Narcolepsy Navigators Podcast

Leave a review! Rahmat Farina's journey with narcolepsy began at the age of 20, and it has been marked by resilience and introspection. Imagine trying to maintain your education and daily life while being suddenly overtaken by sleep attacks and sleep paralysis—this was Rahmat's reality. His initial struggles were compounded by disbelief from his family, but understanding grew as his cond...

Leave a review! Hello Everyone, We are so excited to be back for Season 2 of Narcolepsy Navigators Podcasts. Here is a brief announcement thanking all of our wonderful listeners from around the world. Welcome To Season 2. We look forward to hearing  your stories.  Follow and support Narcolepsy Navigators: Instagram : https://www.instagram.com/narcolepsynavigatorspodcast/   Facebook : https://www.f...

Leave a review! In this compelling episode of Narcolepsy Navigators, we meet Angela, an inspiring artist living with narcolepsy and cataplexy. Through her candid storytelling, Angela reveals how creativity and support systems have become her sanctuary amidst the challenges of living with unpredictable sleep disorders. What You’ll Learn: How Angela uses bead art as a therapeutic escape from medical...

Leave a review! Welcome back to Narcolepsy Navigators for an eye-opening Season Two episode that dives into Tamby's journey with narcolepsy. In this heartfelt conversation, Tamby shares the raw reality of living with a misunderstood condition, navigating cultural misconceptions, and dealing with a whirlwind of challenges, from hallucinations to unexpected cataplexy attacks. She recounts memor...

Leave a review! Imagine being the youngest person ever diagnosed with narcolepsy at just three years old. Today, we're honoured to share the extraordinary journey of Mathilda, who has spent her life battling and thriving despite this complex condition. Joined by our Marketing Manager Iris, also living with narcolepsy type 1, we dive into Mathilda's world—from her early diagnosis to the r...

Leave a review! Join us on this heartwarming episode of Narcolepsy Navigators as we welcome our special guests Laura, an experienced animal foster parent from Illinois, and her narcoleptic dog, Toast.  From being a breeder dump to becoming a beloved family member, Laura's journey is filled with challenges, adaptations, and the joy of raising a special needs pet. Laura recounts her initial str...

Leave a review! Experience the raw and transformative journey of Sara Duncan, a courageous 29-year-old from Oregon, as she navigates the complexities of life with narcolepsy. From her pre-med college days filled with relentless fatigue to the frustrating misdiagnoses that dismissed her symptoms as mere anxiety and depression, Sarah's story highlights the often-overlooked struggles of those li...

Leave a review! Can navigating life with narcolepsy impact your mental health and career? Join us on Narcolepsy Navigators as we explore these pressing questions with our special guest, Christine from Northern Ireland. You'll hear firsthand about her journey with narcolepsy type 1 and cataplexy, and how symptoms manifest uniquely in her jaw. We share our personal struggles with exhaustion and...

Leave a review! Can you imagine trying to balance parenting, a creative passion, and a chronic sleep disorder? Join us on Narcolepsy Navigators as we explore this challenging reality through the inspiring life of Katie, a 30-year-old mom from South Dakota. Diagnosed with idiopathic hypersomnia (IH) in early 2022, Katie shares her journey of self-discovery and the long path to understanding her inc...

Leave a review! What if a sleep study could be the key to unlocking a 13-year mystery? Join us as we sit down with Henry from Queens, New York, who shares his deeply personal journey from experiencing his first symptoms of narcolepsy type 2 in 1996 to finally receiving a diagnosis in 2009.  In this episode, Henry opens up about his trial-and-error process with medications, to experiencing the high...

Leave a review! Nobody wants to embark on a journey across the turbulent seas of narcolepsy, but Natalie, a German mother and teacher, offers her moving story of doing just that. In her world, the emergence of narcolepsy in her late twenties was only the start of a journey marked by delayed diagnosis, developing cataplexy, and the struggle with ineffective sleep apnea therapies. This episode gives...

Leave a review! Discover the untold stories of life with narcolepsy as Sakhara Johnson joins us for an intimate conversation about her journey. We peel back the curtain on her day-to-day battles, from the initial misdiagnoses and the arduous path to discovering she had severe narcolepsy, to the ongoing struggles with treatments and their impact on her personal life. Sakhara doesn't hold back...

Leave a review! This has been a highly anticipated episode for us here on the Narcolepsy Navigators podcast. Our hosts Kerly and Liz, are both taking on an incredibly deep and detailed dive into what living with Idiopathic Hypersomnia is really like and what is actually the difference between narcolepsy and IH? Chapters (01:57 - 05:22) Living With Idiopathic Hypersomnia in UK  (05:19 - 05:37) Unus...

Leave a review! In this engaging episode, host Kerly Bwoga chats with Liz, who shares her experiences of traveling with narcolepsy. Diagnosed at 18, Liz offers a candid look into the highs and lows of her travel adventures, providing valuable insights for anyone facing similar challenges. Chapters: Welcoming Liz and Introduction [0:00] Liz's Narcolepsy Diagnosis and Background [2:15] The Real...

Leave a review! In this episode, host Kerly opens up about her narcolepsy journey. She discusses the early signs, the path to a proper diagnosis, the challenges she faced in her education, and her reasons for founding 'Narcolepsy Navigators' and 'Naps for Life'." Key Topics: Kerly's Experience with Narcolepsy and Cataplexy during Festive Seasons [0:00] The Road to Nar...

Leave a review! In this episode, our host Kerly Bwoga founder of Naps for Life Narcolepsy, delves into the complexities of narcolepsy and idiopathic hypersomnia. She discusses the symptoms, diagnosis, and treatment options for these sleep disorders, and highlights their impact on daily life. Key Topics Introduction to Narcolepsy Navigators [0:10] What is Narcolepsy? Understanding the Disorder [1:5...