The Childhood Cancer Perspective

The beginning of our daughters 520 Battle with Choroid Plexus Carcinoma Brain Cancer.

Make yourself available to the community, but make sure your ok first

DNR ... what does it mean, why would you sign one for yourself or your child?

Living a life without your child brings about emotions that cant be denied, how do we move forward without forgetting or erasing the past?

4 Years ago ... 1/30/2020 would change our world forever

Have you ever had to hold your child down for a procedure? Have you ever felt helpless at an arms length from your child?

Images define so much of what we do and identify with, far too many photo albums have ended early. Are the pictures triggering? Defining? Ill tell you what they mean to our family and our community

Comedy isnt a free pass to use our kids as pawns for your money making venture, its time we stand up and defend our kids and let the world know they are off limits!

How does the world see a cancer family? allow me to reveal the Freak Show were treated as, the train wreck you cant look away from.

The answer to the famous question "How are You" has a much different answer than the one that is all too often given.

30 Minutes about Jaycee's Stem Cell Transplant and A little about our life in the hospital for 52 Days.

I speak to Dr. Catharine Young of the Moonshot program about why our kids need to be a priority. In the end I am invited to the next Childhood Cancer Forum at the WH to share Jaycee's Story!

Today i discuss the real reason for hospice and how it can be a comfort to the patient and the family aside from its negative stigma.

There is one thing we control as parents when faced with a diagnosis like Cancer, thats our mental health and personal bubble. We decide when to let people in and when to shut people out.

Learning to understand how your child is feeling is a task, they can't truly express their feelings and we as parents must find a way to decode their words and emotions and ensure they understand we hear them and want to help them.

All is not what it seems, triggers for some may not be for all and the future may have more impact than whats happened in the past. Think about it ...

Want to be an advocate? Never back down from a NO, never walk away when it gets too hot, always fight for your cause and be relentless!

I Discuss the definitions of Cancer Words vs. the reality of what they mean to us as cancer parents.

Shall we discuss the differences between Emotional Physical and Mental Burnout ... Absolutely, and then well get to my advice for moving forward.

Allow me to discuss an incredible organization, Special Spaces, that gave Jaycee an amazing gift but also gave us as a family something we will cherish forever

I discuss Jaycee's Treatment Protocol and why i think it was wrong, research later in treatment and after her passing proved she should have been treated differently and more options should have been offered.

In this episode i discuss CureFest, Advances in Medical Technology, as well as the discrepancies in how our children are viewed and take care of. Advances in certain aspects of pediatric cancer while others remain in the dark ages.

I speak with two senators aimed at creating a difference in the pediatric cancer world. I explain the need for change and why no one thinks this is an issue.

People come and people go, but true support amounts to very little when tragedy strikes

We are missing something great in this world, something innocent, something genuine and its the one thing we need the most, its what our children show us and too many take it for granted.