A Mama’s Xtra Love

In our first episode of 2021, I’m joined with Talk FX Podcast Team Member and FX Mom Kelsie! We wanted to start off the new year by talking about what Fragile X has taught us! We also talk about how to make the most of socializing our kids during this Pandemic, as well as successful and non-successful medications for things like anxiety and sleep aid! You don’t want to miss this encouraging episod...

In our last episode of Talk FX of 2020, we go over our top 5 most listened to episodes!! You don’t want to miss it! Thank you to each and every one of our listeners for your support since starting Talk FX in May of this year! This podcast wouldn’t be possible if it weren’t for you tuning in every week! We hope you’ve been encouraged by this podcast, and we look forward to continuing to encourage,...

It’s our 20th episode of Talk FX and we’re joined with Amy, Mom to 10 Year old son Jaxon with Fragile X Syndrome! We talk about his diagnosis story, education, potty training, milestones, bullying, and more!! You don’t want to miss this episode!

In this weeks episode of Talk FX, we wanted to discuss a current topic that we’ve been seeing a lot of Fragile X Families needing some support with, and that’s navigating distance learning! Is your child currently participating in distance learning? Or are they doing half distance learning and half in person? Tune into this weeks episode as we chat with Debbie, Mom of Skyler with full-mutation FX!...

Jayne Dixon Weber is no stranger to the Fragile X Community! She has been a member of the National Fragile X Foundation since 2007! She has authored and edited multiple books on Fragile X. She is also a Mother to an adult son with Fragile X Syndrome. On this weeks episode of our Fragile X Author series, Jayne talks with us about what moved her to write her books on Fragile X, her experience as a m...

Cindi Rogers is the mother of two sons with Full-Mutation Fragile X Syndrome, ages 29 and 31. Jake, her oldest son was diagnosed in 1991, just days after her youngest son was born, at which time he was also diagnosed. After some years of grieving, she and her husband, with the help of many experts in the Fragile X field, found ways to create a manageable, productive, and relevant life as a family....

Elizabeth Griffin is the author of the book Fragile X Fragile Hope, and is the Mother of Zack, a 23 year old young man with Fragile X Syndrome. Learning that she was a Fragile X Carrier in her mid- 30’s helped her to understand a lot about herself and her responses to life. Parenting Zack and his older brother, who is a carrier, has made her a better person by the grace of God. You don’t want to m...

On this weeks episode of Talk FX, we’re joined with Ashley, mom of her 2 year old son Sebastian who has full- mutation Fragile X. She shares the process of receiving the FX diagnosis and all the emotions that come with it. Ashley also shares how important it is to be an advocate for Fragile X, and what that looks like. You don’t want to miss this LAST episode of our series Fragile X Diagnosis Stor...

On this weeks episode of Talk FX, we continue with episode 3 of our serious “Fragile X Diagnosis Stories.” We have the pleasure of talking with Katie, Mom of Quinton who was diagnosed with Fragile X at 16 months old. Katie learned about FX when she was pregnant with Quinton. She found out her sisters were premutation carriers during that time. It was definitely a shock for her and her family, but...

In this week’s episode of Talk FX, we’re joined with Ashley, who has a 19 month old boy named Austin with the full-mutation Fragile X Syndrome. She shares with us her sons unique diagnosis journey that started at only 1 month old.

In this weeks episode of Talk FX, we are joined with special guest Erika Vasquez who shares with us her FX diagnosis journeys for her son and daughter! She also shares her perspective on the upcoming school year and the important decision on virtual education vs. in-person education for children with Fragile X!

In this weeks episode, we welcome back the FRAXA Research Foundation! We talk with Elle Skala, creator of The Step Up for Fragile X Virtual Event for Fragile X Awareness Day! She discusses the purpose of the event, how YOU can get involved, and much more!

In this weeks episode of Talk FX, we’re joined with Wendy and Debbie, Both Mom’s of boys with Fragile X Syndrome. They get real about the journey of potty training children with FX! The successful and non-successful approaches, and recognizing that every child’s journey is different! Wendy and Debbie also share their children’s life skills strengths and their capabilities of being independent! Jul...

In this weeks episode of Talk Fragile X, Mom’s of Children with FX, Kelsie and Debbie share the importance of Fragile X Awareness month, and ways to create more awareness of FX even during these current times of social distancing! We also talk about how the NFXF International FX Conference has been impactful so far, and the importance of utilizing these virtual series as resources - whether you’re...

In this weeks episode of Talk Fragile X, Priscilla shares her journey of finding out her Fragile X Carrier status, and how her and her husband decided to use IVF (In Vitro Fertilization) in their journey of having children. This is a procedure that is used to aid in fertility or prevent genetic complications. As well as to assist in the conception of a child.

In this weeks episode of Talk FX, we have the pleasure of talking with Samantha and Paul, parents of their 18 month old son who was diagnosed with Fragile X Syndrome just 2 months ago! We are excited for you to be encouraged by their perspectives on this new journey of theirs, and the way they advocate for their son on a daily basis. This episode can be especially encouraging for other families wh...

We had the privilege of getting to know all about AMP (Autism Movement Project) Sports & Fitness! They’re an organization that works with kids and adults with developmental delays (such as Autism, Fragile X Syndrome, Down Syndrome, etc.) We talk about their mission, success stories, envisions for AMP, the importance of inclusion for special needs individuals, and much more!

In this weeks episode, we talk with David Bjork, Director of Community Relations at FRAXA Research Foundation. He shares on the background of FRAXA, where they were at when they started, and where they are today with FX clinical trials and their efforts to find a cure for Fragile X Syndrome!

When you find out the news that you’re a Fragile X Carrier, it is often a difficult time, especially for those that may not have even heard of FX before! Well you’re not alone! In this weeks episode of Talk FX, Nicole shares her journey of how Fragile X has affected her life, and how she has used her story to create more advocacy and awareness of FX in her community!

When families receive the diagnosis that their child has Fragile X Syndrome, you often hear “Fragile What??” In this episode, Michelle and Kaitlyn, both Mom’s of Fragile X Children, share their inspiring FX diagnosis stories!

In this weeks episode, 14 year old Annabelle answers questions on what it’s like being the sibling of a Fragile X Child. As well as how important it is to her to be an advocate for her younger brother who has the full mutation of Fragile X Syndrome.

Thank you for tuning into our very first episode of Talk FX! In this episode you will hear about how Talk FX was formed, our mission & purpose, and what you can expect in episodes to come! We are excited to connect with fragile x families in the NW Region and be able to share our resources, encouragement, our individual Fragile X stories, and more! Look out for our next episode regarding important...