Effie Parks
Once Upon A Gene
As a new parent of a child with a rare genetic syndrome, I was lost. There was no guide. There was no rulebook. This was not what I had imagined. As I navigated my way through this new reality, I realized something that should have been simple, but was not. A truth that had always been there, but that I had lost sight of for a time - I am not alone. And neither are you. These are the stories of my family, and of families like ours. These are the stories of how we have persevered, cried, bonded, and grown. These are the stories of children who have been told that they cannot, and that have prov...
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Sibling Support 16.01.2020 35:23
ONCE UPON A GENE - EPISODE 013 Sibling Support On the topic of siblings again this week, we'll be talking about the sibling perspective and the support available with Emily Holl, the Director of the Sibling Support Project. Emily is a social worker, writer, trainer, and sibling. Over the past 16 years, she has provided workshops, training, and groups for siblings, families, and individuals with di...
My Favorite Pair of Genes 09.01.2020 9:48
ONCE UPON A GENE - EPISODE 012 My Favorite Pair of Genes As my daughter Esme's first birthday is approaching, it's bringing up a lot of feelings. This is an episode of deep thoughts with Effie. EPISODE HIGHLIGHTS I've wanted to be a mother my entire life. I was blessed with an exceptionally nourishing mom and I had 12 siblings. Naturally, I wanted to have a bunch of kids myself and I wanted to gi...
Rollin' With Spina Bifida 02.01.2020 40:35
ONCE UPON A GENE - EPISODE 011 Rollin' With Spina Bifida Joining me today is Whitney Stohr, a master advocate for her son and others in the community. There's a lot to learn from her family and a lot of good information in our conversation. CONNECT WITH WHITNEY Whitney Stohr on Facebook: https://www.facebook.com/whitney.stohrhendrickson Malichi’s Journey on Instagram: @rollin.w.spinabifida Instag...
My Pfeiffer Pfamily 26.12.2019 33:03
ONCE UPON A GENE - EPISODE 010 My Pfeiffer Pfamily Synthiea Kaldi was the first person I knew to call when I was told something was wrong with Ford. I admire her so much and would be lost without her humor and understanding. Finding someone like Synthiea, someone who lives with a lot of hard stuff but can also find the humor in it, is a really valuable resource for your mental health and general o...
The Fathers Network 19.12.2019 45:15
ONCE UPON A GENE - EPISODE 009 The Washington State Fathers Network Along my own journey, I've felt passionate about capturing the perspective of fathers, grandfathers and other male caregivers. As moms, we may have an easier time connecting with other moms at therapy, school and on social media. My husband, a father with a child with complex needs has had a different experience than I have. I wan...
Heartism 12.12.2019 48:53
ONCE UPON A GENE - EPISODE 008 Heartism of the Bitterroot My guest today is a pillar in her community, starting an inclusive community center called Heartism Community Center, offering kids of any ability free cooking classes, art classes, yoga classes and more. Jessica Fitzpatrick is the Founder and Director of Heartism Community Center and Bitterroot Arts for Autism, a Seattle non-profit servin...
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