PodcastDX

PodcastDX

Science EN ↓ 422 episodes

PodcastDX is an interview based podcast series in a “peer-to-peer supportive format." We have found that many people are looking for a platform, a way to share their voice and the story that their health journey has created. Each one is unique since even with the same diagnosis, symptoms and the way each person will react to a diagnosis, is different. Sharing what they have experienced and overcome is a powerful way our guests can teach others with similar ailments. Many of our guests are engaging in self-advocacy while navigating a health condition, many are complex and without a road-map to...

Author

PodcastDX

Category

Science

Podcast website

audioboom.com

Latest episode

May 26, 2026

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Episodes

S9 Ep14: Dentures 03.08.2021

Dentures are removable appliances that can replace missing teeth and help restore your smile. If you’ve lost all of your natural teeth, whether from gum disease, tooth decay or injury, replacing missing teeth will benefit your appearance and your health. That’s because dentures make it easier to eat and speak better than you could without teeth—things that people often take for granted. When you l...

S9 Ep13: Medicinal Uses of CBD 26.07.2021

Cannabidiol (CBD) oils are low tetrahydrocannabinol products derived from Cannabis sativa that have become very popular over the past few years. Patients report relief for a variety of conditions, particularly pain, without the intoxicating adverse effects of medical marijuana. (NIH) ​On todays show we are speaking with the Dynamic Duo at CannaPros inc. about the various Cannabis products typicall...

Shingles (Herpes Zoster) 20.07.2021

Shingles is a painful rash that develops on one side of the face or body. The rash consists of blisters that typically scab over in 7 to 10 days and fully clears up within 2 to 4 weeks.  Before the rash appears, people often have pain, itching, or tingling in the area where it will develop. This may happen several days before the rash appears. Most commonly, the rash occurs in a single stripe arou...

S9 Ep11: Juvenile Arthritis & hEDS 13.07.2021

Squeeze a world of passion, goal driven problem solver and an adventurous triathlete into 5 feet of fun and you get Faith Louise Cooper. Faith Louise grew up in a family of 5 with 2 younger sisters.  At the 12 she was diagnosed with Juvenile Rheumatoid Arthritis, now known as Juvenile Idiopathic Arthritis.  In 2017 she was diagnosed with hypermobility syndrome and was recently changed to Hypermobi...

S9 Ep10: Ehlers Danlos & Oral Health 06.07.2021

The Ehlers-Danlos Syndromes (EDS) give rise to a spectrum of features affecting the mouth that may lessen quality of life. Additionally, routine dental care has the potential to be compromised as a consequence of some of the systemic features of the disease. This episode provides a review of the oral and dental aspects of EDS. Orofacial manifestations The oral and facial features of EDS vary with...

S9 Ep9: Congenital Cytomegalovirus 29.06.2021

Congenital cytomegalovirus (congenital CMV) is a group of symptoms that may occur when an infant is infected with the  cytomegalovirus  before birth. Most infants who are infected with the virus never develop symptoms of the condition. However, approximately 10% of babies will experience health problems and/or disabilities such as problems with the lungs, liver and/or spleen at birth; hearing loss...

S9 Ep8: Men's Heart Health 22.06.2021

On average men die almost 5 years earlier than women!  Why?   Stress and cardiac health have a direct connection, how does this affect men? ​The mind and mental health status for men has a direct correlation to their heart health!  Want to know more?  Listen to this week's episode!!

S9 Ep7: Fibrous Dysplasia 15.06.2021

This week's episode discusses a rare condition that turns bone into fibrous tissue.  Fibrous Dysplasia can be devastating, but our guest, Brittany is taking it all in stride and is continuing her advocacy work with us by sharing her story.  Without further ado...here's Brittany!   I am a 36 year old woman from Indiana. I have a rare disease called Fibrous Dysplasia. It turns my bones into fibrous...

S9 Ep6: EDS Ehlers Danlos Syndrome 08.06.2021

On this week's show we are speaking with Kristine Hoestermann, the founder of " FindYourRare " and she will be explaining how she was diagnosed with HEDS and where that diagnosis took her! Heeeeere's Kristine!   Allow me to introduce myself🦓My name is Kristine (kk). I am the CEO of RARE.™ A brand that was born from my own frustrations following the onset of my symptoms in 2016. It never occurred...

S9 Ep5: Food Allergies 01.06.2021

Food allergy is an immune system reaction that occurs soon after eating a certain food. Even a tiny amount of the allergy-causing food can trigger signs and symptoms such as digestive problems, hives or swollen airways. In some people, a food allergy can cause severe symptoms or even a life-threatening reaction known as anaphylaxis. Food allergy affects an estimated 6 to 8 percent of children unde...

S9 Ep4: Stroke Awareness 25.05.2021

This week we will be discussing stroke awareness. More than 800,000 strokes happen each year in the United States. Stroke is the fifth leading cause of death in the U.S. and is a major cause of serious disability for adults. A stroke is caused by blocked blood flow to the brain and can affect a person’s speech, movement, memory, and more. It’s important to know the signs of a stroke and get help q...

S9 Ep3: Hypothalamic Obesity 18.05.2021

Dr. Eugenie Hsu is a clinical psychologist by profession and lives in the San Francisco Bay Area with her husband and two children. In 2011 when her son was 8, he was diagnosed and treated for a craniopharyngioma brain tumor: Grateful for his survival but distressed by the many challenges he suffered in the aftermath of the tumor and surgery, Eugenie became focused upon finding solutions and treat...

S9 Ep2: Fabry's Lysosomal Storage Disease 11.05.2021

Brandi McAlexander was born and raised in Kirtland, New Mexico, a small town ten miles from the Navajo Native American Reservation. She is both Oglala Sioux and White Stick Creek. She is happily married to a veteran of two tours to Iraq. Together they have a happy full house with seven children; four girls and three boys. She worked in healthcare as a C-Suite executive for twenty years before deci...

S9 Ep1: CVID, Common-Variable-Immunodeficiency 04.05.2021

Today, we have with us today, Sheila Ames a registered nurse in Northern California who has been diagnosed with a rare type of a primary immunodeficiency known as common variable immunodeficiency or CVID for short.  At the time of her diagnosis she was working as an ICU nurse and her first doctors order was: no more exposure to infectious patients.  This diagnosis not only changed her career drama...

S8 Ep20: Sturge Weber Syndrome 27.04.2021

A mother of two from Alberta, Canada, Chelsey Peat was born with a rare condition called Sturge Weber Syndrome. She was born with a large portwine stain birthmark on the left side of her face and has glaucoma in her left eye. She has had multiple surgeries including life saving brain surgery as a baby. ​Sturge-Weber syndrome (SWS) is a rare disorder affecting the skin and nervous system. Babies wi...

S8 Ep19: Sarcoidosis 20.04.2021

In this episode we will discuss Sarcoidosis with Frank Rivera. Frank is the Founder and President of Sarcoidosis of Long Island,   is a WEGO Health Patient Leader, a Patient Ambassador at Illumina Inc, and a volunteer Patient Ambassador at The Foundation for Sarcoidosis Research. ​Sarcoidosis is a disease characterized by the growth of tiny collections of inflammatory cells (granulomas) in any par...

S8 Ep18: Organ Transplant 13.04.2021

Every day, gifts from donors restore health to save and improve lives. As of 2019, 165 million people in the U.S. have registered as donors, but we all need to sign up. There are still      men, women, and children waiting for a life-saving organ transplant.   ​Organ donation takes healthy organs and tissues from one person for  transplantation  into another. Experts say that the organs from one d...

S8 Ep17: Tinnitus 05.04.2021

Do you hear a constant sound in your ears, even though there is no external source linked to the noise? If so, you’re likely suffering from tinnitus, and you aren’t alone. It’s estimated that more than 50 million Americans suffer from some degree of tinnitus, 16 million Americans experience such severe ringing that they require some type of treatment, and another 2 million suffer from such debilit...

S8 Ep16: von Hippel-Lindau Chuvash Polycythemia 30.03.2021

Our guest this week is Shannon Wyatt.  Shannon has an extremely rare condition called von Hippel-Lindau Chuvash Polycythemia (we will abbreviate to VHL).  Her only symptom that led to finding VHL was that she was diagnosed with kidney cancer at 34 years old, that didn’t even have any noticeable symptoms, it was just an incidental finding on an MRI, but when they took it out, they found it was mali...

S8 Ep15: Bleeding Disorders, Hemophilia, von Willebrand Disease, Coagulation Disorders, Blood Clotting Disorders, Clotting Factor Deficiencies 23.03.2021

  Bleeding Disorders, also known as Hemophilia, von Willebrand Disease, Coagulation Disorders, Blood Clotting Disorders, Clotting Factor Deficiencies ​Bleeding disorders are rare disorders affecting the way the body controls blood clotting. If your blood does not clot normally, you may experience problems with bleeding too much after an injury or surgery. This health topic will focus on bleeding d...

S8 Ep14: Trisome 16.03.2021

Trisomy is an abnormality in which an organism has the wrong number of chromosomes. In humans, a normal baby will have 46 chromosomes in 23 pairs, with each parent contributing 23 chromosomes. When trisomy occurs, the individual is born with three instances of a particular chromosome instead of the usual two, resulting in 47 total chromosomes instead of 46. The results of this extra data can vary,...

S8 Ep13: Lysosomal Storage Disease 09.03.2021

Lauren, is here speaking with us today about Lysosomal Storage Disease.  Lauren has four siblings whom she loves dearly, and graduated in 2011.  She worked at a community center until COVID put a hold on social gatherings. She considers herself a social person and is grateful for the chance to get her story out into the world. ​ Lysosomal storage diseases are inherited metabolic diseases that are...

S8 Ep12: Muscular Dystrophy 02.03.2021

This week we are speaking with a Muscular Dystrophy Warrior!   Keisha Greaves is a motivational speaker, the founder of Girls Chronically Rock, and the Massachusetts State Ambassador for the Muscular Dystrophy Association (MDA). Girls Chronically Rock (www. girlschronicallyrock.com ) offers inspired fashion celebrating Muscular Dystrophy and other chronic illnesses. Over the past few years, Keisha...

S8 Ep11: Rare Disease CAMK2 Genetic Mutation 23.02.2021

Our guest today is Karen is a wife and mother to 5 children.  Her youngest, who is now 13 was born seemingly healthy.  In her first weeks it became clear that she wasn't developing normally. After 10 years of looking for a diagnosis and not finding answers, they decided to do whole exome sequencing.  That finally gave them an answer.  She has a mutation of her CAMK2 gene. It was so newly discovere...

S8 Ep9: Fibromyalgia & POTs 09.02.2021

Jason is an engineering graduate who reinvented himself as a podcaster and chronic illness/disability advocate after developing fibromyalgia and postural orthostatic tachycardia syndrome (POTS). He is the host of Discomfort Zone , a podcast featuring immersive stories on chronic illness and disability that showcase our vulnerability, wellness, and resilience. He and his guests find comfort by turn...

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