US Hereditary Angioedema Association
#BeyondHAE Youth Produced Podcast
The #BeyondHAE Podcast is a series dedicated to amplifying the voices of young people affected by Hereditary Angioedema and raising awareness about the disease. Hear from a different host each episode as they share stories of perseverance, activism, and support. We hope that you find strength in listening to stories from HAEA community members. Everyone has a story and this podcast series is just that, an opportunity for young people affected by HAE to share their unique stories with you! Visit www.haea.org for Hereditary Angioedema support, information and resources.
Visita il sito del podcast e sostieni chi lo crea: www.haea.org
Autore
US Hereditary Angioedema Association
Categoria
Sito del podcast
Ultimo episodio
28 set 2026
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Episodi
#BeyondHAE: Creating a Strong Support System (Noah) 11.12.2019 4:34
Noah is your host for Episode 3. In this episode of the #BeyondHAE Podcast, Noah talks about the importance of creating a strong support system for you and the management of your HAE. From family and friends to teachers and coaches, different people in your life can play a large role in your HAE support system. Noah talked with his close friend Greg about how friends can offer their support. Greg...
#BeyondHAE: We're in Washington, DC for HAEA's Capitol Hill Day 01.11.2019 3:29
Episode 2 was recorded live in Washington, DC during the Hereditary Angioedema Association's Capitol Hill Day. This is a day when over 90 HAE patients and caregivers from across the nation come together in our nation’s capitol and meet with their congressional representatives to advocate for continuous support for HAE patients and their needs. Hear from hosts, Jack, Ava, and Stephen as they talk a...
#BeyondHAE: What is HAE 01.11.2019 5:17
This is the first episode of the #BeyondHAE Podcast series! Hear from episode hosts, Noah, Carlie, and Luke as they welcome you to our series with an overview of what Hereditary Angioedema is. Each host shares a deeply personal HAE memory and how that memory has impacted the person they are today. We hope that these stories help other young people with HAE realize that they are not alone. This yo...
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