspiration of inclusivity in front of and behind the camera. Then Gianna Morello joins the gang to talk about being on the Board of Trustees and a leader in the WS community.

Ep 37.75 - Post Convention Podlet 23.07.2024

Brendan got sick. Jen got sick. Joel got sick. A good time was had by all! The 2024 WSA Convention in Phoenix was a rousing success. Unfortunately the live podcast footage hasn't been delivered yet, so that will be released at a later date. Meanwhile, an exhausted Brendan and Joel do a quick recap of the Convention and look ahead to future episodes! Thank you to everyone who said HI to us at the c...

Ep 37.5 - It's a Convention Podlet with the Gang! 02.07.2024

The time has come! Preparations for the 2024 WSA National Convention in Phoenix are in the final stretch. The gang has just a few minutes to get together, do some last minute chatting, and get ready for the Live Podcast show on Wednesday, July 10th at 4PM! If you come up to any of us and say "Croutons & Hearts," we'll give you an official Starry-Eyed Podcast sticker!

Ep 37 - Weekend for Williams Live with Barb Nelson and Tayden Larsen 11.06.2024

Recorded Live on June 1st, Jen and Brendan and joined by Producer Joel and WSA Vice President of Programming Sarah Giddings during their marathon Weekend for Williams fundraiser. The podcast was also part of a POWER HOUR where all donations were doubled thanks to Barb Nelson, the owner of Brinkley's Boutique. Barb joined the gang to talk about all the different ways Brinkley's Boutique raises awar...

Ep 36 - Defiantly Choosing Joy with Jess Holsapple and Tabitha Toney 28.05.2024

During Williams Syndrome Awareness Month, it's important to recognize that, while our community has much to celebrate, there are also some very real challenges and tragedies. Jen and Brendan are joined by Jessica Holsapple and Tabitha Toney, two mothers who each lost their young boys from complications with Williams syndrome. Jess continues to share her journey with Griffin at Life in Griffinland...

Ep 35 - Awarenessing with Clare Neal and Micah Wilgus 14.05.2024

We're well into Williams Syndrome Awareness Month, and Jen and Brendan are joined by Clare Neal, whose niece spearheaded a fundraising effort with her dance troupe. After that, they're joined by Micah Wilgus, who is celebrating his 10th year of work at  @McDonalds  and is a tremendous advocate for Williams syndrome. Producer Joel also gives an update on his son Bennett's Chili Pepper Fundraiser wh...

Ep 34 - Kicking off Awareness Month with Sofia Napoli and Denise Callen 30.04.2024

It's May, which means it's Awareness Month!  Kicking the bleep out of the start of Awareness Month is Sofia Napoli. She joins Brendan and Producer Joel (filling in for Jen) to talk about the importance of advocating for yourself and to pump everyone up for this month's activities. Then Jen and Brendan are joined by Denise Callen, Director of Walks for the WSA, to talk about what is different this...

Ep 33 - Turning Back the Years with Jen Sellars and Mike Hladish 16.04.2024

In this episode, Jen and Brendan are joined by Jen and Mike...wait, that sounds confusing. Our hosts are joined by Jen Sellars (teacher and mom to a daughter with WS) and her friend Mike Hladish. They share their amazing story of growing up and reconnecting in a different part of the country that should warm your heart! We would like to acknowledge the wonderful organization Just People ( https://...

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