Help 4 HD Live!

HD Awareness Month 2021 Kickoff

We talk with Dr. Natalia Rocha about research she's been working on, specifically "Sex Differences in Huntington's Disease: Evaluating the Enroll‐HD Database" Dr. Rocha joined The University of Texas Health Science Center at Houston as a Postdoctoral Research Fellow in the Department of Psychiatry and Behavioral Science in January 2016. Since then, she has been focused on the study of immune/infla...

For more information about the Pathway Program, please visit: https://www.hdreach.org/

Ben joined NHPCO in October 2020, bringing 30 years of leadership experience in educational, healthcare, and social service settings. Prior to joining the NHPCO senior leadership team, Ben was with Hospice of the Chesapeake where he served as President and Chief Executive Officer (2015-2020) and Chief Operating Officer (2013-2015). Prior to relocating to Maryland in 2013, he served as Chief Admini...

If you are interested in the ChANGE HD study, you can find out more at our website: www.changehd.org or come see us on Facebook: @ChangeHDresearch You can also call our toll-free number: 1-866-514-0858 or send us an e-mail at: change-hd@uiowa.edu  

Tune in to hear Katie Jackson, Katrina Hamel, and Lauren Holder talk about the news that came out of Genentech/Roche.

For more information about Adira Foundation, please visit https://adirafoundation.org/about/letter-from-ceo/

TODAY (3/10) is the LAST DAY to register for HIPE. You can register at this link: https://www.help4hd.org/events-1/help-4-hd-hipe-virtual-myth-busters/form HDYO's virtual event for young adults is March 13th and 14th. You can register for this event at this link: https://hdyocongress2021.vfairs.com/

Show Your Stripes for Rare Disease Day and all year long! Visit https://www.rarediseaseday.org for more information on Rare Disease Day Great resource for rare diseases: https://rarediseases.info.nih.gov/  

Tracing your HD Ancestry

Carlos Briceño has started a new podcast that focuses on the caregiver journey and having a healthy emotional outlet¨ through creativity. This includes original poems, music and more. You can learn more about the podcast and submit content at: https://sharingaboutcaringpodcast.wordpress.com/ You can also read Carlos' column about caregiving at: https://huntingtonsdiseasenews.com/category/a-family-...

Let's talk about Kinect-HD trial with Dr. Erin Furr-Stimming and Dr. Dan Claasen

Dr. Tamara Maiuri works as a Research Associate in Dr. Ray Truant’s lab at McMaster University in Hamilton, Canada, where her research is focused on the role of the huntingtin protein in DNA repair. Tam is also an active member of the HD community who regularly participates in fundraisers, education events, and knowledge translation through HDBuzz.net.

Tune in to hear about Nancy Sweets horrible situation with a rehab facility that was supposed to be caring for her son living with HD and tested positive for COVID.

HD Mythbusters - Passing on HD

Katie Jackson and Dr. Sam Frank talk about the stages of Huntington's Disease.

First episode of the "HD Mythbusters" series with Dr. Thomas Bird. We discuss "CAG" in HD.

Physical therapy in HD

Dr. David Reynolds and Dr. Caroline Benn of LoQus23 share what they are doing in regards to HD research. This show was done on Zoom. You can see the recording soon.

Marie Clay and Lauren Holder talk about the holidays with a pandemic going on.

To order Jimmy's book, please visit lulu.com

Please visit www.huntingtonstudygroup.org or www.clinicaltrials.gov for study locations

Telehealth

BJ Viau (view) has been a Huntington's Disease advocate for the past 20 years in multiple roles.  After his mom was diagnosed in the mid-90s his family hosted a  basketball fundraising event for 15 years that raised funds supporting the Huntington's Disease Society America.  His fundraising led him to meet many other young people impacted by HD which led to being a co-founder and 10-year board cha...

We talk with Lauren Yaeger about how COVID-19 is impacting the holidays