EULAR PARE

Loreto Carmona, Chair of the EULAR Advocacy Committee, and Suzanne Verstappen, Convenor of the EULAR Task Force on work, talk about the challenges for people with RMDs in the workplace and the EULAR Points to Consider to support people with RMDs to participate in healthy and sustainable work.

Former EULAR President Johannes Bijlsma discusses the history and evolution of one of EULAR’s most important activities in the area of advocacy - the EULAR Campaign.

Marios Kouloumas from the Cyprus League Against Rheumatism and Clare Jacklin from the UK’s National Rheumatoid Arthritis Society discuss the PARE member organisations’ experiences and opportunities in engaging with the EULAR Campaign.

Representatives from PARE members - Boryana Boteva from the Bulgarian Organisation for Patients with Rheumatic Diseases and Ana Vieira from the Portuguese League Against Rheumatism - talk about the meaning and importance of World Arthritis Day, and why it's important to make noise around RMDs.

Patricia Pennings and Petra Borsje from Reumazorg Nederland, the PARE member organisation from the Netherlands, talk about their work, establishing and coordinating a national Patient Research Partners network. 

Jeanette Andersen, leader of the PARE Editorial Board and Elsa Mateus, EULAR Vice President representing PARE, share their experiences as well as the opportunities and new developments in volunteering for EULAR PARE.

Annamaria Iagnocco shares her vision and plans for EULAR as the new EULAR President, focusing especially on topics related to PARE and the patient community.

Hristina Bankova from Bulgaria shares her experience of participating in and winning the Stene Prize competition, also focusing on the overall essay topic of volunteering.

Representatives from PARE members - Petra Balazova from the Slovak League Against Rheumatism and Connie Ziegler from the Danish Rheumatism Association - share information about their organisations' participation at the EULAR Congress as well as what is the importance and meaning of the Congress to them.

Souzi Makri shares her vision and key projects for the future of PARE as the next Chair of the EULAR PARE Committee.

Dieter Wiek, EULAR VP representing PARE, and Elsa Mateus, Chair of the EULAR PARE Committee, present the PARE programme at the EULAR 2021 Congress and invite the PARE community to join in, while also discussing insights about the evolution of the PARE presence at EULAR Congresses over time.