myFace, myStory

Navigating life with a craniofacial condition certainly comes with challenges. On this month's episode of myFace, myStory , host Dina Zuckerberg is joined by Dorsey Ross - minister, podcaster, and public advocate born with Apert Syndrome. Dorsey wants us all to remember that with support, community, and faith - whether that be faith in yourself, your community, or a higher power - you can create a...

On this month's myFace, myStory, host Dina Zuckerberg was joined by Matthew Joffe, born with Moebius Syndrome. Matthew is the Director of Outreach and Education at the Wellness Center at LaGuardia College/CUNY in New York. This episode was a special and intimate conversation between Dina and Matthew where they discussed his journey of living with Moebius Syndrome; and how his journey and illustrio...

On this month's  myFace, myStory , host  Dina Zuckerberg  spoke with New York makeup artist and long-time friend of myFace,  Naomi Levinshtein , along with founder and director of POSITIVE EXPOSURE, a non-profit organization that promotes a more inclusive world through award-winning photography and educational programs,  Rick Guidotti . This episode was a conversation about how the definition of b...

myFace's Dina Zuckerberg sat down with Appearance Activist and CEO of Face Equality International, Phyllida Swift . This episode explored Phyllida's journey of sustaining facial scars in 2016 after a car accident, and how she turned that trauma into a triumph by becoming an Appearance Activist fighting for equality and inclusion for those with facial differences.    

myFace's  Dina Zuckerberg  spoke with teenage disability advocate and TikTok sensation,  Grace Nova . This episode shed light on Grace's journey of growing up with Escobar Syndrome and how her unique experiences inspired her to use social media platforms to advocate for those in the disability and the craniofacial communities by providing an inside look on the challenges that those with difference...

myFace's Dina Zuckerberg spoke to author, poet, retired nurse practitioner, and advocate for the cleft community, Luci Capo Rome about her memoir, Lucia's Story: My Imperfect Beauty , written in honor of facial differences. We will follow her journey of being born with a severe and complete bilateral cleft lip and palate and how she rose above all the challenges that went with it. 

Advocating for your child with a cleft lip/palate or craniofacial condition can be challenging, but it has a critical impact on your child's outcomes. In this episode, we heard from parents who have helped their children navigate and overcome bullying, supported their children through medical procedures and surgeries, and who have fought - and succeeded - to get their children the services they ne...

myFace's Dina Zuckerberg sat down with author and disability justice activist, Rasheera Dopson , to discuss her memoir: Beauty With a Twist, and how her lived experiences led her to launch a brand that focuses on empowering young women living with various disabilities.  

The journey to find confidence and self-acceptance can be a long one for those in the craniofacial community, but rewarding nonetheless. myFace's  Dina Zuckerberg  sat down with guest speaker  Cleft Confidence Coach & Transformational Speaker, Iva Ballou,  as they discussed how Ms. Ballou helps empower those growing up with craniofacial differences by providing tips and strategies on how to find i...

myFace's Dina Zuckerberg sat down with guest speaker Author Shelley Hull as they discussed Ms. Hull's memoir, Shelley: The uplifting story of a battle to overcome disfigurement . This episode was autobiographical in nature as Ms. Hull spoke about the challenges and triumphs she dealt with while growing up living with Goldenhar Syndrome, the lessons she has learned, and how her journey has inspired...

myFace's  Dina Zuckerberg  sat down with guest speakers  Dr. Alexis Johns ,  Melvin Farmer ,  Naomi Levinshtein , and  Ava Beeler  as they talked about life after high school and the complexities that come with the journey of transitioning into adulthood for those in the craniofacial community.  

myFace's Dina Zuckerberg sat down with guest speakers Jeryl Brunner, Dean Kandilakis, Ann Piesen, and Eric Riklin as they talked about the challenges that those in the craniofacial community deal with while trying to navigate intimacy and building relationships while living with a facial difference.  

myFace's Dina Zuckerberg sat down with New York Times best-selling author of the book Wonder, R.J. Palacio , myFace Board Member Sondra Neuschotz , and educator and parent of a young adult living with a craniofacial difference, Mary Butters , to collectively celebrate the amazing impact that Wonder has caused for the craniofacial community after being published 10 years ago.

myFace's Dina Zuckerberg sat down for a panel discussion with Ava Beeler, Halley Crane, Nicole Hilton, and Rena Rosen as they spoke about the nuances of trauma experienced by those living with craniofacial differences, and how the different surgeries and medical procedures they received throughout their lifetime impacted them and their families.

myFace's  Dina Zuckerberg  sat down for a discussion with  Ariel Henley  as they discussed her new memoir  A Face for Picasso,  and how she is using her personal story as a platform to advocate for mainstream inclusivity for the craniofacial community and to further educate the world about the experiences of those living with facial differences to help eliminate the stigma surrounding them.

myFace's  Dina Zuckerberg  sat down for a discussion with  Scott Donnelly ,  Naomi Levinshtein ,  Morgan McGahan , and  Patricia Simon as they relayed their personal experiences with bullying and shared tools and words of encouragement to help those in the craniofacial community dealing with it as well

Joe Graf Jr. is a 23-year-old rising star on the racing scene who has competed in the ARCA Menards Series, NASCAR Modified Series, INEX Legends Car Series, and the INEX Bandolero Series. In 2021, he began his sophomore season in the NASCAR Xfinity Series, but Joe and his family have been supporting the craniofacial community for years. During this episode, we sit down with Joe Graf Jr and his moth...

Best-selling author, comedian, and internet sensation Sarah Cooper and her sister Charmaine Cooper, an accomplished nurse practitioner for over 2 decades, join host Dina Zuckerberg for a candid, in-depth conversation on humor, passion, and community on the next episode of our new podcast series, myFace, myStory.   Born with Treacher Collins Syndrome, Charmaine offers her firsthand experience of li...

Join Dina Zuckerberg for a thought-provoking interview with Adele Capitella-Liu, Dean Kandilakis, and Jasmine Stewart as they address the history of craniofacial differences and discrimination.

Join Dina Zuckerberg, myFace's Director of Family Programs, for a thought-provoking discussion with members of the myFace community, including Nicholas Buoscio, Emily Krebs, Margaret Shair, and Patricia Simon, as we address the masks we wear, both physically and figuratively, and what's behind those masks.

Welcome to our first episode with an introduction to myFace, myStory, a new monthly series featuring conversations with the craniofacial community. Meet Dina Zuckerberg, Director of Family Programs at myFace, an amazing organization dedicated to changing the faces – and transforming the lives – of children and adults with facial differences by providing access to holistic comprehensive care, educa...