As PER Usual

Episode overview In this episode of asPERusual , host Anna Chudyk sits down with Tracy McQuire and Linxi Mytkolli from Diabetes Action Canada to learn all about the different ways in which this Strategy for Patient-Oriented Research network is committed to improving the lives of persons living with diabetes. Highlights include in-depth discussions of: * the different ways in which Diabetes Action...

In this feature segment of asPERusual, guest listener and patient partner Kathy Smith offers a short recap and her key takeaways from last week's episode focused on the SPOR National Training Entity (NTE) Passerelle. She also leaves you with "points to ponder," including her vision for the future of Canadian patient engagement in research based on her personal experiences and all we've heard in Se...

Episode overview Episode overview In this episode, we are joined by Yvonne Pelling (the Patient and Community Engagement Lead) and Annie LeBlanc (the Nominated Principal Investigator / Scientific Director) of the Strategy for Patient-Oriented Research (SPOR) Passerelle National Training Entity (NTE). Through their engaging discussions, Yvonne and Annie help listeners re-examine what it means to bu...

In this feature segment of asPERusual, guest listener and patient partner Kathy Smith offers a short recap and her key takeaways from last week's episode focused on the SPOR Chronic Pain Network. She also leaves you with "points to ponder," including her vision for the future of Canadian patient engagement in research based on her personal experiences and all we've heard in Season 2 to date. Wheth...

Episode overview In this episode, we are joined by Norm Buckley , the Scientific Director, and Delane Linkiewich , a patient partner, of the Strategy for Patient-Oriented Research ’s Chronic Pain Network . Norman and Delane discuss the history of the network, including how it originated from years of grassroots work carried out by trail blazing physicians who innately understood the importance of...

In this feature segment of asPERusual, guest listener and patient partner Kathy Smith provides a short recap and her key takeaways from last week's episode describing the SPOR Evidence Alliance. Whether you haven’t yet listened to last week’s episode , or you have and are interested in hearing someone else’s take on it, this short (

Episode overview In this episode, guests Andrea Tricco and Linda Wilhelm discuss the Strategy for Patient-Oriented Research (SPOR) Evidence Alliance , a pan-Canadian initiative designed to promote evidence-informed health policy and practice change. They describe the Alliance’s key activities, including the process for healthcare decision and policy makers and patients and the public to submit res...

In this feature segment of asPERusual, guest listener and patient partner Kathy Smith provides a short recap and her key takeaways from last week's episode exploring EMPaCT's meaningful and purposeful approach to equity, diversity, and inclusion in patient engagement in research. Whether you haven’t yet listened to last week’s episode , or you have and are interested in hearing someone else’s take...

Episode overview In this episode, guests Ambreen Sayani and Omar Khan , members of Equity-Mobilizing Partnerships in Community ( EMPaCT ) discuss the importance of equity, diversity, and inclusion in patient engagement in research. They highlight their group's work in creating meaningful collaborations between patients and healthcare providers and offer insights and resources for those interested...

In this season of asPERusual we're trying out a new biweekly segment called onePERspective . In this segment, a guest listener will share their individual (or one) PERspective on the previous week’s episode in the form of a short recap of the episode and their key takeaways. All views expressed are their own. So this week, tune in to check out Kathy Smith's onePERspective on last week's episode ti...

Meet our guests Don Wood was a caregiver for his late wife Sherry who battled Stage 4 metastatic colon cancer for 3 years. He also lost his only brother Ken to leukemia as a young adult. Don focuses his time now when not golfing or skiing working and volunteering his time primarily in cancer research for several provincial and national health care organizations including the Canadian Cancer Societ...

In our study, participants stated that there is a lack of communities of practice and professional networks that foster a culture of engagement within and among the patient engagement community. How do we create community; more importantly, how do we sustain the community once it's in place? To help answer this question on the final guest episode of Season 1, we have Alies Maybee with us. As a pat...

In our study, we heard from participants that traditional academic culture is not designed to support patient engagement, let alone effective patient engagement. So how do we make progress in patient engagement when we're swimming against such a massive current? To help us answer this, we have two great guests today! Isabel Jordan draws expertise from her experience navigating systems as a disable...

Welcome to our world of wonder...or rather, episode 6 on As PER Usual, where we talk about building capacity in patient engagement. Can you learn it from a book or a webinar, or is there another way to teach yourself meaningful patient engagement? To answer our questions, we once again connected with two experts on the matter. Yvonne Pelling is a dedicated caregiver and advocate who passionately p...

Episode 5 on As PER Usual, we're talking about processes, the need to move forward from checklists to checking in with each other, and the courage needed to build something better together. Dr. Karine Toupin-April is an associate professor at the University of Ottawa and affiliate scientist at the Children’s Hospital of Eastern Ontario Research Institute and the Institut du savoir Montfort. She ha...

On episode 4 of As PER Usual, we're talking about some of the efforts used to raise awareness of the importance of patient engagement in research, with two people who highlight the importance of engaging stakeholders in everything they do. Rachel Martens is a Knowledge Broker with the University of Calgary, Kids Brain Health Network and CanChild. She has been a partner in health and policy researc...

On episode 3 of As PER Usual, a podcast for practical patient engagement, we're discussing evaluating how we engage patient partners - and how a rigid, standardized framework is NOT the answer - with three patient engagement evaluation experts who are hot off the publication of the "Learning Together Evaluation Framework for Patient and Public Engagement". Audrey L'Espérance is Assistant Professor...

On episode 2 of As PER Usual , a podcast for practical patient engagement, it's all about how patient partners are compensated - if at all! (And no, paying for parking to attend the meeting doesn't count!) Our guests today are the dynamic duo of Grace Fox and Maureen Smith, who teamed up on Grace's recent Master's thesis to explore the current state of patient partner compensation guidance in the...

Welcome to the very first episode of As PER Usual, a podcast for practical patient engagement. To start our journey, we have two wonderful guests, Dr. Dawn Richards and Dr. Stuart Nicholls, who - along with several other colleagues - published the "Ottawa model" for patient engagement. They share with the listeners how patient engagement can be embedded in our existing structures, and why it takes...

As Anna and Bryn prepare to schedule the episodes for the show, they wanted to give space to some sad news about their friend and co-host, Roger. If you have any questions, please reach out to us, at: * Anna Chudyk: anna.asperusual@gmail.com * Bryn Robinson: bryn.asperusual@gmail.com Let's make patient engagement the standard, or "As PER Usual"! This is a public episode. If you would like to discu...

Welcome to our prologue episode of our new show, As PER Usual: A Podcast for Practical Patient Engagement. In this episode, co-hosts Anna Chudyk, Bryn Robinson, and Roger Stoddard will introduce the format and plan for sharing the results of a recent research study on patient engagement through the world of podcasting! If you have any questions, please reach out to us, at: Anna Chudyk: anna.asperu...