MyMacDLife - Macular Degeneration Podcast

My Mac D Life discusses everyday tools that can be used to navigate life with Macular Degeneration.

Psychologist and writer, Sue Labar-Yohey, shares a personal story of her macular degeneration diagnosis and how writing helped her process her diagnosis and led to her connecting with others through her blogs.  Sue discusses Apellis-2 and advancing research on treatment for AMD.

My Mac D Podcast is joined by Dr. Stambolian. Dr. Stambolian describes how they are taking a new approach focusing research on human eye tissue to better understand what makes a normal macula different from other locations in the retina. Their goals, he says, is to develop better treatments and work on finding a cure.

MyMacDLife interviews leading retina specialist, Dr. Timothy Murray. Dr. Murray offers details and information surrounding macular degeneration and new potential treatments.  He provides tips and strategies for patients and their caregivers, including key questions you should be asking your doctor.

My Mac D Life revisits past conversations with Christine Pedi.  Christine Pedi is an American television and theatre actress, cabaret performer and radio personality.  Christine shares her adventures as she navigates through the world with diminished vision while trying to get a better understanding of herself and the wo rld. 

Bill Kilroy and Michael Wood join My Mac D Life to talk about Vispero's Topaz Ultra and the Clear View C. Vispero is the world's leading assistive technology provider for the visually impaired. 

My Mac D hosts take a peek into the mailbag to answer common questions surrounding Mac D that were sent in by listeners.

My Mac D is joined by Kira Baldonado. She is the Vice President for Prevent Blindness. She oversees the development and implementation of the organization’s public health and policy agenda, working closely with affiliate offices and partner organizations across the country.

Dr. Erin Kenny joins My Mac D life to discuss Low Vision and Vision Rehabilitation.  She is Chief of the William Feinbloom Vision Rehabilitation Center

My Mac D is joined by Chris Caswell. He is a part of Low Vision International in Växjö, Sweden. LVI's mission is to make every day easier for people with visual impairments, LVI develops, produces and sells visual aids with high standards for reliability, simplicity and serviceability.

On This Episode The episode opens with Dawn Prall and Audivita Studios founder, and MyMacDLife production partner, David Wolf. They discuss the relationship between Audivita Studios and MyMacDLife as well as exchange views on the rise and importance of audio production and consumption. David shares his journey in the creative field; his love of audio shines throughout, specifically creating visual...

The episode begins as Dawn Prall interviews Ilana Yellen from Evoke KYNE about their recent work on AMD Central. AMD Central is a brand-new resource website created to provide verified, trusted, educational information to those effected by MacD. AMD Central was created by the leading organizations in the macular degeneration field: The SupportSight Foundation, BrightFocus Foundation, MD Support, P...

On This Episode Co-hosts Shawn Doyle and Dawn Prall begin the episode with the idea of creating a care plan for a macular degeneration diagnosis. This care plan can be used as a map to live with the disease and manage fear and adversity. They encourage not only those with MacD, but caregivers and loved ones, to find information centers, support systems, and strategies to navigate life with vision...

On This Episode Co-hosts Shawn Doyle and Dawn Prall begin the episode with a discussion on asking for help. Asking others for assistance can make you feel like a burden, but it’s an important skill to practice. Dawn brings forth the idea of people asking for help in all type of situations, such as customer service or dealing with a broken leg. We all need assistance at times and those who are help...

On This Episode Co-hosts Dawn Prall and Shawn Doyle begin the episode with a conversation about being a doer, specifically, the importance of doing while losing your vision. Dawn and Shawn provide tips for modifying activities, such as exercise. They highlight the positive physical and psychological benefits of being active. The conversation shifts to experiences while running errands and the help...

On This Episode Hosts Dawn Prall and Shawn Doyle begin the episode conversing about a topic that has been on their minds. This episode, Shawn wonders about the thought process of a person who considers themselves as disabled versus someone who does not. He mentions how people who think positively heal much more often than people who don't, as well as the impact changing language has on the min...

On This Episode Hosts Dawn Prall and Shawn Doyle begin the episode with a conversation about the right diet and foods to eat with MacD. They not only discuss how diet and healthy eating are critical to living with macular degeneration but also share a number of resources and tips on foods that are eye healthy.  Dawn explains why heart healthy living is eye healthy, including lifestyle choices, “ea...

On This Episode Hosts Dawn Prall and Shawn Doyle begin the episode with a conversation about energy. They discuss how much energy people end up having to expend after being diagnosed with macular degeneration—from determining next steps; to discovering available resources; to asking the doctor follow-up questions; or even simply to sort it all out. Dawn also talks about the added challenges when h...

On This Episode Hosts Dawn Prall and Shawn Doyle begin with a conversation about maintaining a positive attitude with MacD, especially during pandemic times. Dawn shares tips, such as creating a gratitude or joy list, to assist with sustaining a healthy mindset. Shawn interviews special guest Dan Roberts, a retired educator and book author who also serves as the editor-in-chief of Living Well with...

Hosts Dawn Prall and Shawn Doyle begin the episode discussing how people with Mac D and their family members maintain hope. They share examples of how individuals see a bright horizon and future hope in new treatments—and eventually a cure. They also find hope in data, information and research from driven scientists and medical researchers committed to discovering new treatments, medication, cures...

You don’t want to miss a thing, click to listen. A collection of personal, authentic MacD stories from and about patients, families, and caregivers. The Podcast brings experts, knowledge, info, and fun to the airwaves.