Angelman Syndrome Foundation Podcast

Share Your Feedback or Recommend New Topics Dr. Ron Thibert, ASF Clinician at Massachusetts General Hospital, discusses everything families need to know about seizures in Angelman syndrome. + + + Learn more about Angelman Syndrome Foundation at Angelman.org . Follow us on Facebook and Instagram and connect with our community. Find an Angelman Syndrome Foundation Clinic at Angelman.org/as-clinics .

Share Your Feedback or Recommend New Topics In this previously recorded conversation, listen to medical experts answer commonly asked questions about medical care. + + + Learn more about Angelman Syndrome Foundation at Angelman.org . Follow us on Facebook and Instagram and connect with our community. Find an Angelman Syndrome Foundation Clinic at Angelman.org/as-clinics .

Share Your Feedback or Recommend New Topics Fathers discuss everything there is to know about being a dad to a child with Angelman syndrome. + + + Learn more about Angelman Syndrome Foundation at Angelman.org . Follow us on Facebook and Instagram and connect with our community. Find an Angelman Syndrome Foundation Clinic at Angelman.org/as-clinics .

Share Your Feedback or Recommend New Topics In this previously recorded conversation, listen to a Q&A moderated by Dr. Elizabeth Jalazo about exciting clinical trial news. + + + Learn more about Angelman Syndrome Foundation at Angelman.org . Follow us on Facebook and Instagram and connect with our community. Find an Angelman Syndrome Foundation Clinic at Angelman.org/as-clinics .

Share Your Feedback or Recommend New Topics Two single mothers of children with Angelman syndrome discuss what help looks like for them. + + + Learn more about Angelman Syndrome Foundation at Angelman.org . Follow us on Facebook and Instagram and connect with our community. Find an Angelman Syndrome Foundation Clinic at Angelman.org/as-clinics .

Share Your Feedback or Recommend New Topics In this previously recorded webinar, listen to an "ask all, tell all" session with four Angelman syndrome clinical experts. + + + Learn more about Angelman Syndrome Foundation at Angelman.org . Follow us on Facebook and Instagram and connect with our community. Find an Angelman Syndrome Foundation Clinic at Angelman.org/as-clinics .

Share Your Feedback or Recommend New Topics Parent Lizzie Sordia describes how the ketogenic diet eventually stopped her son's seizures. Learn more about Diet Therapy:  Angelman.org/articles/diet-therapy + + + Learn more about Angelman Syndrome Foundation at Angelman.org . Follow us on Facebook and Instagram and connect with our community. Find an Angelman Syndrome Foundation Clinic at Angelm...

Share Your Feedback or Recommend New Topics Two mothers join Amanda to discuss their newly diagnosed journey and early signs of Angelman syndrome in their children. + + + Learn more about Angelman Syndrome Foundation at Angelman.org . Follow us on Facebook and Instagram and connect with our community. Find an Angelman Syndrome Foundation Clinic at Angelman.org/as-clinics .

Share Your Feedback or Recommend New Topics ASF Clinician Dr. Robert Carson discuss non-epileptic myoclonus, a movement disorder that presents itself with sudden, brief, shock-like jerks in individuals with AS. + + + Learn more about Angelman Syndrome Foundation at Angelman.org . Follow us on Facebook and Instagram and connect with our community. Find an Angelman Syndrome Foundation Clinic at Ange...

Share Your Feedback or Recommend New Topics ASF CEO Amanda Moore interviews Robin Wilkerson, parent of Paige, a 29-year-old with AS. Diagnosed at age 5, Robin discusses her family's journey and the unique challenges of AS in adulthood. + + +  Learn more about Angelman Syndrome Foundation at Angelman.org. Follow us on Facebook and Instagram and connect with our community. Find an Angelman Synd...

Share Your Feedback or Recommend New Topics ASF Clinic Director Christian Hommes and Matt Judson from The Philpot Lab at UNC explain the complexities of UBE3A. * * * Learn more about Angelman Syndrome Foundation at Angelman.org. Follow us on Facebook and Instagram and connect with our community. Find an Angelman Syndrome Foundation Clinic at Angelman.org/as-clinics.

Share Your Feedback or Recommend New Topics In Episode 3, ASF CEO Amanda Moore interviews a special guest! Her 7-year-old son Baden explains first-hand what it's like being a twin sibling to his brother Jackson, who has AS. * * * Learn more about Angelman Syndrome Foundation at Angelman.org. Follow us on Facebook and Instagram and connect with our community. Find an Angelman Syndrome Foundati...

Share Your Feedback or Recommend New Topics In Episode 2, ASF CEO Amanda Moore and ASF Chief Medical Officer Liz Jalazo discuss the importance of clinical care and introduce the LADDER Learning Network. A perfect listen for newly-diagnosed families as well as those who are further along in their journey, learn how to get a plan for clinical care for your loved one with AS. * * * Learn more about A...

Share Your Feedback or Recommend New Topics In Episode 1 of the ASF Podcast, Amanda Moore, CEO of Angelman Syndrome Foundation, shares her family's diagnosis journey. Amanda's son, Jackson, is 7 years old and was diagnosed at a young age with AS. Amanda shares her personal experience working with doctors on the diagnosis and which ongoing resources have helped her family most. Amanda als...