Chasing the Light

In this week's entry, I provide my personal experience navigating the labor force as an individual with a visual impairment. I share my perspective related to employment barriers, personal work experiences throughout my life, and potential stressors in the workplace.

In this week's entry, I provide a behind-the-scenes look into life as "patient one." I share my emotions following the official enrollment into the clinical treatment study for my vision condition, Lebers Congenital Amaurosis. I discuss my first-time experience participating in a VR mobility course, and the extensive fatigue of "chasing the light" during hours of complex vision assessments.

In this week's entry, I share my love story and the resulting discovery of a pathway to acceptance of my blinding vision condition. Meet my husband Zach and learn how he becomes my real-life superhero!

In this week's entry, I provide a glimpse into the past with an overview of my history of living with a rare blinding inherited retinal disease, Lebers Congenital Amaurosis. Content includes a discussion of the challenges I encountered during my K12 education, and the beautiful hope of a brighter future with an upcoming clinical treatment trial on the horizon.