Chasing the Light

In this week’s entry, I share an impromptu interview with the Director of the documentary as we were filming my “home life” over the weekend. It was a unique and special experience that I am so excited to share with everyone! Also, we took a trip down memory lane to my hometown of Clear Spring for a special conversation with my grandparents. It has been a true honor to have the opportunity to shar...

n this week’s entry, I share the story behind Achilles’ Virginia and our first workout in Loudoun earlier this month. Also, I announce the recent e-book launch for both of my books, and my favorite charities to consider for Giving Tuesday! Finally, I give a recap of our Thanksgiving weekend, and a glimpse into the upcoming part two of filming for the documentary. Stay tuned for an exciting Decembe...

In this week’s entry, I am honored to share The Cutler Family’s experience with LCA5. Listeners will have the opportunity to hear Ari’s LCA5 journey throughout the first 5 years of his life. Jamie, Ari’s mom, highlights the challenges and blessings of LCA5 through Ari’s eyes. Finally, listeners will hear the audio from Jamie and my interview for the Chicago Night for Sight dinner held in November...

In this week's entry, I share my vulnerabilities associated with being a mom with blindness as my children reach their teenage years. Specifically, I discuss my feelings related to the inability to drive due to my low vision. Finally, I share strategies that I am using to overcome these challenges, and the empowerment that results from putting my faith into action. As always, thank you all so much...

In this week’s entry, I share the details from our weekend in Philadelphia at the 2025 Rocky Run. It was an incredible experience shared with my family, and I am so grateful for the memories we made together. Finally, I discuss my feelings following the first round of production for the documentary, and the expectations for the remaining rounds over the next several weeks. Thank you all so much fo...

In this week’s entry, I share recent positive changes to my night vision and the related clinical trial results which align with these improvements. Additionally, I discuss the airing of the LCA5 segment on GMA, and the emotional roller coaster of that day. Finally, I provide a glimpse into the latest opportunity to share my vision story and clinical trial experience in a unique way. I am so excit...

n this week’s entry, I share some tools and strategies that I use to accomplish the tasks of every day life. Specifically, I discuss assistive technology, handling impatient people with grace, and the great blessing of finding a community. Additionally, listeners will learn more about my experience with blindness and the general public. As always, thank you all so much for supporting my vision jou...

In this week’s entry, I share my experience with public speaking as I embrace new opportunities in my vision loss journey. Specifically, I discuss my transformation from a stage-fright 17 year old to a confident participant in recent interviews. Finally, I share my emotions following a conversation with a parent of a child diagnosed with LCA5. Thank you all so much for supporting the CTL Podcast J...

In this week’s entry, I share the results from my most recent vision assessments in the LCA5 clinical trial. It has been a little over 2 years since I received treatment in my left eye, and I am thankful to say we are still seeing vision improvements! We had another positive visit with hopeful news for the future of the trial! Also, I share the exciting announcement about a recent opportunity to p...

Details: Welcome back, listeners! In this week's entry, I share a brief recap of the past six months. Specifically, I discuss the great power of saying "yes" to new opportunities, my struggles with hope during waiting periods, and the most recent updates for the LCA5 clinical trial. Additionally, I share some exciting news about a recent connection to another family affected by the LCA5 vision dis...

In this week’s entry, I share my trip down memory lane as we read through my childhood vision file. I felt so many emotions as I recognized the amount of vision I lost over the past 20 years, and the vision I regained following my surgery in the LCA5 clinical trial. Also, I share the results from my 18-month vision assessments in Philadelphia, and some new findings from the imaging of my retinas....

In this week’s entry, we welcome a brand-new season of the CTL podcast journal! I share the results of my genetic testing for the breast cancer gene and my MRI from last month. Also, I discuss my upcoming trip to Philadelphia for my 18-month post-surgery vision assessments. Finally, I explain my approach to self-care as I encounter life’s challenges each day. Questions or comments? 📧 CTLpodcastjo...

In this week's entry, I share a special announcement to conclude season 4 of the Chasing the Light Podcast journal. I am so excited to provide a glimpse into my new project, and I hope everyone finds encouragement as they listen to this finale entry! As always, thank you all so much for your love and support as I share my vision journey with you. Please reach out with questions, comments, and/or s...

In this week’s entry, I share my most recent experience as a guest speaker while I answered teenager’s questions about blindness. Listeners will learn how I describe my vision when I am asked, “what can you see?” Finally, I briefly discuss my new opportunity to ensure accessibility and inclusion for the b/vi community.  Stay tuned for more exciting news and health updates in the next few weeks! Th...

Details: In this week's entry, I provide a detailed health and vision update. Specifically, I share the results from my recent ultrasound and the status of my liver enzyme count. Also, I share my experience with an unexpected running injury to my foot, and the severe symptoms that followed. Lastly, I discuss our upcoming trip to Philadelphia for my 18-month vision assessments in the LCA5 clinical...

In this week’s entry, I share my recent experiences connecting with others who are currently losing their vision. Listeners will learn proactive suggestions for individuals who may lose their vision in the future. Specifically, I recommend resources, trainings, nutrition tips, and services that may benefit those individuals who are affected by blinding diseases. Finally, listeners will hear my exp...

In this week's entry, I share the details from our most recent snowboarding adventure. Listeners will learn about my past experiences with this awesome winter sport and the recent challenges caused by my vision loss throughout the last decade. It was so special to be able to share a piece of my youth with my family, but it was discouraging to recognize the effects of my retinal disease in my adult...

In this week’s entry, I share the details from our eventful first week of the new year. Listeners will learn about a health concern that could be potentially related to my vision condition, Lebers Congenital Amaurosis. Also, I discuss our latest travel adventure and the challenges I experienced as a result of my blindness. Let’s just say, we are in for a wild 2025 if the rest of this year reflects...

In this week’s entry, I am thrilled to be joined by my husband Zach and our two sons, Lucas & Jaxon! This is an unfiltered and unscripted authentic edition in celebration of reaching 50 podcast journal entries! Listeners will enjoy a candid conversation between the Rambo Family which includes some fun rapid-fire questions for the whole crew! We couldn’t think of a better way to welcome 2025! Happy...

In this week’s entry, it is my pleasure to introduce my new friend, Audrey Joy! Listeners will have the opportunity to hear Audrey’s incredible vision story and learn about our newly discovered bond through blindness as LCA5 sisters! This is a super special entry that I can’t wait to share with everyone! Enjoy a lovely & original tune sung and played by Audrey at the end of our interview. As alway...

In this week’s entry, I share the details from my birthday week and the wonderful blessings I experienced from some very special moments. Specifically, I discuss the beautiful connections made during the National Clinical Trial Webinar, a race to remember, and the awesome news of having my book purchased for sale in a local farm market! Listeners will hear the details about my birthday book launch...

In this week's entry, I share the recording from the Foundation Fighting Blindness Clinical Trial Webinar on December 7, 2024.  Specifically, I recorded the Panelist and Q&A session of the event in which I was honored to share my clinical trial experience alongside two other panelists (parents of children in clinical trials).  It was a wonderful opportunity to learn about the various active clinic...

In this week’s entry, I share another significant detail about my book, Joyfully and Faithfully Fit and the positive impact that may result with the purchase of each copy. Also, listeners will learn about the local businesses who are interested in including my book in their market inventory in the months ahead! Finally, I discuss the upcoming National Webinar on Clinical Trials which I will serve...

In this week’s entry, I share hosting hacks to keep in mind while welcoming blind and low vision guests into your home this holiday season! 🎄 Listeners will hear a few of my personal experiences with this topic and suggested solutions to the struggles I encounter when I enter an unfamiliar environment for the first time. Thank you all so much for supporting Chasing the Light! Have a blessed and b...

In this week’s entry, I am so excited to announce the official release date of my book Joyfully and Faithfully Fit! Also,  listeners will have the opportunity to hear me read the introduction from the book and I will share the behind the scenes details of my book writing process over this past year!  As I read the introduction, I hope listeners gain a greater understanding of the difficulties asso...