PodcastDX

On this week's show we are speaking once again with Kristine Hoestermann, the founder of " FindYourRare " and she will be explaining how difficult it has been to get a diagnosis for Ehlers Danlos Syndrome and where that diagnosis took her (Brittle Cornea Syndrome & the BRCA Gene for Breast Cancer are the latest two)  During our discussion I mentioned how I picture complex diagnoses as being li...

Your gut microbiome is like a microscopic ecosystem within your body, housing trillions of microorganisms that interact with each other and their environment in various ways. These microbes also have a significant impact on your overall health, influencing both your digestive system and other bodily functions. ​ A biome is a distinct ecosystem defined by its environment and inhabitants. Your gut,...

This week we will discuss Sturge-Weber syndrome with a wonderful woman we had the pleasure of meeting previously in Season 8 E 20. Chelsey Peat was born with Sturge-Weber syndrome, a rare condition that led to multiple surgeries, including a life-saving brain surgery as an infant. Despite doctors predicting significant limitations, Chelsey has defied these expectations throughout her life. She gra...

Paris Scobie is a Mental Health Speaker, Host of the top 1% globally ranked podcast,  Live Well Bipolar , & Best-Selling Author of her memoir,  Crooked Illness: Lessons From Inside & Outside Hospital Walls . Paris launched Live Well Bipolar to use her lived experience to help others overcome the shame, fear and isolation that can so often accompany living with bipolar. She shares how she w...

Today, we have the honor of speaking once again with Sheila Ames, a registered nurse in Northern California who has been diagnosed with a rare type of a primary immunodeficiency known as common variable immunodeficiency or CVID for short. How did she fare during the recent Pandemic?  Tune in now to find out! At the time of her diagnosis she was working as an ICU nurse and her first doctors order w...

Ticks & Lyme Disease is the topic of the week!  Our guest is Dr. Myriah Hinchey, a Naturopathic physician and Fellow of the Medical Academy of Pediatric Special Needs (MAPS), is a recognized expert in the field of Lyme disease and other complex chronic inflammatory conditions, with over 17 years of specialized experience. As a physician and the Medical Director at TAO, an integrative center fo...

Squeeze a world of passion, goal driven problem solver and an adventurous triathlete into 5 feet of fun and you get Faith Louise Cooper. Faith Louise grew up in a family of 5 with 2 younger sisters.  At the 12 she was diagnosed with Juvenile Rheumatoid Arthritis, now known as Juvenile Idiopathic Arthritis.  In 2017 she was diagnosed with hypermobility syndrome and was recently changed to Hypermobi...

This week we are discussing bullying amongst young children.   CDC defines bullying as any unwanted aggressive behavior(s) by another youth or group of youths, who are not siblings, that involves an observed or perceived power imbalance, and is repeated multiple times or is highly likely to be repeated. Bullying may inflict harm or distress on the targeted youth including physical, psychological,...

Heavy metal poisoning (toxicity) is the result of exposure to heavy metals like lead, mercury and arsenic. Heavy metals bind to parts of your cells that prevent your organs from doing their job. Symptoms of heavy metal poisoning can be life threatening and they can cause irreversible damage. ​Heavy metal poisoning occurs when microscopic molecules of metals accumulate within your body after exposu...

Your  immune system  is your body's main defense against germs and illnesses. When you have  lupus , you're more prone to infections because your immune system works differently than most people's. It becomes overactive and attacks your body itself. ​ Our guest on today's show is another repeat guest,  Amber Blackburn.  Amber is a Registered Nurse turned blogger and patient advocate for those with...

This week we will discuss kidney dialysis with Christina & Michael.  Christina and Michael Gilchrist have quickly become known as "BLIND CHICK LIVING" & "THE CARETAKER" but who could forget Christina's service dog MOOSE!    Christina story: early teens kidney disease diagnosed, early 20's pregnant, doctor missed toxemia, seizures which caused retina and optic nerve imploded causing blindne...

This week we will discuss Red Blood Cell Exchange (RBCX) and Sickle Cell Disease (SCD).  Our guest is Carly Newton.   ​Carly is a Registered Nurse at Terumo Blood and Cell Technologies with over 15years helping Health Care Professionals treating SCD patients with Red Blood Cell Exchange all over the globe. Specializing in apheresis treatments, Carly uses that experience to educate Health Care Prof...

As you may recall Myisha spoke with us in season 7 about Crohn's Disease and season 10 about Asthma.   We are running this week's episode as a re-run of her asthma interview.  Myisha is a passionate dedicated advocate she’s received proclamations from states for recognition of her advocacy and IBD awareness.  Besides her challenges with Crohn's, Myisha has a daughter with severe asthma and is here...

On this week's episode we are talking with Dr. Cornish about Neuro complications in Chronically Ill Patients.  Dr. Cornish, a highly regarded physician, provides integrative medicine services to a diverse global patient community. Currently serving as the Functional Medicine Director of the Amen Clinic East Coast Division, she specializes in autoimmune diseases, hormone imbalances Lyme disease, au...

 Hormonal imbalance is this week's topic, and our guest is Dr. Dan Murauski. As humans we are all made of the same set of biological systems but how those systems interact with one another is unique to each individual.  Dr Murauski believes that the goal of a patient physician relationship is to develop an understanding of the unique variables within each system and how they interact with one anot...

This week we discuss the differences between conventional western medicine, functional medicine and complementary medicine.  We also will touch on the 42 different subsets of conventional medicine. Western medicine refers to the traditional healthcare practices commonly used in the United States and much of the world. It relies on evidence-based methods to diagnose and treat symptoms and condition...

This week we will discuss childhood trauma with author, speaker, and Licensed Clinical Social Worker Shari Botwin.  Shari has been practicing since 1996 and is a certified trauma expert treating those with eating disorders, anxiety, depression and trauma. She’s here today to talk about her work helping individuals recover from childhood trauma. ​ Few of us will escape our lives without some sort o...

This week we will discuss the warnings some medications carry due to the dangerous side effects they may cause.  In the past these were called "Black-Box" now the term used is simply "boxed". Boxed warnings apply to certain medications that carry serious risks for the person taking them. The FDA decides which medications require boxed warnings. A doctor must review the risks and benefits of a medi...

Our topic this week is Lupus and how doctors are frequently considered to be gaslighting the patients in their care.   Our guest knows from first-hand experience that when you’re relatively healthy, you tend not to think much about ‘wellness.’ But when this slips away and lupus comes barreling in… your world gets rocked. That’s why she wrote the book, The Girlfriend’s Guide to Lupus , to help othe...

This week we will discuss Multi-Organ transplants with Zachary Colton.  Zach is 35 years old and recently underwent a successful 5 organ multivisceral intestinal transplant surgery at the Toronto General Hospital in his home country of Canada. The organs he received were: stomach, small intestine, colon, liver, and pancreas.   In 1954,  the kidney was the first human organ to be transplanted succe...

This week we will discuss Ectoparasites.  The CDC says: "Although the term ectoparasites can broadly include blood-sucking arthropods such as mosquitoes (because they are dependent on a blood meal from a human host for their survival), this term is generally used more narrowly to refer to organisms such as ticks, fleas, lice, and mites that attach or burrow into the skin and remain there for relat...

Over 200 years ago Louis Pasteur was born in Dole, France. Among Pasteur's major contributions and their benefit to society, the most important is the heat treatment of foods and beverages to reduce spoilage and eliminate pathogens for consumers. Probably the greatest achievement of Pasteur was the process that bears the name of this famous scientist who perfected the technique: pasteurization. Fo...

In this episode we are talking again with our audio editor Jack Scaro.  The topic again is: spontaneous pneumothorax, or collapsed lung. Spontaneous pneumothorax is an abnormal condition of the lung characterized by the collection of gas in the pleural space between the lungs and the chest wall. This condition occurs without an obvious etiology and can be classified as either primary or secondary....

This week we will continue our coverage of Bile acid malabsorption (BAM),  a  gastrointestinal disease . It’s a common cause of  chronic diarrhea . When bile acids aren’t properly absorbed in your intestines, they build up, upsetting the chemical balance inside. Excess bile acids trigger your  colon  to secrete extra water, leading to watery stools. This week we will continue our coverage of Bile...

This week we will discuss Bile acid malabsorption (BAM),  a  gastrointestinal disease . It’s a common cause of  chronic diarrhea . When bile acids aren’t properly absorbed in your intestines, they build up, upsetting the chemical balance inside. Excess bile acids trigger your  colon  to secrete extra water, leading to watery stools. ​ What are bile acids? Bile is a substance your  liver  makes whi...