Jillian Curwin
Always Looking Up
A podcast dedicated to telling honest and real stories about living in a world that was not necessarily designed for us.
N'hésitez pas à visiter le site du podcast et à soutenir son créateur : www.jillianilana.com
Auteur
Jillian Curwin
Catégorie
Site du podcast
Dernier épisode
20 oct. 2026
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Épisodes
Zach Miller On Changing The Narrative In Pursuit Of Athletic Excellence 07.04.2026 1:25:57
In this week’s episode of Always Looking Up I sat down with Zach Miller. Zach is a 2x World Champion, 2x Paralympian and 2023 ESPY winner for Best Athlete with a Disability. When he isn’t snowboarding, you can find him riding his motorcycle, driving his Supra, or hopping online for some gaming with friends. We discuss how he discovered para snowboarding, the road to Milan and competing at the 2026...
Anna Johannes On The Paralympics As An Athlete And As An Audience Member 31.03.2026 1:26:17
In this week’s episode I sat down with Anna Johannes. Anna is a 2012 Paralympic bronze medalist and a seasoned strategist dedicated to redefining the intersection of sport and disability. After transitioning from elite swimming to the corporate world for the past decade, she has now launched her own consultancy, On the One Hand, and currently serves as a Partner and Co-founder at Culxtured, a medi...
Jillian Mercado And Syanne Bloom On Fashion As An Industry And Art Form 10.03.2026 1:33:19
In this week’s episode I welcomed back Syanne Bloom and Jillian Mercado. Syanne is an Afro-Indigenous disabled activist and political commentator who examines the intersection of politics, media, and representation. Her work exposes how industries like fashion often reflect the same systemic inequities seen in government and society. Jillian is an actress, model, and activist who has become a prom...
Plant Kween On The Practices Of Self-Care 03.03.2026 1:00:15
In this week’s episode I sat down with Christopher Griffin better known as Plant Kween. Christopher is a Brooklyn based black, queer, non-binary lifestyle creator with a focus on all things inspirational, fashion, design, and nature. Their work helps people reconnect with nature, live more sustainably, and inspires curiosity about the world around them. We discuss the never ending conversations ar...
Andrea Dalzell On Redefining Inclusive Healthcare 24.02.2026 1:06:03
In this week’s episode I sat down with Andrea Dalzell. Andrea, known as “The Seated Nurse”—is a New York City nurse leader, disability advocate, and wheelchair user redefining what inclusive healthcare looks like. Through storytelling, consulting, and keynote speaking, she equips institutions to move from empathy to action in disability inclusion. We discuss her journey towards becoming a nurse, w...
Syanne Bloom And Jillian Mercado On Bad Bunny, The Fashion Industry And What True Inclusion Can And Should Be 18.02.2026 1:25:59
In this week’s episode I sat down with Syanne Bloom and Jillian Mercado. Syanne is an Afro-Indigenous disabled activist and political commentator who examines the intersection of politics, media, and representation. Her work exposes how industries like fashion often reflect the same systemic inequities seen in government and society. Jillian is an actress, model, and activist who has become a pro...
Cara Elizabeth Yar Khan On Disability Advocacy Across The World 12.02.2026 1:03:41
In this week’s episode I sat down with Cara Elizabeth Yar Khan. Cara is a visionary international disability rights advocate whose career has spanned humanitarian action, diplomacy, entrepreneurship, and storytelling. She is also a filmmaker and a passionate force for inclusion in the arts and media, most recently participating, owning and producing the short documentary film, Facing the Falls. We...
Cara Reedy And Rebecca Cokley On Disability Through A Policy And Media Lens 03.02.2026 1:06:00
In this week’s episode I sat down with Cara Reedy and Rebecca Cokley. Cara is a journalist, filmmaker and a sometimes actor/comedian. She is the founder and Executive Director of the Disabled Journalists Association where we are working to make a more equitable industry for Disabled Journalists. Rebecca Cokley is a second generation civil rights activist raising a third. She is a political consult...
Lachi On I Identify As Blind 27.01.2026 56:10
In this week’s episode I sat down with Lachi. Lachi is a world touring recording artist, award winning music executive, Disability Culture champion, host of PBS series Renegades, Recording Academy National Trustee, and producer of a GRAMMY-Nominated album. Born legally blind, Lachi created the U.N.-recognized organization RAMPD (Recording Artists and Music Professionals with Disabilities), a consu...
Britt Stewart And Daniel Durant On The Power And Beauty Of Language And Dance 22.01.2026 1:25:42
In this week’s episode I sat down with Daniel Durant and Britt Stewart. Daniel is a Deaf actor on stage and screen. He is best known for his starring role as Leo Rossi in CODA, a film that garnered three Oscar Awards, including the top prize of Best Picture. He also starred in Deaf West’s productions of Spring Awakening and Green Day’s American Idiot and made it to the semifinals of Dancing With T...
Austin Halls On Finding The Beauty And Power Of Disability Through Music 13.01.2026 1:00:36
In this week’s episode I sat down with Austin Halls. Austin is a singer, storyteller, and motivational figure born with Moebius Syndrome, using music, fashion, and psychology to redefine self-expression and visibility. He’s the first person with Moebius Syndrome to walk New York Fashion Week and creates empowering dance-pop that turns disability into celebration. We discuss the healing and express...
Ezra Frech On How Perceptions Can Change Through The Power Of Sport, His Career-Defining Photo Finish And The "Invisible Class" Campaign 06.01.2026 53:10
In this week’s episode I sat down with Ezra Frech. Ezra is a 20 year-old 2x Paralympian from Los Angeles who competes in the T63 100M, Long Jump, and High Jump. He recently won gold in both the 100M and High Jump, and placed 5th in Long Jump at the Paris 2024 Paralympic Games. He is an accomplished athlete, advocate, model, motivational speaker, and 2024 and 2025 ESPY Nominee whose goal is to norm...
Niamh Ní Hoireabhaird On Writing The Stories Our Younger Selves Could Only Dream Of Reading 23.12.2025 1:04:54
In this week’s episode I sat down with Niamh Ni Hoireabhaird. Niamh is a disability journalist from Ireland. Having been featured in publications like the Guardian, HuffPost, the Journal, the Irish Independent and the Women's Media Center, Niamh’s work seeks to highlight and raise awareness of national and international disability issues.. We discuss disability as a practice, society not wanti...
Tori Calamito On Oz, Wicked: For Good, And What Defines A Munchkin 16.12.2025 1:01:50
In this week’s episode I sat down with Tori Calamito. Tori, Oz historian and content creator, is a life-long Oz fan who has been collecting Oz memorabilia for 28 years and has been posting about Oz online for 20 years. Tori is a multi-platform content creator and a trusted source for all things Oz. “The Oz Vlog” has helped connect fans and collectors around the world through the wonders of social...
Jillian Curwin On Redefining Feeling Seen And Being Seen 09.12.2025 18:31
In this week's episode it is just me and the microphone. With the chapter that was the year 2025 coming to an end, and 2026 just around the corner, I wanted to take a moment to unpack and reflect. I went into this year with plans and expectations that quickly and quite often had to be altered, in both good ways and bad. And those experiences have made an impact on my body, physically, mentally, em...
Hillary Wool On Being An Unrare Flower In A World Not Designed To See Our Beauty 25.11.2025 1:24:28
In this week’s episode I sat down with Hillary Wool. Hillary is a disabled business strategist, model, and advocate reshaping how we think about ambition, style, and wellness for chronically ill and disabled women. As a partner at Boston Consulting Group, she led global research on the disabled workforce experience, which was covered in outlets including The New York Times and Forbes. She has also...
Lindi Marcusen On Finding Her Own Path To The Paralympics And Defending The Right To Travel While Disabled 18.11.2025 1:00:29
In this week’s episode of Always Looking Up I sat down with Lindi Marcusen. Lindi is a Paralympic sprinter and long jumper whose journey began after surviving a catastrophic accident in 2017 that resulted in the loss of her right leg and a traumatic brain injury. A former high-level gymnast, Lindi turned to adaptive sports during her recovery, finding purpose and power through competition. Now a 5...
Selene Luna On The Mask Put Upon Little People And The Power That Comes From Taking It Off 11.11.2025 1:12:56
In this week’s episode I sat down with Selene Luna. Selene is an actress and producer hailed by The New York Times as “a polished spitfire.” A magnetic live performer, she’s toured extensively alongside Margaret Cho and Dita Von Teese. We discuss the mask people with dwarfism are often forced to wear, the moment in her career where she was able to take the mask off, creating a character such as So...
Caity On Creating Art And Fashion For Everyone And Every Body 04.11.2025 1:03:23
In this week’s episode I sat down with Caity. Caity is the founder of her own fashion brand where she repurposes thrifted garments and enhances them with her signature free-motion embroidery. Her work is best described as wearable art, incorporating appliqué and embroidery featuring nature-inspired and character-driven motifs. We discuss her being a designer with dwarfism in the fashion industry a...
Jake Stimell On Making The 2025 TCS New York City Marathon Accessible And Inclusive For All Athletes 28.10.2025 57:06
In this week’s episode I sat down with Jake Stimell. Jake is a disability inclusion and accessibility specialist at New York Road Runners, who is on a mission to make the sports world more accessible for and inclusive of people with disabilities. Jake advocates for people with disabilities to be involved in the sports world as athletes, spectators, employees and community representatives, and he f...
John Feal On Speaking Truth To Power And Making Sure No Responders Are Left Behind 14.10.2025 1:27:28
In this week’s episode I sat down with John Feal. John is best known for his work with the FealGood Foundation (“FGF”), a 9/11 First Responder advocacy group that has provided both economic aide and individual comfort to countless First Responders, as well as his tireless efforts on behalf of those Responders in the passage of the James Zadroga 9/11 Health and Compensation Act. Today, John remains...
Aubrey Smalls On Defining What It Means To Simply Be And Celebrate Being A Little Person 07.10.2025 1:23:55
In this week’s episode I welcomed back Aubrey Smalls. Aubrey is an actor, filmmaker, and content creator with dwarfism who uses his platforms to educate people about what it means to be a little person and dwarfism history. October is a month for celebration in the dwarfsim community, so we wanted to take the time to discuss how we will be celebrating as well as have a conversation about how being...
Dr. Akilah Cadet On Standing At The Intersection Of Sports And High Fashion 30.09.2025 1:15:41
In this week’s episode I welcomed back Dr. Akilah Cadet. Dr. Cadet is the Founder, CEO of Change Cadet consulting firm, a Forbes listed entrepreneur, co-owner of the Oakland Roots and Soul soccer teams, and author of White Supremacy Is All Around: Notes From a Black Disabled Woman in a White World. She literally has all the degrees, lives in Oakland, CA, celebrates her disability, is a proud Beyon...
Jillian Curwin On Being A Tailor-Made Fashion Girly That Is Tired Of Having To Stand On The Sidelines 23.09.2025 1:00:38
This week’s episode is a special episode in celebration of New York Fashion Week which just came to an end. As the tailor-made fashion girl, I wanted to share my thoughts before and after Fashion Week about the industry, representation, and being a little person who has such a passion for fashion, even though the industry still refuses to see her. This episode was originally recorded in two parts...
Ariella Elm On Transforming Frustration Through Action 16.09.2025 1:14:04
In this week’s episode I sat down with Ariella Elm. Ariella is a queer, Jewish, disabled political influencer offering daily visibility into the stories of Democratic fighters and inspiring activism from a place of hope, rather than fear. We discuss how our community can speak up, speak out, make an impact and make a difference, even if our bodies do not always allow us to show up, even if that me...
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