Help 4 HD Live!

Thursday, April 21, 2011– Our incredible special guest is Dr. La Puma, a board-certified specialist in internal medicine and professionally trained chef. The leading practicing physician voice for the importance of food in health care, and a New York Times best-selling author twice, he has pioneered food-as-medicine that's tasty and life-changing. Also an award-winning TV host, he has starred in o...

Monday, our incredible special guest is the amazing James Valvano whom we all know and love as a true HD warrior. He has invited us into his psyche with his book One With The Blue and brought us out of the proverbial closet with his films, The Faceless Faces of Huntington's Disease and The Faces of Huntington’s Disease: I Am No Longer a Faceless Face, by igniting the HD community all over the worl...

Happy 10th Anniversary to everyone at the HDSA Center of Excellence at the UC Davis Medical Center in Sacramento! Terry Tempkin, Co-Director and Nurse Practitioner extraordinaire will be our incredible special guest this week. She is going to share some of their Center’s accomplishments in the last decade and what’s planned for the next 10 years. Thank you for 10 awesome years of service for our H...

MAR28__This is the last of four shows in the March 4 HDSA series. Every Monday we have been showcasing another segment of the largest non-profit volunteer organization of its kind for the HD community. Our incredible special guests tonight are Jane Kogan, MSW, and Manager of Programs & Services and Jules Greenwald, Director of Development at HDSA National in New York. We will be focusing on HD...

MAR 21__This is the third show in the March 4 HDSA series. Each Monday we will be showcasing another segment of the largest non-profit volunteer organization of its kind for the HD community. Our incredible special guest tonight is Fred Taubman, Director of Marketing Development & Communications and at HDSA National in New York. We will be exploring more of HDSA's remarkable website and talkin...

MAR 14__This is the second show in the March 4 HDSA series. We will be showcasing the largest non-profit volunteer organization of its kind for the HD community. Our incredible special guest this tonight is Debra Lovecky, Director of Programs and Services at HDSA National in New York. We will be talking about some new features on the website: www.hdsa.org and other programs for education, events a...

MAR 7__This is the first show in the March 4 HDSA series. Each Monday we will be showcasing another segment of the largest non-profit volunteer organization of its kind for our HD community. Our incredible special guests are Louise Vetter, CEO and Nancy Rhodes, Director of Field Development & Operations at HDSA National in New York. The idea is to explore every aspect of HDSA’s programs and se...

Special guest Mike Ratel is Producer/Director of "On Your Mark, Get Set Mow", a movie about mower racing and raising mow money for Huntington's Disease awareness and research in MI. This is going to be a great show... so mark, and set your calendars for this one.

James Valvano has postponed his trip to Egypt for now. The exciting news is that his new film "The Faceless Faces of Huntington's Disease" is currently taking first place in the Neuro Film Festival contest. Go to this link http://www.youtube.com/watch?v=fMCYQ3IG9Ek, watch and vote. Everyone needs to see on this new, edgy, poignant film about HD. It's a black and white, visually and emotionally sti...

In loving memory of Peter Dickinson AKA “Pops” who has passed on to the Himalayas in Heaven. Join us for a fantastic show with Jonathan Dickinson who is wrapping up this courageous documentary/feature film Called “Father Spirit” about he and his dad (Pops) who has Huntington's Disease. They are traveling by motorcycle through India and the Himalayas to capture their last father-son adventure toget...

This is going to be a very exciting show with Audrey Watson. She is a marathon ultra-runner for Huntington's Disease awareness and fundraising. Whether she is running the Himalayan 100 Stage Race in October 2010, the Avalon 50 Mile Run at Catalina, the Bulldog 50K Ultra Run at Malibu Creek or the PCT 50 Mile Trail Run, Audrey is always anticipating her next step. She is an unstoppable HD advocate...

Our special guest tonight is Daniel Brennan who joined Lundbeck in July 2009, after Xenazine had been developed and launched in the USA. He is Vice President and General Manager of Neurology Franchise at Lundbeck and now leads the group of people that distribute, provide information, and support Xenazine as well as other nervous system therapies for rare diseases. He enjoys meeting people in the H...

Our special guest tonight is Dr. LaVonne Goodman, a “mostly retired” internist and patient advocate who decided to help a Seattle clinic recruit patients with Huntington’s Disease (HD) and was wildly successfully at it. Her secret, she says, is having a personal relationship with many, many patients. Her husband died of HD at age 36. Since then she has seen HD patients and led support groups, buil...

Our special guests tonight are Kimberly Gibson (repeat performance) and James Valvano. We will be talking about the Faith & Hope Society again, a new addition blog to their website called “James Talk” written by James Valvano and what they are adding to their website repertoire to make it more interesting and interactive. It was such a pleasure having Kimberly on the show December 27 that we j...

Our special guest tonight is the amazing Lisa Kjer. She is a Master of Social Work for the UC Davis HDSA Center of Excellence in Sacramento, CA and works with 200+ families who come to see the center's dedicated neurologist. Lisa was hooked on social work at a very young age and has devoted her life to the helping professions. In 2001, HDSA named UC Davis a center of excellence, recognizing its ex...

Our incredible special guest tonight is Gina McGahen Becker who is doing great work to bring awareness to her community about HD. When I asked her to tell me something about herself, she immediately started telling me about how much she loves her friend and what an honor it is to be advocating for her. Here is a letter she sent to me explaining why she is doing what she is for her friend...“My nam...

Monday night our special guest is KIMBERLY GIBSON. She is gene positive for Huntington's Disease and grew up surrounded by HD. Like so many HD families, she has helplessly watched as the people she loved died in front of her. As the caregiver to her grandfather at age four and her mother's caregiver by the time she was 22, she had almost no support and nowhere to turn.... That's why Kimberly found...

This show is going to blow you away!.... Our special guest is the esteemed JAN A. NOLTA Ph. D., Director Professor, UC Davis Stem Cell Program and Institute for Regenerative Cures…. She and other amazing scientists have been working day and night to bring us the first HD Stem Cell Clinical Trial…. This is History in the making for the potential CURE of Huntington's Disease!!... DR. NOLTA joined UC...

Our special guest this show is the amazing and dynamic CHRIS FURBEE. Chris was born April 30, 1966 and tested positive (43 repeats) for the Huntington's Gene in 1996. He recently came to terms that he is in the early stages of Huntington's Disease. He has been working on a documentary about his mom and life with Huntington's Disease. The story follows him from his decision to go back home to West...

Dr. Robert Pacifici, Chief Scientific Officer from CHDI Foundation will be our special guest on the show. Dr. Pacifici will talk to us about who is CHDI, what their goals are as a foundation, the future outlook in HD research and how HD families can help them achieve their goals.

SPECIAL GUEST: Mike Brown.... Mike and Allie are very special friends of ours. Mike started the first Huntington's Disease support group on the California Central Coast in 2007. He will talk to us about the clinical trial his wife Allie has participated in. The Horizon clinical trial of Dimebon is a global collaborative multi-center, randomized, double-blind, placebo-controlled study in individual...

SPECIAL GUEST: Matty Ellison from the UK….SUBJECT: Matty is working hard on a new project called the Huntington’s Disease Youth Organization (HDYO). HDYO will support young people from the HD community all over the world….Launching in late 2011, HDYO will be the first organization to specifically support young people from the HD community. The HDYO website will provide support, educational informa...

SPECIAL GUEST: Lauren Holder.... SUBJECT 1: H.R. 678 (The HD Parity Act).... LAUREN is our incredible special guest on HELP 4 HD. She is an HD activist with the "PASSION FACTOR" and she is on a mission to educate our government about how critically important H.R. 678 is to all of our HD families.... * H.R. 678 is a Bill before Congress to require the Commissioner of Social Security to revise the m...