Chasing the Light

In this week's entry, it is my privilege and honor to share the full documentary interview between my grandparents and I. This special moment will be nestled in my heart for a lifetime. I am grateful for this special gift from the production team. I hope listeners enjoy this exclusive behind the scenes glimpse into our unique relationship. As always, thank you so much for supporting the podcast jo...

Details: In this week's entry, I share my emotional reaction to the release of the documentary of my vision journey. Also, I express my deepest gratitude to Opus Genetics and the production crew for this special project. I will cherish these treasured memories for a lifetime. As always, thank you so much for your support! Documentary: https://youtu.be/75F9plL24a0 CTLpodcastjournal@gmail.com

In this week's entry, I addressed a recent question from a parent of a child with LCA. The question "What can/will my child see?" I pondered the question for a while before I directly responded to the parent; however, I thought it would be a great topic of discussion for the CTL podcast. Listeners will take part in a visualization exercise which includes a child with progressive vision loss as she...

In this week's entry, I share the extraordinary highlights from this past week. My emotions were all over the place as I overcame fears, enjoyed the fruits of labor, and I began two new adventures! I hope you all enjoy this entry! Thank you so much for your support! Documentary Trailer: https://youtu.be/Cn51zwIIX2c?si=Pz0EU8W8cl30Vf0b 📧 CTLpodcastjournal@gmail.com

In this week's entry, I share the recording from my recent speaking engagement for the Foundation Fighting Blindness. In December, I accepted an invitation to attend the Foundation's annual All Staff Retreat to share my experience as a participant in the LCA5 clinical trial. Listeners will hear the full hour session (my speech and questions from the staff). It was an incredible day, and I am so th...

In this week's entry, I am joined by my 14-year-old son Lucas as we share the details from our latest race together. He provides his perspective as a guide with a blind runner, and the challenges we experience during highly congested areas on a racecourse. I hope listeners enjoy this unique and special conversation. Thank you all so much for supporting the podcast journal! 📧 CTLpodcastjournal@gma...

In this week's entry, I share answers to recent listener questions while providing a refresher of my initial goals for the podcast journal. I am thrilled and grateful to have so many new listeners who are reaching out to share their vision stories. It is truly a blessing to connect with everyone through this platform. As always, thank you all so much for your encouragement and support! Questions o...

In this week's entry, I will discuss my recent experience as an Achilles athlete within our local community. Specifically, I share my hopes for our growing involvement within the organization in 2026. Additionally, I will discuss my recent "reset," and the tools I am utilizing to achieve my new goals in this new year. Thank you all so much for your support! Questions or comments? Please email us a...

In this week’s entry, I share about our Christmas snowboarding trip to the Pocono Mountains. Specifically, I discuss the struggles and successes I experience as a blind snowboarder. Listeners will learn about my 30 year snowboarding journey, including the time period I reluctantly stepped away from the sport due to the progression of my vision loss. I pray this is a story of hope for all who liste...

Details: In this week’s entry, I discuss my recent experience as a guest on the Eye on the Cure Podcast. I share about my long-time love for the podcast, and the story behind the episode interview. Finally, I share some of my Christmas favorites, and some exciting opportunities ahead in the new year! I hope everyone has a blessed and Merry Christmas! Thank you all so much for supporting the podcas...

Details: In this week's entry, I share a recap of the Christmas 5K, documentary filming (parts 2 & 3), our recent trip to Florida, and my 37th birthday at the beach! I feel so blessed because we made so many special memories in such a short period of time. My heart is full of gratitude and joy as we approach the end of another year! Thank you all so much for supporting the CTL Podcast Journal! Que...

In this week’s entry, I share an impromptu interview with the Director of the documentary as we were filming my “home life” over the weekend. It was a unique and special experience that I am so excited to share with everyone! Also, we took a trip down memory lane to my hometown of Clear Spring for a special conversation with my grandparents. It has been a true honor to have the opportunity to shar...

n this week’s entry, I share the story behind Achilles’ Virginia and our first workout in Loudoun earlier this month. Also, I announce the recent e-book launch for both of my books, and my favorite charities to consider for Giving Tuesday! Finally, I give a recap of our Thanksgiving weekend, and a glimpse into the upcoming part two of filming for the documentary. Stay tuned for an exciting Decembe...

In this week’s entry, I am honored to share The Cutler Family’s experience with LCA5. Listeners will have the opportunity to hear Ari’s LCA5 journey throughout the first 5 years of his life. Jamie, Ari’s mom, highlights the challenges and blessings of LCA5 through Ari’s eyes. Finally, listeners will hear the audio from Jamie and my interview for the Chicago Night for Sight dinner held in November...

In this week's entry, I share my vulnerabilities associated with being a mom with blindness as my children reach their teenage years. Specifically, I discuss my feelings related to the inability to drive due to my low vision. Finally, I share strategies that I am using to overcome these challenges, and the empowerment that results from putting my faith into action. As always, thank you all so much...

In this week’s entry, I share the details from our weekend in Philadelphia at the 2025 Rocky Run. It was an incredible experience shared with my family, and I am so grateful for the memories we made together. Finally, I discuss my feelings following the first round of production for the documentary, and the expectations for the remaining rounds over the next several weeks. Thank you all so much fo...

In this week’s entry, I share recent positive changes to my night vision and the related clinical trial results which align with these improvements. Additionally, I discuss the airing of the LCA5 segment on GMA, and the emotional roller coaster of that day. Finally, I provide a glimpse into the latest opportunity to share my vision story and clinical trial experience in a unique way. I am so excit...

n this week’s entry, I share some tools and strategies that I use to accomplish the tasks of every day life. Specifically, I discuss assistive technology, handling impatient people with grace, and the great blessing of finding a community. Additionally, listeners will learn more about my experience with blindness and the general public. As always, thank you all so much for supporting my vision jou...

In this week’s entry, I share my experience with public speaking as I embrace new opportunities in my vision loss journey. Specifically, I discuss my transformation from a stage-fright 17 year old to a confident participant in recent interviews. Finally, I share my emotions following a conversation with a parent of a child diagnosed with LCA5. Thank you all so much for supporting the CTL Podcast J...

In this week’s entry, I share the results from my most recent vision assessments in the LCA5 clinical trial. It has been a little over 2 years since I received treatment in my left eye, and I am thankful to say we are still seeing vision improvements! We had another positive visit with hopeful news for the future of the trial! Also, I share the exciting announcement about a recent opportunity to p...

Details: Welcome back, listeners! In this week's entry, I share a brief recap of the past six months. Specifically, I discuss the great power of saying "yes" to new opportunities, my struggles with hope during waiting periods, and the most recent updates for the LCA5 clinical trial. Additionally, I share some exciting news about a recent connection to another family affected by the LCA5 vision dis...

In this week’s entry, I share my trip down memory lane as we read through my childhood vision file. I felt so many emotions as I recognized the amount of vision I lost over the past 20 years, and the vision I regained following my surgery in the LCA5 clinical trial. Also, I share the results from my 18-month vision assessments in Philadelphia, and some new findings from the imaging of my retinas....

In this week’s entry, we welcome a brand-new season of the CTL podcast journal! I share the results of my genetic testing for the breast cancer gene and my MRI from last month. Also, I discuss my upcoming trip to Philadelphia for my 18-month post-surgery vision assessments. Finally, I explain my approach to self-care as I encounter life’s challenges each day. Questions or comments? 📧 CTLpodcastjo...

In this week's entry, I share a special announcement to conclude season 4 of the Chasing the Light Podcast journal. I am so excited to provide a glimpse into my new project, and I hope everyone finds encouragement as they listen to this finale entry! As always, thank you all so much for your love and support as I share my vision journey with you. Please reach out with questions, comments, and/or s...

In this week’s entry, I share my most recent experience as a guest speaker while I answered teenager’s questions about blindness. Listeners will learn how I describe my vision when I am asked, “what can you see?” Finally, I briefly discuss my new opportunity to ensure accessibility and inclusion for the b/vi community.  Stay tuned for more exciting news and health updates in the next few weeks! Th...