Axis Advocacy Podcast

We're joined by Jennifer Braswell, PhD, Executive Director of the Sanford Stem Cell Clinical Center at U.C. San Diego . We'll be discussing various trials and successes in Stem Cell Research. Links mentioned: Clinical Trials , CIRM

Axis Advocacy celebrates Black History Month with Rev. Gordon Clay Bailey of Unitarian Universalist Church of the Verdugo Hills and Gerald C. Rivers, who will perform his rendition of the words of Martin Luther King Jr. For more than three decades Rivers has enacted the speeches of the late Dr. King.

We're joined by members of Children's Hospital Los Angeles' Passages Program. Their purpose is to help patients and families transition from pediatric to adult care for their chronic illnesses.

Our guests today are C. Randal Mills, President and Chief Executive Officer of California Institute for Regenerative Medicine (CIRM) , Kevin McCormack, Sr. Director Public Communications & Patient Advocate Outreach of CIRM and Bob Harman, Chairman & CEO of VetStem . All three guests have some fascinating things to tell us about how stem cells are curing both people and your pets.

Today we're speaking with many of our fellow Americans For Cures Ambassadors. We were together at The World Stem Cell Summit in West Palm Beach, Florida that took place December 5-9, 2016, and we talked about all the great things that we were experiencing thanks to Americans For Cures.

Today we’ll be speaking with 2 distinguished guests about taking advantage of mental health counseling in dealing with living with this disease, and life in general. We have a conversation with Kimberly Medendorp, a founder of The Peace And Justice Academy, and Jewel Darbone co-founder of Bold Lips For Sickle Cell.

We have a very enlightening conversation with Reverend Gordon Clay Bailey of the Unitarian Universalist Church of the Verdugo Hills .

Our guest today is Dr. Ted Love, CEO of Global Blood Therapeutics. GBT is developing the promising GBT440, as an oral, once-daily therapy for sickle cell disease. http://www.globalbloodtx.com/

We're celebrating the 12th Anniversary of the passage of Proposition 71, which is also known as the California Stem Cell Research and Cures Initiative. Today’s program is dedicated to Bob Klein,the architect of Prop 71. We’ll be speaking with Kevin McCormack of CIRM… Jason Stewart of Americans For Cures and we’ll have a reading from Don C. Reed’s book “Stem Cell Battles, Proposition 71 and Beyond...

Our guest is American Society of Hematology Vice President: Alexis A. Thompson, MD, MPH. She discusses the many resources available from ASH for patients, caregivers and medical professionals dealing with Sickle Cell Disease.

We are honored to have a very informative conversation with Pat Corley. She is an RN, and served as Nurse Coordinator at USC's Comprehensive Sickle Cell Center, Health Care Network, LA County, and University of Southern California.

On this episode, we speak with many of the presenters and attendees of the recent 2 day Sickle Cell Educational Seminar that Axis Advocacy presented with Dr. Carolyn Rowley & Cayenne Wellness Center along with the nursing program of Charles Drew University.

Today's guest is Dr. Yutaka Niihara, M.D. MPH, Emmaus Life Sciences' co-founder and Chairman. He'll be speaking about their promising L-glutamine treatment which just completed its Phase 3 trial for the management of sickle cell disease. www.emmausmedical.com/Article.aspx?seo=129&l=EN&g=30

Marc Shulman of the National Center on Life Planning joins us today to discuss the importance for families who have a member with a disability, the need for Special Needs Trusts, Conservatorships, Living Trusts and Wills.

We have a very informative conversation with Liz Helms, the President & CEO of The California Chronic Care Coalition, a resource for California health care consumers who are denied coverage, experience delays or are dissatisfied with the decisions made by their health plan.

We have a very informative discussion with Greg Gorgas of Mast Therapeutics, a biopharmaceutical company developing novel, clinical-stage therapies for serious or life-threatening diseases with significant unmet needs, including Sickle Cell Disease.

Axis Advocacy Co-Founders Nancy Rene and Adrienne Shapiro discuss the recent Sickle Cell Symposium in Hollywood with some of the attendees. Next, they talk about what they learned at the National Medical Association convention in Downtown Los Angeles. Plus, get a preview of the Axis Advocacy Resource Fair taking place August 13th in Pasadena. All the details at www.axisadvocacy.org.

Dr. Lakiea Bailey of The Sickle Cell Consortium discusses the upcoming convention of Sickle Cell Groups from around the world in Los Angeles. In addition we speak with Dr. Bailey and her mother Doris about the trials and hopes of people living with Sickle Cell Disease.

This week we speak with Mary Hulihan of The Centers For Disease Control And Prevention about how the CDC is helping Sickle Cell patients. She also talks about the misunderstandings that some hospitals have with CDC's guidelines. In addition, Axis Advocacy Co-Founders Nancy Rene and Adrienne Shapiro discuss the recent Stem Cell Conference where Adrienne presented one of the keynote speeches.

We speak with Dr. Carolyn Rowley, founder of Cayenne Wellness Center, about her organization, the conference they are putting on in September, and Dr. Rowley's Orphanage she built in Kenya. Plus we'll visit with some of the Ambassadors of Americans For Cures.

Axis Advocacy co-founder Nancy Rene has a conversation with board members Cecil McLinn and Ron Shapiro about being fathers of someone with Sickle Cell Disease and some of the frustrations of getting proper care for their child.

On today’s program, Axis Advocacy board members Adrienne Shapiro and Marissa Cors speak with author Judy Gray Johnson who has written books about Living with Sickle Cell Disease. We learn about Judy’s perseverance in the face of living with SCD and the reasons she's written her books.

Axis Advocacy's Adrienne Shapiro and Nancy Rene discuss what can be done to make sure you receive proper treatment when hospitalized. Plus a conversation between HD-Care co-founder Frances Saldoñia and researcher Dr. Joseph Ochaba about the hope for curing Huntington’s disease. Also we’ll speak with some of the Ambassadors of American’s For Cures and Dr. Sydney Galob-Director of the Gross Stem Cel...

We dedicate this week's program to the memory of those who lost their battle with Sickle Cell Disease and other genetic diseases. Learn how you can become a patient advocate for yourself or a loved one.

Today on the Axis Advocacy podcast, we talk with some of the presenters and attendees of the HD-Care symposium. Learn about what it's like to live with Huntington's Disease, and what hope there is in Stem Cell Research.