Go Shout Love Podcast

A chat with Go Shout Love's own Jessica Santo. In this episode, Jess discusses difficult moments that have shaped her life, the highs and lows of her Go Shout Love involvement, and some exciting news about her family.

In this episode we chat with Grace Grutter, whose daughter, Nella, was the inspiration behind Go Shout Love starting back in 2014. When doctors had set the expectation to be prepared to bury their daughter, a stranger connecting on Facebook provided a hope for Nella's life despite a diagnosis of SMA. Grace shares that story as well as learning to embrace joy, choosing to thrive, and discovering th...

Heather Avis is a wife and proud mom of three awesome kids, including two who have Down syndrome. Together with her husband Josh, Heather runs a social awareness brand called The Lucky Few, where the goal is to shift the narrative that comes with having Down syndrome. In this conversation, Heather talks about the natural unfolding of their lives that has given them a platform to speak into the imp...

We chat with Jon and Tameka, the amazing parents of Evely whose rare medical journey includes being born without eyes. In this two-part interview, they share honestly about the constantly shifting puzzle that is Evely's medical journey, the reality of grief that can come with a difficult diagnosis, and the importance of maintaining relationships that keep you centered. Learn more about Evely and s...

We chat with Jon and Tameka, the amazing parents of Evely whose rare medical journey includes being born without eyes. In this two-part interview, they share honestly about the constantly shifting puzzle that is Evely's medical journey, the reality of grief that can come with a difficult diagnosis, and the importance of maintaining relationships that keep you centered. Learn more about Evely and s...

At age seven, Ella Casano was diagnosed with a rare medical condition that requires regular IV treatments. In response to a competition at school, she wanted to solve a problem that was unique to her. In the process of doing that, she created a product called the Medi-Teddy which is now patented, in-process of being produced, and will soon be in medical facilities around the world with the sole pu...

We introduce you to an amazing little gal named Isabella (Belly) and her parents, Charles and Alexia. Belly was diagnosed at age one with CDKL5, a very rare genetic disorder. She suffers from uncontrolled epilepsy, has a feeding tube, is non ambulatory, and also non verbal. Learn more about Isabella and shout love for her with a purchase at www.goshout.love .

Seth chats with Josh & Rashele Veach, Go Shout Love co-directors, as they share the source of their passion for GSL, the joys and challenges of behind the scenes operations, and dreams they have for the future of GSL.

In this episode we are talking to Tonya, the mother of one year old Lana. This joyful little girl was diagnosed at three months old with a rare condition called Neurofibromatosis type 1 (NF1). Tonya shares about how difficult it can be searching for a diagnosis while a child is experiencing severe systems. And how tough and uncertain hearing a diagnosis can be, such as hearing the word “tumor" for...

In this episode you'll meet the founder of Go Shout Love, Kristin Estok. Kristin shares how hearing one child's diagnosis, and an unshakeable desire to do something to help, set the stage for what is now Go Shout Love. Learn more about our team, previous families, and support this month's family on our website at www.goshout.love .`

In this episode you will hear from Bella's parents, Thomas and Sarah. Bella is the sweetest little Nebraska gal with a contagious smile that speaks volumes into her young personality. She has been diagnosed with one of the severest forms of spina bifida. You'll hear how this little fighter never allows the challenges she faces to steal her happiness. You will also has some very real moments as the...

In this episode we talk to Melly and Matt brown, the parents of Silas, one of our amazing Boston area kiddos being featured in May. Silas has a unique blend of diagnoses but still lights up the room with his smile. One of the topics that the conversation focuses on which is something we haven’t talked about before is Neurostorming. Melly and Matt share with a compelling honesty about their life an...

In this episode you have the privilege of meeting Shane and Amy, the parents of Chase and Nathan. They share honestly and openly about about the host of conditions Chase battles, and how they have navigated their journey so far relationally, emotionally, and spiritually. You can learn more about Chase, see his video, and support this awesome kiddo through a purchase at  www. GoShout. Love/Chase !...

In this episode you’ll meet Brian and Amanda, the parents of Emily, one of our featured kiddos for May from the Boston area. They share the realities of taking home a baby that is doing all the typical baby things, only to find out on day nine of life that a significant part of her brain was missing. You’ll hear how a simple act of compassion by the doctor in that appointment left a lasting impres...

This episode is an honest conversation with Mark and Lacey, the awesome parents of Savannah, a happy, beautiful with conditions including Naa10 Mutation, Hydrocephalus, Epilepsy, and Eosinophilic Esophagitis (EOE). We know you'll appreciate this great conversation with two people who give a very real look into life with a child like Savannah. You can learn more about Savannah, see her video, and s...

In this episode we are talking to Shelby and Patrick, the parents to Kennedy, who is one of the five beautiful Boston area kids we are shouting love for in May. They share about some of the physical and emotional challenges that come with Kennedy’s conditions, especially those associated with epilepsy. But you also hear about the beautiful growth that has happened has Kennedy has adapted to become...

One of the things that was special about Micah's nomination to Go Shout Love is not just the number of nominations that came in for him, but that they came in from his friends... other kids that don't see any labels when they see Micah, but simply see him as a friend. In this bonus episode we hear from these young shouters about what they've learned from Micah and how they are inspired by his jour...

In this episode we talk with Don and Chelsea, the parents of Micah, an incredible ten year old boy with a diagnosis of Spinal Muscular Atrophy (SMA) Type 1. Despite being on this rare medical journey with Micah for more than a decade, you'll immediately be able to tell that time has not reduced the passion and emotion in these amazing parents in their fight for Micah. See their story and shout lov...

In this episode we meet Kyle and Lindsey, the parents of James who has an extremely rare mutation of the CNTNAP1 gene. They open up and share about the difficulty of how the excitement of James' birth quickly became a traumatic event and one of the hardest days of their lives with his unexpected diagnosis. See their story and shout love for them through a purchase at www.goshout.love/James !

In this episode we talk to Alvaro (Al) and Ashley, the parents of Ryder and Harper - two of the five amazing kiddos we are shouting love for this month from Southern California.

Seth and Jessica chat with Ileana and Lorenzo, parents of Giselle, on of our five amazing Southern California kiddos being featured in April. We think you'll resonate with the themes of family togetherness, positive influence, and growth and determination you'll hear in this episode!

In this bonus episode, Jessica sits down with Devon (Hadley & Hollyn's mom) & Michelle (Nathan's mom) for a special chat on what it means to find support by journeying together through difficult seasons.

We’re excited to introduce you to the families of three awesome kiddos from the Houston area: Hadley, Nathan, and Hollyn! Hadley and Hollyn are sisters and they find strength in facing their medical journey together along with their cousin, Nathan. In this episode, Josh chats with both sets of parents including Nathan’s parents, Johnathon and Michelle, along with Hadley and Hollyn’s parents, Josh...

Beckett is a happy and loving one and a half year old who lives in Brenham, Texas. Shortly before his first birthday, his parents noticed some regression in Beckett’s abilities which ended up leading to the diagnosis of Leigh’s syndrome, a severe neurological disorder for which there is no cure. In this episode, Beckett’s parents, Tyler and Katie, talk about the reality of receiving a terminal dia...

We concluded part one of our conversation with Rebecca overcoming staggering obstacles in adopting Ellie and bracing for a legal battle to leave Ghana for Chicago. Part two continues the conversation covering a four-year process of getting Ellie to the US for proper medical care and gives more information about her diagnoses.