TubiakManiak

Living free with RP

Society EN ↓ 116 episodes

A weekly podcast where I will interview a different person who has the eye disease known as Retinitis Pigmentosa.

Author

TubiakManiak

Category

Society

Podcast website

podcasters.spotify.com

Latest episode

Feb 13, 2026

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Episodes

Ben Fox’s Journey 01.04.2022

Ben is super high energy and super awesome! He’s very inspiring! Enjoy!!

MJ Rose’s Journey 15.03.2022

MJ is new RPer. Having been diagnosed very recently. She found The RP Show and it really helped her out. I loved her energy so much that I wanted her to share her journey on the podcast! Enjoy!

Dave Steele’s Journey 01.03.2022

Many of you know The Blind Poet and what he does but I think during this interview you will learn a few things about Dave that you never knew! Enjoy this very special episode!

Claire Crawford’s Journey 15.02.2022

Despite having 2 other siblings with RP the recent diagnosis Claire received still was a big hit. Listen and see how she is handling it a week after hearing that she has RP.

Heidi McGill’s Journey 01.02.2022

Heidi is not only a super awesome woman she also the author of “Dial E for Endearment”. You will learn all about this and more! Enjoy!

Rose Kamma Morrison’s Journey 13.12.2021

Rose is from Canada and enjoys being an artist, baker, and a runner! She loves technology! She uses it a lot to assist her in her daily life dealing with both RP and Ushers syndrome.

Mary Kathryn LeMaster’s Journey 20.11.2021

Mary is very awesome woman who is giving back to the visually impaired and blind community having co-founded a local support group called Eye See Hou based in Houston, Texas. She is not only the co-founder, she is also the president.

Dianne Moussa’s Journey 10.11.2021

Dianne comes to you all the way from Australia. She’s single and has some good opinions on how she approaches that in today’s dating world while dealing with RP.

Dave Barrett’s Journey 01.11.2021

Dave is a Veteran of the U.S. Coast Guard and in his spare time he plays the bag pipes. A great all around family man. Listen and enjoy!

Penny DuVall’s Journey 04.10.2021

Diagnosed at 5, Penny who is now 65 has a lot of experience with RP. And she is not the only one in her family with the disease. Check it out!

Jacqueline Elmawey’s Journey 21.09.2021

Jacqueline noticed her vision seemed like static on a tv shortly after the birth of her second child. She knew something wasn’t right…

Alex Sparks’ Journey 08.09.2021

Alex is a super passionate man and host of his own podcast The Blind American. Hope you enjoy his view on dealing with RP.

Maranda Williams’ Journey 24.08.2021

Diagnosed 7 years ago at the age of 26, Maranda does her best dealing with RP. Luckily she’s not alone in this journey. Other members of her family also have RP.

Sylvia Perez’s Journey 12.08.2021

Sylvia unlike most with RP was born blind. But that hasn’t stopped her from living life at all. Check out her story!

Lynn McLellan’s Journey 15.03.2021

Diagnosed in 1979 at a time when not much was known about RP, Lynn found a Doctor who knew exactly what she had and gave her some sound advice.

Lance Johnson’s Journey 08.03.2021

I always enjoy talking to a fellow RPer whose journey is similar to my own. Lance got diagnosed around the same time as me and has a mom with RP. It was like talking to me at 30. Lol He was awesome! Enjoy!

Tracey Marno’s Journey 02.03.2021

We are back in the UK again! Tracey has a wonderful outlook on dealing with RP! Enjoy!!!

Lorelei Wharton’s Journey 22.02.2021

Diagnosed 35 years ago, Lorelei keeps a positive frame of mind with the help of her comedian husband. Enjoy!!!

Josiah Eyeington’s Journey 15.02.2021

We are back in the UK again! Joe like most of us with RP is just living life to the fullest one day at a time.

Lindsey Taylor’s Journey 09.02.2021

This episode we look at the other side of RP. Lindsey doesn’t have RP but her brother does. So check out how that has effected her life. Enjoy!

Waqar Amjad’s Journey 25.01.2021

It’s always fun to chat with people in other countries who have RP. Even though so far away and in a much different culture our journeys connect us. Enjoy!

Chad Dillon’s Journey 18.01.2021

A man who literally walked in to get lasik done and walked out with a diagnosis of RP. But he got over the initial shock of that and had continued on with his life not letting RP get in the way!

Wynston Stafford’s Journey 19.10.2020

Have you ever been asked if you have super gearing like Daredevil? Well Wynston has. Just one of many different thoughts that people have when they hear you are going blind. But he handles it well! Enjoy!

Dustin Buck's Journey 21.09.2020

Initially thinking his life was over, Dustin now has a whole new look on life with RP. We talk a lot about the mental health aspect of RP. Enjoy!

Tod Purvis' Journey 14.09.2020

On this episode you might question whether you have RP because Tod and his brother have an eye disease that mirrors RP. Check it out!

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