Krystal Jakosky

Lewy Body and Mindful Caregiving

Education EN ↓ 64 episodes

Lewy Body and Mindful Caregiving is a weekly podcast hosted by yours truly, Krystal Jakosky. I’ve always been open to discussing death and the end-of-life challenges we will all face. Yet, in November of 2023, my Mom was diagnosed with Lewy Body Dementia, and suddenly everything became a LOT more real. My aim is to bring awareness and understanding of the rollercoaster specific to Lewy Body. If you are supporting someone or know of someone who is dealing with dementia in any way, I hope this podcast can be a boost and support. Simply knowing you’re not alone can be the best lifeline. You can l...

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Author

Krystal Jakosky

Category

Education

Latest episode

Feb 13, 2025

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Episodes

14: Finding Lewy Body Support Groups and Therapists 26.10.2023

In this episode of Lewy Body and Mindful Caregiving, we emphasize the importance of self-care and developing a support system amidst the challenges of caregiving. I share my personal experiences seeking solace in pottery and establishing different support avenues like therapy, social media groups, and discussions with family and friends. Insightful and personal, the episode offers a wealth of advi...

13: Post Travel Insights 19.10.2023

In this touching episode, I share a deeply personal account of a recent trip I undertook with my mother, who suffers from Lewy Body. I delve into the unique struggles of traveling with someone who requires special care; the highs and emotional lows, and the recognition of her decline. I also touch upon the importance of self-awareness, self-care, and keeping open lines of communication with loved...

12: Navigating Travel with Dementia 12.10.2023

In this heartfelt episode, I openly discuss the anxieties and preparations involved in planning a bucket-list trip to Switzerland for my mother who has Lewy Body dementia. I share insights on everything from ensuring a comfortable sleep environment and managing medications to meeting her daily needs and maintaining some semblances of her routine. At the core of it all, the message is about the ada...

11: Dealing with the Darkness 05.10.2023

In this episode we delve deep into the concept of embracing change. As your life coach and guide, I explore our innate tendency to resist change and challenge you to reframe this fear into an opportunity for growth. The key message of this episode is clear - change is not only inevitable but also essential for personal development. Through narratives, experiences, and practical strategies, we disc...

10: Looking to the Future 28.09.2023

Join me in this riveting episode of Lewy Body and Mindful Caregiving. In this journey, we'll explore how stepping into a life coach's shoes can help shape your caregiving future. Are you seeking strength, balance, and resilience on your caregiving path? Are you eager to avoid future regrets and design a path you can look back on with satisfaction? It's all possible, and it begins now. Together, we...

9: Navigating Relationships as a Caregiver 21.09.2023

Join us in the latest episode of our life-affirming podcast, 'Lewy Body and Mindful Caregiving: Understanding the Changes in Your Relationships While Being a Caregiver'. In this heartfelt episode, our host, Krystal Jakosky, dives deep into how caregiving affects our relationships, reshaping friendships and widening our perspective of support systems. Listen as Krystal navigates her own challenges...

8: Those Difficult Thoughts are NORMAL! 14.09.2023

Hey there, it's Krystal Jakosky, your host of Lewy Body and Mindful Caregiving. In this episode, we're diving deep into the thoughts that often plague caregivers like ourselves. Those thoughts that make us feel like we're failing, like we're horrible people. But guess what? You're not an asshole, and I'm here to tell you why. We'll explore the challenging realities of dealing with diseases like de...

07: Mom’s Symptoms and Challenges 07.09.2023

Welcome back to another episode of Lewy Body and Mindful Caregiving. In this poignant episode, I, your host, Krystal Jakosky, discuss my personal journey caring for my mother who suffers from Lewy Body dementia. From recognizing initial symptoms, navigating doctor visits, to addressing the debilitating hallmarks of the condition that includes muscle rigidity, hallucinations, shakiness and more. I...

06: Being an Advocate 31.08.2023

Tune in to our latest episode of Lewy Body and Mindful Caregiving where our host, Krystal Jakosky, continues her conversation on the importance of end-of-life documentation and the importance of advocating for your loved ones. Through her own personal experiences, Krystal emphasizes the necessity of being a firm advocate to ensure your loved one's wishes are honored, even in the face of difficult...

05: End of Life Planning 24.08.2023

Welcome to another episode of Lewy Body and Mindful Caregiving. In this episode, we delve into the critical yet often overlooked discussion about end of life documents. As a caregiver, I share personal experiences and insights regarding the preparations my loved ones made for their demise, recounting the peace and clarity it offered to everyone involved. We discuss various end-of-life scenarios, w...

04: Admitting I am a Caregiver 17.08.2023

In this episode of Lewy Body and Mindful Caregiving, I embark on a journey of personal reflection, breaking down the stark reality of what it means to be a caregiver. Drawing from my personal experiences of caring for my mother, I delve into how I transitioned from seeing myself as 'just her daughter' to identifying as a caregiver. I'll explore the broad spectrum of tasks and responsibilities that...

03: Mom, Me and a Diagnosis 10.08.2023

Welcome to another episode of Lewy Body and Mindful Caregiving. Join me on a beautiful journey filled with emotions, life lessons and the courage to face life's challenges. In today's episode, we delve deep into the story of my mother's declining health and the struggles of caregiving. From the joy of building a mother-in-law unit for my mother's comfortable living to the heartache of watching my...

02: A Caregivers Most Valuable Resource 03.08.2023

In this episode, I delve deep into the true essence of caregiving, underscoring the immense value of self-care in this journey. I emphasize how, as caregivers for loved ones with Lewy Body dementia, we must prioritize our own well-being, otherwise we risk depleting our resources and our relationship with our cared ones could turn into resentment and frustration. Exploring the nuances of four bodie...

01: What is Lewy Body? 27.07.2023

Welcome to the premiere episode of "Lewy Body and Mindful Caregiving." A heart wrenching yet inspiring podcast dedicated to sharing the life-altering journey of a caregiver. Our host, navigating the role of a caregiver to her mother diagnosed with Lewy Body dementia, serves as your guide through the ups and downs. In this episode, we dive deep into understanding Lewy Body Dementia by comparing the...

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