Living with Long covid

Send a text On todays episode I discuss how the way you look does not often reflect how you feel. I talk about invisible illness and chronic conditions, how the fluctuating symptoms and invisible symptoms lead to assumption, often "are you better now then, because you look great". I hope this podcast can support those living with Long Covid and other long term conditions and hidden disab...

Send a text On todays episode I discuss the self that was and the self that is, with my guest Dr Anna Robson. Anna is an emergency medicine trainee and is living with Long Covid. Working through the pandemic, Anna has taken care of people in ICU, so is only too familiar with the impact of acute covid. I discuss with Anna her covid and Long Covid journey as she reflects upon how different her life...

Send a text In todays episode I discuss the issue of guilt. Living with a long term condition has evoked this feeling in so many areas of my life and I personally find it difficult to shake off. I have used the episode to reach out and find out if I am alone in this feeling or if others experience the feelings of misplaced guilt. I give examples of how guilt has engulfed my life and how I find thi...

Send a text Fatigue is often mistaken for being tired, needing to sleep or rest. I discuss the misconception on this episode and talk around the differences between fatigue and being tired. I talk about my own experiences and the various levels of fatigue and how this brings challenges to daily life. Fatigue can be life changing, disabling it effects the physical, emotional and cognition. I aim to...

Send a text I have a guest on today's podcast, Cass is a fellow nurse and lives with Long Covid, they contracted covid in April 2020. They had prior experience of being disabled, with hidden conditions before that and has a lot of experience of working and living with the challenge of ableism and unconscious bias, before and since the pandemic , Cass has been advocating for colleagues and oth...

Send a text On this episode I explore the possibility of remission with Long Covid, and try to understand how the crash and relapse cycle works. Are better days remission? or can Long Covid go into a full blown longer phased remission? is that possible? I discuss my own experience and question if I have experienced a phase of remission last summer. I consider research for remission for people with...

Send a text This episode of the podcast explores what a day on the life living with Long Covid can look like, this was more challenging to put into words than I originally thought. That was due to the fluctuating symptoms and unpredictability of the condition. I always advocate taking one day at a time, although this is hard when you reflect on the previous life you led. It is also challenging whe...

Send a text This episode explores the difference between Treatment and symptom management. How important are they? and is one more important than the other? I discuss how self care compliments symptom management and address negativity I received around my use of self care and symptom management. Not everything suits, or works for everyone and that is an important point in itself. Using a recent up...

Send a text On this weeks podcast I am talking about POTS (Postural orthostatic tachycardia syndrome), this is something as a nurse I have not come across, however there appears to be a link with POTS and Long Covid. I discuss how I have related some of my symptoms to other medical possibilities and of course Long Covid. I discuss the symptoms of POTS and how I monitored these symptoms prior to go...

Send a text I am so excited to have my first ever guest on the podcast. Ian is a fellow long hauler and co creator of the 4th P, he is also an avid listener of the podcast. Ian contacted me after listening to one of my earlier episodes, where I talk about brain fog/injury, and how I feared it was early onset dementia. You will hear in this episode why this was a poignant moment for him. We have ha...

Send a text What is toxic positivity? In todays episode I discuss I discuss the difference between positivity and toxic positivity. I explore how toxic positivity can impact and subdue emotions. Toxic positivity is a form of gaslighting and something we can do to ourselves without awareness. I also share some exciting news about future podcasts and I hope you will continue to join me. https://www....

Send a text This episode discusses the emotional rollercoaster that is experienced when living with Long Covid. I reflect upon my emotions and how I have felt very alone at times. The multitude of emotions I feel.  I also discuss and  explore how external factors can have an impact on your emotions. I explore the factors of the grief cycle and how they feature in the Long Covid journey. This is a...

Send a text This episode discusses what self care is, and why it is important to implement self care into your daily life. I discuss the guilt around taking time out for yourself and why we should not feel that way. Surely self care should be a part of our daily routine? but is it? why do we have guilt around taking time out for ourselves? I list 20 self care tips to get you started or expand on a...

Send a text Life has changed in many ways for everyone due to the pandemic, and for sometime lockdown prevented any of us from going out. As the world has opened up, life with long covid has left me with many life restrictions and challenges. The social life I once knew is gone, making plans is a challenge or a risk, as I may need to cancel last minute. So what are the trials and tribulations of m...

Send a text One of the challenges I have had since having Long Covid is sleep. I can either sleep for way too many hours or I have total insomnia or minimal sleep at best. This is a taskmaster and only exacerbates symptoms further; so what can you do if you sleep too much or not enough?  Have a listen to the podcast for some tips and ideas on sleep hygiene and what I do to try to have a good night...

Send a text In this episode I talk about anti-inflammatory foods and drinks how these may support the inflammatory response from Long Covid. I discuss food types, simple meals and how/why I have implemented these into my diet. Does it make a difference? Have a listen to the podcast to find out.  I also talk about some simple recipes for smoothies and meals that you can find on my instagram insight...

Send a text On this episode I am going to tell you about how a Tweet I put out, highlighted how much misconception there still is about Long Covid. I had spoken to a doctor and felt very upset when a knee jerk reaction led to the Tweet. The platform went crazy and truthfully I felt very supported, at the same time upset to learn that I was far from alone in this experience. The positive is, it has...

Send a text In todays episode I discuss a current hot topic; Long Covid and returning to work. I explain how I returned to work, the challenges, my journey with crashes and relapses, which led to the worst relapse I have had to date.  I offer 7 points that I intend to use to support with my return to work following the relapse, which you may find useful. On the next episode I will discuss anti inf...

Send a text In this episode I talk about a change I made to my diet and why, I am sure you have guessed by the title, this was reducing sugar. I discuss the symptoms I have which relate to that of diabetes however I am not a diabetic. I explain what I did and how this impacted symptoms. I also explore the link to not being able to drink alcohol.  Many of you may relate to my symptoms and findings,...

Send a text In this episode of the podcast I wanted to talk about mental health/illness and Long Covid. Unfortunately many of us have heard the term "its all in your head", in regard to long covid. I wanted to address how physical and mental health/illness go hand in hand therefore both require acknowledging and effectively treating to support holistic health and wellbeing. I discuss my...

Send a text In this episode I am talking a little more about the 3Ps Plan, Prioritise and Pace, and how implementing them into daily life can prevent crashes. I discuss the 4th P how this came about and why this is an important additional P as we continue on this uncertain journey. I explain how I put the 4Ps into my life and while I am certainly not perfect I am learning. I have found using the 4...

Send a text In today's episode I talk about exercise, how the current guidance for exercise and Long Covid can cause conflicting advice.  Exercise has been a huge part of my life for a long time, so this element of my life has been hugely impacted by Long Covid. I have always loved the way exercise make's you feel strong and obviously the mental and physical health benefits are immense. ...

Send a text In today's podcast, which is episode 10, I can't quite believe the podcast is going into double figures already. I am talking about a very personal angle of the Long Covid journey, the emotional impact contracting covid and subsequently Long Covid has had on my children and husband. I have always felt a sense of guilt that I can not protect them from not only covid19 itself b...

Send a text In this episode I discuss alcohol, how this has effected me since having Long Covid. I talk about  the physical impact alcohol has had and also the challenges and changes to social events, how this can effect lifestyle and change social dynamic.  I hope you find this podcast interesting and helpful, if you would like to get in touch please DM julietaylor9545 on instagram.  On the next...

Send a text In this episode I am going to talk about the 3 Ps and how I intend to implement pacing into my life. I discuss how powering through is my general approach to life however I have learnt on many occasions, this is not possible with Long Covid. A recent event only highlighted again how important it is to understand your limits. I also talk about the importance of prioritising the things I...