Go Shout Love Podcast

When Wyatt was two-and-a-half years old, he was diagnosed with Kleefstra syndrome. Kleefstra syndrome is a rare genetic condition that affects 1:120,000 individuals and is characterized by intellectual and cognitive delays. Other symptoms include heart conditions, vision issues, and hearing loss. Our podcast interview with Wyatt’s parents, Jolene and Braxton, launches tomorrow on the Go Shout Love...

Roslyn is a cheerful, cheeky, and bright eight-year-old who loves candy, her family, and powerwheel soccer. Her little brother, Maddox, is a smiley and joyful one-year-old. Together, they are navigating an undiagnosed rare medical journey. Throughout the month of July, we’ll be shouting love for Roslyn and Maddox. Visit www.goshout.love to learn more about their story. All items in the shop during...

“I believe with all my heart that Emmi is exactly who she is supposed to be. She’s here for a purpose; her having special needs doesn’t make her purpose in life any less meaningful than ours. I feel like she is here to teach a lot of different lessons. Since having Emmi, she’s opened up our world to special needs kids and it changed us. She’s changed us for the better.” Abby Wilkey, Emmi’s mom Thr...

Say hello to our friend Elijah! Elijah is a brave, intelligent and loving almost six-year-old from Santa Fe, New Mexico where he lives with his parents, Marissa and Stevan. Elijah loves learning, the ocean, and nature documentaries. Throughout the month of May we’ll be shouting love for Elijah and raising awareness about his journey with Lennox Gastaut Syndrome, Cortical Vision Impairment, and a g...

Today we are talking Lindsey and Jordan who are the parents to little Jack. They graciously invite us into not only their home but their medical journey with jacks diagnosis which comes with a collection of complications that you will hear about along with what life is like with Jack who will be turning 3 years old this month as we shout love for him and his family. He is a calm, sweet and persist...

Meet Nathaniel from St. Louis, Missouri. A Happy and resilient personality who reminds us of how many ways people can have a voice beyond audible speech, and how important it is for everyone to have that right. At Go Shout Love we do amazing things for amazing families with kids on rare medical journeys. Each month we shout love for families through the sale of creative apparel inspired by kiddos...

Josh and Jessica talk with Stephanie and Rodney, the parents of Sofia, a beautiful 6 year old who has Leukodystrophy and Epilepsy, and is our feature kiddo for this month. At Go Shout Love we do amazing things for amazing families with kids on rare medical journeys. Each month we shout love for families through the sale of creative apparel inspired by the kiddos. This month’s “Known & Loved” t-shi...

At Go Shout Love we do amazing things for these amazing families with kids on rare medical journeys then check out this month’s “Same Storm, Different Boat” design that is inspired by Maddy and Mady. Separated by only 80 miles, these sweet girls are navigating their own unique medical journeys, but have many experiences and battles they share with each other and other kiddos on rare medical journe...

Go Shout Love is doing amazing things for amazing families with kids on rare medical journeys then check out this month’s “Same Storm, Different Boat” design that is inspired by Maddy and Mady. Separated by only 80 miles, these sweet girls are navigating their own unique medical journeys, but have many experiences and battles they share with each other and other kiddos on rare medical journeys.  ...

Welcome back everyone today we are continuing our conversation with Cassie and Taylor the parents to Jensen lee, an 8 year old boy from Ava Missouri who has leukemia. By the time we are posting this episode they will have only known about the diagnosis for about 40 days, so this family is still in the newness of it all with a long journey ahead. This is part 2, so if you haven’t listened to part o...

Get ready to shout love for Jensen Lee! Jensen is a kind, compassionate, and loving 8-year-old boy who loves dirt bikes, animals, and baseball. He lives in Missouri with his parents, Cassie and Taylor, his older brother, Jack, and younger sister, Charlie. This month’s “Brave” t-shirt design is inspired by Jensen and his journey with B-Cell Acute Lymphoblastic Leukemia. Every purchase in November w...

This is part 2 of the conversation surrounding our feature kiddo Gabriel. We are talking with Stephanie and Scott, Gabriels parents. If you haven’t listened to part 1 yet, pause this episode and go back. There is a lot of context surrounding Gabriel and his background that will play a lot into this episode as well. Today’s episode includes a lot of what is important for this family, including expe...

This month we are talking to Scott and Stephanie who are the parents to the always smiling, music loving 5 year old Gabriel. Gabriel has been diagnosed with cerebral palsy and has a number of challenges and therapies that come with that diagnosis. Stephanie and Scot are going to fill us in on all of that. But what they also talk about is how Gabriel initially came into their lives and how the dyna...

Cece is our feature kiddo for the month of September 2021 and she has Pitt Hopkins Syndrome. This diagnosis comes with its challenges and that is how this episode starts off, with some of the difficulties and how this family is overcoming some of those. But the journey doesn’t begin and end with challenges and difficulties, those are elements involved. But other elements that are also very present...

Welcome to September 2021 as we feature a new family and a new kiddo. This month we are introducing you to Cecily…or Cece as her family affectionally calls her. Cece is a joyful and social 4 yr old who has been diagnosed with Pitt Hopkins syndrome. Today we are talking with Louie and Lizzy who are Cece’s parents. There is a lot covered in this first episode, including getting to know the family th...

This is part 2 of the conversation with Aaron and Jen, the parents to Jesus our feature kiddo for the month of August 2021 We ended the last episode talking about the unique combination and relationship that exists with Jesus and his parents. If you haven’t listened to that episode, I would stop this now and go back to part 1 first. It provides a lot of context for what you will hear today. We cov...

“He 110% loves to be held all day long. It’s the sweetest thing. We will lay him down, and his eyes pop open and he starts to look around. Once we pick him up, he’ll start laughing, because he knows. He continues to change the longer he’s been in our home, and I can only pray that as he gets older, he continues to show his preferences about stuff because that was something that was never expected...

This is part 2 of the conversation with Kati and Derek, the parents to Haylee who is our feature kiddo for the month of July. If you haven’t listened to part 1 I recommend pausing this and going back one, it provides a lot of context to what we will talk in this episode. That last one was about their medical journey and Haylee’s personality. Today we are going to go further into the daily challeng...

It is a new month and that means a new feature family. Today we are talking with Kati and Derek, the parents to Haylee, a sassy, smart and determined 3 year old girl from Overland Park, KS Haylee has been diagnosed with RYR-1 or also known as Central Core disease. Derek and Kati tell you more about Haylee’s medical journey, her diagnosis and what this means for her daily life. There is a lot there...

This episode is Part 2 of the conversation with Aaron and Andrea, the parents to Jaelyn and Reagan who are sisters from Iowa living joyfully with undiagnosed conditions. Jaelyn is a patriotic, silly, and strong eleven-year-old who enjoys music, school, and the color purple. This episode touches on key topics that exist with many families we feature like finding the joy in the small moments and how...

Jaelyn and Reagan are sisters from Iowa living joyfully with undiagnosed conditions. Jaelyn is a patriotic, silly, and strong eleven-year-old who enjoys music, school, and the color purple. Reagan is a determined, silly, and shy three-year-old who likes playing outside, books, and baby dolls. Jaelyn and Reagan’s journey encourages us to not worry about yesterday or tomorrow, but to stay present in...

This is part 2 of the conversation with Kelly who is the mother to Avery. Avery is our feature kiddo for the month of May 2021. I would recommend listening to part 1 if you haven’t yet. That episode gives a lot of context for Avery’s medical journey and the background for Kelly and her husband Mark. We ended the last episode talking about conversations, interactions and phrases that cause some sep...

New month and a new kiddo. This month we are featuring a young boy named Avery. We are talking with his mother Kelly about the medical journey for Avery and what that has meant for their family including Avery's twin sister Emma. This is part one of the conversation with Kelly and one that centers around a very rare diagnosis along with how we can learn from other's reactions and words. Both Mark...

This part 2 episode is all about Mayah’s impact on her school friends, on her family and all who get to meet her. It is a shorter episode, but it does not ease up on quality conversation about an incredible girl and the lessons she is teaching those around her. Connect with Ryan and Angie https://www.facebook.com/MiracleMayah Connect with Go Shout Love: https://goshout.love https://www.instagram.c...

Mayah is a happy, captivating and inspiring five year old from Maria Stein, Ohio. She loves her family, school and watching her favorite TV shows. Her beautiful smile and positive attitude bring joy wherever she goes! This episode focuses on Angie and Ryan's medical journey with Mayah and touches on her personality and some insight into how Mayah is impacting the world one person at a time. Connec...