Making the Most of Now

In this episode I chat to Pam Stoikopoulos, Founder and CEO of Big Eye Innovation and member of the Board of GBS|CIDP Foundation Canada.  Pam was diagnosed with Multifocal Motor Neuropathy in 2017. In our conversation we discuss her diagnostic journey, her career in the healthcare sector and her passion for putting the patient at the heart of innovation in healthcare advocacy work. A passion that...

In this episode I chat to Chris Willard. In late 2022 Chris was diagnosed with Chronic Inflammatory Demyelinating Polyneuropathy (CIDP) an autoimmune disorder in which the body's immune system attacks the myelin that insulates and protects your body's nerves.  Since his diagnosis, Chris has been on an incredible journey as he has adapted to life with the condition and learnt more about i...

Fascinating conversation with Richard Sperry who has been living with MMN since. Initially diagnosed with ALS, Richard chats about his diagnostic journey, the impact it has had on both him and his family, and much much more. Among a range of different aspects of his journey and life with MMN, Richard discusses the help his family received from Hope Loves Company. A Not for Profit supporting childr...

In this episode I catch up with Claire Schulz Bergman to discuss her recent ALS fundraising challenge which saw her tackle a 380 mile bike ride and raise $40,000 in the process. A truly remarkable effort.  

Conversation with Chelsey Fix , Associate Director of Research and Advocacy at the GBS|CIDP Foundation International.  We discuss her work, how it fits into the wider work of the Foundation, and why she cares so much about putting the patient at the heart of her work. We also touch on some of the key advocacy priorities in the USA and across the globe that relate to the Multifocal Motor Neuropathy...

A conversation with Claire Schulz Bergman who after an initial MMN diagnosis was diagnosed late last year with ALS. In our chat Claire talks about her response to receiving a terminal diagnosis and about the amazing work she is doing to raise funds for ALS research To learn more about her campaign go to https://donate.mn.als.org/team/495344

Conversation with New Zealand based Englishman David Savage who recently completed an epic 16 day self supported bike packing ride exploring his limits and raising funds for MMN research. 

In this episode I chat to Brenda Perales, MMN patient, advocate and member of the Board of the GBS/CIDP Foundation International. A truly inspiring woman, in a candid conversation Brenda shares the ups and downs of her MMN story and talks about the incredible work she does to support others in the Multifocal Motor Neuropathy  community each and every day.  To learn more about the GBS/CIDP Foundati...

Conversation with Edward Gent who was diagnosed with Multifocal Motor Neuropathy in 2018 about his diagnosis, life with MMN and his recent #rideformmn fundraising challenge. 

In the first episode of the podcast I chat to the neurologist Dr Gareth Parry. Gareth is the man who first described MMN in the early 80's. A global expert and member of the GBS/CIDP Foundation's Global Advisory Board  Dr Parry is a font of knowledge when it comes to Multifocal Motor Neuropathy and related conditions. In this conversation we discuss everything from diagnosis to treatment...