PodcastDX

In this episode we will discuss Hypertrophic Olivary Degeneration (H.O.D.) once again, this time with a new guest, Brad Asher. Hypertrophic olivary degeneration (HOD) a rare neurological condition caused by degeneration in the brain stem, the structure that connects the brain to the spinal cord.  Signs and symptoms include palatal tremors, lack of movement coordination (ataxia), Holmes tremor, vis...

In this episode we will discuss Colon Cancer.  Since we don't have a guest this week it will be just the hosts this week. Colon cancer is a type of cancer that begins in the large intestine (colon). The colon is the final part of the digestive tract. Colon cancer typically affects older adults, though it can happen at any age. It usually begins as small, noncancerous (benign) clumps of cells calle...

In this episode we will discuss "Magic Mushrooms" with our guest, Del Jolly.   ​Del Jolly, Co-Founder of Umbo , Unlimited Sciences and expert in functional mushrooms, states the research at Unlimited Sciences collects real-world data on psychedelic use so that we can more quickly understand how to use these drugs safely and effectively for our health and overall wellbeing.  Advocate & Educator...

In this episode we will discuss heat injuries and dehydration.  As summer jumps in with both feet, so must we!  Please listen, share, and take care of one another. ​ There will not be a guest this week, we will discuss the topic in forum.  We hope you will listen and share this important topic.

Sometimes it's the simple things that make a difference in our healthcare.  Getting a regular check-up is part of what can keep small things that are easily treatable from turning into a more difficult problem down the line!  This episode is part one of two and will be discussing Oral/Dental Health.  We will cover general health questions in a few weeks. Preventive dentistry is the practice of car...

You have a chronic illness, new diagnosis, rare disease or are a caregiver for one of the above.... You really want to get your story told!  There are others in the world that can benefit from understanding your story, but how do you even start?   ​ One idea is to become a guest on a show like ours, another could be writing a blog, or a book, or an article!  Want to know more?  Listen to this week...

Sandra Hamilton, Founder of  Cure-Cancer @UCL Institute   We have the honor of speaking again today with Sandra Hamilton of the "Cure-Cancer Foundation" (CCF) which supports the University College London, Non-Hodgkin's Lymphoma Cancer Research Division.  She will discuss how the financial toll of this disease has affected her and her family, and what she has found helpful in this journey.  She is...

This week we are talking about Hepatitis means inflammation of the liver. The liver is a vital organ that processes nutrients, filters the blood, and fights infections. When the liver is inflamed or damaged, its function can be affected. Heavy alcohol use, toxins, some medications, and certain medical conditions can cause hepatitis. However, hepatitis is often caused by a virus. In the United Stat...

Medicines are used to treat diseases, manage conditions, and relieve symptoms. Medicines are generally safe when used as prescribed or as directed on the label, but there are risks in taking any medicine. Each year in the United States, adverse drug events – harm resulting from medication use – cause more than one million visits to hospital emergency departments. Learning about medication safety c...

This week we are talking once again with Anna, this time about Crohn's Disease and Gastroparesis.  Anna is a 35 year old female who has an independent spirit inside of a body that holds an alphabet of health conditions. Anna worked as a case manager for individuals with intellectual and developmental disabilities where she loved to advocate for her clients. When her health forced her to take a ste...

This week we are talking about organoids.  Scientists have shown over the past decade or so that organoids—small, organ-like structures grown in culture from stem cells—can integrate into many organs, including the  liver ,  lungs , and  guts  of mice, and repair defects. In a study published today (February 18) in  Science , researchers have advanced this approach in human tissue, and demonstrate...

This week we're talking about FCCM or, Familial cerebral cavernous malformation, with Megan.   [FCCM is] ..." a rare, capillary-venous malformations characterized by closely clustered irregular dilated capillaries that can be asymptomatic or that can cause variable neurological manifestations such as seizures, non-specific headaches, progressive or transient focal neurologic deficits, and/or cereb...

On today's show we are speaking with Christina Coates about Hypertrophic olivary degeneration (HOD) a rare neurological condition caused by degeneration in the brain stem, the structure that connects the brain to the spinal cord.  Signs and symptoms include palatal tremors, lack of movement coordination (ataxia), Holmes tremor, vision problems, muscle weakness, and gait impairment, along with an M...

On this episode we have the honor of speaking with Robyn A. Maguire.  She is a mother to 3 wonderful children. Her oldest is learning how to drive and excelling in her academics as a freshman in high school. Her middle child’s super into sports and music. Right now he’s teaching himself how to play the guitar. Her youngest son Zeke, smiles like sunshine, he warms the room. Funny, because his condi...

This week marks four years as co-hosts on PodcastDX.  For today's show we will be recalling some of our most memorable interviews from these past four years.  We have had the honor of speaking with 151 guests and have posted 209 episodes so it wasn't an easy task but with input from everyone on the team, I think we had success!   ​ I want to take the time to thank our listeners from around the wor...

 Factitious Disorder Imposed on Another (FDIA), also known as Munchausen Syndrome by Proxy (MSbP) is a very serious form of child abuse. The perpetrator, usually the mother, invents symptoms or causes real ones in order to make her child appear sick. Our guest today, Craig Lewis, not only survived the ordeal but has written a book on his experiences and is a Peer Counselor to help others.  ​ Craig...

  On this week's episode we are discussing Tuberculosis, or TB.  Currently the infection has a rate of infection that is only 2.2 per 100,000 persons.  TB is more common in countries where many people live in absolute poverty because people are more likely to: live and work in poorly ventilated and overcrowded conditions, which provide ideal conditions for TB bacteria to spread suffer from malnutr...

Our guest on today's show is Dan Dry Dock Shockley,  a retired Navy, Operation Desert Storm; Enduring and Iraqi Freedom veteran and 10 year hereditary colon cancer WARRIOR.  One of the risk factors for colorectal  cancer  is a  family history  of the disease. Colorectal cancer is called "hereditary" or "inherited" when several generations of a family have it. Experts have found gene changes (also...

Today's show features Anna Cooper.  Anna is the sister of another one of our guests; Faith Cooper who talked with us S9E11 on JRA and S10E11 on EDS.   Addison's disease, also called adrenal insufficiency, is an uncommon disorder that occurs when your body doesn't produce enough of certain hormones. In Addison's disease, your adrenal glands, located just above your kidneys, produce too little corti...

We have the honor of speaking once again with Sheila Ames, a registered nurse in Northern California who has been diagnosed with a rare type of a primary immunodeficiency known as common variable immunodeficiency or CVID for short.  At the time of her diagnosis she was working as an ICU nurse and her first doctors order was: no more exposure to infectious patients.  This diagnosis not only changed...

On today's show, we have the honor of speaking with Evelyn Gamble.  Evelyn has been dealing with a condition called Hypogonadotropic Hypogonadism, a form of hypogonadism that is due to a problem with the pituitary gland or hypothalamus.  Hypogonadism is a condition in which the male testes or the female ovaries produce little or no sex hormones. (credits: Medline Plus)  Hypogonadotropic hypogonadi...

Today we have the honor of speaking with Evelyn Morales.  Evelyn is a beautiful young mother living in Texas, and has had some physical challenges over the past few years.  I started following her on TikTok due to her super positive "I Can Do This!" attitude.  ​Evelyn's health journey began with a diagnosis of hypothyroidism.  Hypothyroidism is when the thyroid gland doesn’t make enough of the thy...

On today’s show we are talking once again with Kathy Reagan Young!  Kathy is a strong patient advocate in the MS world and hosts a website called FUMSnow and has her own podcast.  She recently began teaching a course called “Patients Getting Paid” and is here to talk about that today.  If you would like to find out more about Patients Getting Paid, you can check out Kathy's Facebook Page Here! And...

A cataract develops when the lens in your eye, which is normally clear, becomes foggy. For your eye to see, light passes through a clear lens. The lens is behind your iris (colored part of your eye). The lens focuses the light so that your brain and eye can work together to process information into a picture. When a cataract clouds over the lens, your eye can’t focus light in the same way. This le...

Winter storms and cold temperatures can be dangerous. Stay safe and healthy by planning ahead. Prepare your home and vehicles. Prepare for power outages and outdoor activity. Check on older adults. Although winter comes as no surprise, many of us may not be ready for its arrival. If you are prepared for the hazards of winter, you are more likely to stay safe and healthy when temperatures start to...