Rarely Typical Podcast

In this episode of Rarely Typical , I sit down with my diagnosing doctor, Dr. Hountras, to talk about the exciting advancements in pulmonary arterial hypertension (PAH) treatments. We dive into the world of clinical trials, the importance of research, and four new drugs making waves in the PAH community: Opsynvi, Yutrepia, Seralutinib, and Sotatercept (Winrevair). We discuss how these treatments w...

Episode Overview Medical gaslighting is a painful reality for many patients, especially those with chronic and rare diseases. In this episode, I share my personal experiences with medical negligence and the long-term trauma it caused me. From being dismissed and unheard to doubting my own symptoms, medical gaslighting left me with lasting medical PTSD and self-doubt. But there’s another side to th...

Pulmonary Arterial Hypertension (PAH) treatment isn’t one-size-fits-all, and trust me, I’ve tried it all (almost). In this episode of Rarely Typical , I’m breaking down the different treatments I’ve been on—IV pump therapy, oral medications, subcutaneous pump therapy, and the clinical trial injection I’m currently on. I’ll share the pros, the cons, and everything in between, plus what I’ve learned...

Living with a rare disease can feel isolating, but finding a strong community and embracing advocacy can be life-changing. In this episode of Rarely Typical , I dive into the power of connection—how surrounding yourself with the right people can impact not only your healthcare journey but also your emotional and mental well-being. We’ll talk about why advocacy matters, why I got started, how impac...

Living with a rare disease comes with unique challenges, from misdiagnosis to navigating complex healthcare systems. In this episode, we dive into the realities of rare disease life, the importance of advocacy, and finding hope amid the uncertainty. What You’ll Learn in This Episode: ✅ The challenges of living with a rare disease like delayed diagnoses ✅ Personal stories about how I struggled wi...

In this heartfelt episode of Rarely Typical , Gerry opens up about the profound lessons pulmonary arterial hypertension (PAH) and congestive heart failure have taught her. She shares her journey from a young, seemingly invincible 27-year-old to finding strength, purpose, and healing through life’s toughest challenges. Through humor, honesty, and faith, Gerry dives into the power of community, the...

In this episode of Rarely Typical, host Gerry dives into the heartbreaking realities of the American healthcare system for chronically ill patients. She shares her personal experiences with both poor and exceptional medical care, highlighting the shocking disparities that exist. Gerry discusses the financial burdens, startling statistics about healthcare costs, and the exhausting fight many patien...

Welcome to Rarely Typical, this podcast will dive into life with chronic illness, rare disease, and everything in between. Hosted by Gerry Langan, a pulmonary hypertension and heart failure advocate, this show offers honest conversations, practical tips, and a dose of hope to help you navigate the unpredictable. Whether you're a patient, a caregiver, or just curious, join us for real stories, expe...