Empowering NICU Parents' Podcast

🌟 Unveiling the Untold Story: Marijuana & Pregnancy Podcast 🌿✨ Your host is a Neontal Nurse Practitiction who dives deep into groundbreaking research on marijuana's impact during pregnancy and breastfeeding in this eye-opening podcast, proudly sponsored by Dr. Brown’s Medical. Whether you're an expecting mom, a dedicated healthcare professional, or a caring family member, this episode is yo...

November is Prematurity Awareness Month! During the month of November, we reflect on all of the the premature infants born each and everyday, the clinicians who care for them, and the parents. Despite all of the latest technology and advances in healthcare, one in ten children are born prematurely in the United States. Additionally, infants born prematurely are more likely to have long-term academ...

To close out Pregnancy and Infant Loss Awareness Month, I sat down with Tasha Ruholl. Tasha was kind enough to openly share the losses and subsequent grief that she and her husband have endured. She speaks about how it was her grief that drove her to make a difference and help so many other families. Tasha wanted to give the gift of time to any other parents who have to endure the unimaginable pat...

There are some amazing organizations that help to support and provide valuable resources for bereaved and NICU families. Many parents who have had a child in the NICU as well as parents who have endured a pregnancy loss or the loss of an infant have felt led to give back to other families enduring the same experience. Using their personal experience, they have created a platform or organization to...

For our 52nd podcast episode, I was joined by Dr. Jess Daigle. She is a board-certified pediatrician and neonatal/pediatric hospitalist. Additionally, she is the proud mother of two premature infants, Liam and Avery. Her son Liam, was born at 31 weeks’ gestation and spent 5 weeks in the NICU. After her family’s personal experience in the NICU, she founded and is the CEO of Mom & Me, LLC which...

For our 51st podcast episode, I discussed a contensious topic in the neonatal world, Gastroesophageal Reflux (GER) and Gastroesophageal Reflux Disease (GERD). Although it is a common occurrence amongst all infants, the lack of updated, clear, and consistent diagnostic and management recommendations remains, especially for the NICU population. Due to my personal and professional experiences, it is...

To celebrate our 50th podcast episode, we wanted to honor and hear from our NICU heroes, the NICU graduates. You will hear from several NICU graduates with ages ranging from 5 years old, up to 36 years old. I was honored to be able to sit down with these amazing NICU graduates and learn their perspective, even from my very own NICU graduate as we debut our first official interview together. I spok...

For the 49th episode on the Empowering NICU Parents’ Podcast, we review necrotizing enterocolitis (NEC) which is a life-threatening newborn condition that involves ischemia and inflammation of the bowel. Necrotizing Enterocolitis is a complex disease that despite decades of research, is still not well understood. The evidence continues to support the concurrent presence of several factors that whe...

Maternal human milk is the absolute best food for newborn nutrition that supports all of their accelerated growth in the first year. And although we have a basic understanding of the composition of human milk, every woman’s breast milk has a different complexity when it comes to the nutritional content. But, you may be wondering, what exactly is breast milk composed of? For our 48th podcast episod...

For our 47th podcast episode, I review some of the general benefits of maternal breast milk and why it is so important for all infants, but especially those who are critically ill and in the NICU, to receive maternal milk. Human milk, often referred to as liquid gold, is considered the gold standard feeding plan for all infants. Maternal human milk provides many nutritional advantages for infants,...

Infants in the NICU, especially those born prematurely, encounter the challenge of effective bottle feeding and/or nursing due to their maturational development. Recently, to support their development, there has been a shift in the paradigm to move away from volume-driven feedings in the NICU to a cue-based approach. The practice of cue-based feedings, specifically the The Infant-Driven Feeding™ P...

For infants in the NICU, especially those born prematurely, breast or bottle feeding effectively can oftentimes be a challenge. Maturational and developmental issues impact a premature infant’s ability to adequately coordinate their sucking, swallowing, and breathing. Yet, according to the American Academy of Pediatrics (AAP), attainment of adequate oral feedings that fully support growth without...

For our most recent episode, I continued to summarize the updated recommendations for care of the preterm and low birthweight infant from the World Health Organization (WHO) that were just released on November 15, 2022. The World Health Organization reviews the most up-to-date research findings and they develop global guidelines that are meant to help end-users or clinicians make informed decision...

Do you often wonder what helps to guide care and policies in healthcare? Guidelines for medical care are driven by research and what the evidence has shown, otherwise known as evidence-based practice. And there are organizations, like the World Health Organization, who review the most up-to-date research findings and develop global guidelines that are meant to help end-users or clinicians make inf...

On November 15, 2022, the World Health Organization (WHO) released some updated recommendations for care of the preterm or low birthweight infant. New up-to-date evidence has emerged regarding the most effective clinical interventions in caring for preterm or low birthweight infants so a group of diverse experts and stakeholders from six different regions were selected and began working on these g...

As a NICU parent, one of the most difficult pieces of the journey is the physical separation that parents have to endure initially and each day that follows. Every time parents walk out of those NICU doors to go home without their baby is devastating. Parents are left sitting at home wondering if their baby is awake, or are they restless, did they gain weight, did they take their full bottle, or w...

There are many terms and acronyms commonly used in neonatology that most people are not familiar with. Even medical clinicians who are not familiar with the NICU, are unlikely to know about UACs or UVCs. And most NICU parents probably did not know that you can access a newborn’s venous and/or arterial system through their umbilicus until the providers explained the procedure to them.   For our 40t...

It is likely that you’ve heard about a child who has had RSV, or Respiratory Syncytial Virus from a friend, a family member, or perhaps you’ve even had your own personal experience with it. But, you may not realize how common it actually is! Did you know that almost all children get RSV at least once before they are two years old. For healthy children, it is likely to present just like a typical c...

For this podcast, I continued my conversation with Jessica Wolff. We discussed what their life was like once they brought Lily home. She explains how they adjusted to caring for Lily with her tracheostomy along with the necessary life-saving equipment and how all of that completely changed once COVID hit.  We discussed how the plan for Lily’s decannulation went completely sideways, how they coped...

For our most recent podcast episode, I sat down with Jessica Wolff, a mother who has endured loss and 2 very different NICU journeys. For part one of this podcast, she shares personal details on her very complicated twin pregnancy and the difficult choices they had to make along the way. She reflects back on regrets both she and her husband, Pat have experienced as well as what helped them cope th...

Infants in the NICU are patients that require specialized care with unique clinical considerations. Specific recommendations must be considered for all systems of NICU patients and the skin is not any different. Infants who are being cared for in the NICU, especially those that were born premature have an increased risk for skin trauma. On this episode, we review some of the skin care guidelines a...

Infants in the NICU are patients that require specialized care with unique clinical considerations. Specific recommendations must be considered for all systems of NICU patients and the skin is not any different. Infants who are being cared for in the NICU, especially those that were born premature have an increased risk for skin trauma. On this episode, we review some of the skin care guidelines a...

Our skin is an incredibly important, multifunctional organ. It has many different functions including helping us maintain our body temperature, it assists with the excretion of water and toxins, and most importantly, protective mechanism of acting as a barrier. But in newborns, especially preterm infants, there are developmental differences in the anatomy and physiology of their skin that place th...

For our 33rd podcast episode, I review the recommendations for screening and managing hyperbilirubinemia. The American Academy of Pediatrics recommends universal screening of bilirubin levels in newborns, so I review how that can be done, when it should occur, and when it should be repeated. We discuss which infants are more at risk for elevated bilirubin levels and how those risk factors contribu...

It is likely that you have heard the terms jaundiced and/or bilirubin. And although it is very common for infants to develop elevated bilirubin levels otherwise known as hyperbilirubinemia, do you actually know or understand why?  As a NICU provider, I think it is essential that parents know the condition their infant is facing, but it is also important to understand the why behind its occurrence....