SMA News & Perspectives

In this special edition of the SMA News today podcast, Forums Editor Michael Morale discusses AveXis' recent announcement that experimental SMA gene therapy AVXS-101 has been submitted to the US Food and Drug Administration (FDA) for approval.

In SMA News Today's 16th edition of Community Editor Kevin Schaefer's podcast, Kevin interviews Brian Ronningen -- a 48 year-old Human Resources professional who has SMA type 2 -- about his experience growing up with the disease in the 70s and 80s, as well as his perspectives on employment for those with disabilities.

In the 15th episode of the SMA News Today podcast, Community Editor Kevin Schaefer interviews Byron and Moriah Potter -- parents of two children who have SMA.

In SMA News Today's 14th podcast, Community Editor Kevin Schaefer interviews college student Amber Bosselman, who talks about her diagnosis as a child, life growing up with the disease, and her present and future goals.

SMA News Today Community Editor Kevin Schaefer interviews Ann Heathcote -- a college student with SMA type 2.

24 year-old Kristin Walters talks to SMA News Today Community Editor Kevin Schaefer about overcoming depression, travel to Europe with SMA, and her experiences with Spinraza.

SMA News Today Community Editor Kevin Schaefer interviews Owen Kent, a filmmaker who has SMA. Kevin and Owen met at the 2018 CureSMA Conference in Dallas about his SMA diagnosis and experience with the disease, as well as his next, upcoming film project.

#10 - Friederike And Anna Wittchen From #CureSMA 2018 by SMA News Today

SMA News Today Community Editor Kevin Schaefer interviews Israel and Rio Landa, both medical professionals whose son Mateo has type 2 SMA. Israel and Rio talk about their diagnosis experience, feedback about Spinraza, what their daily life as caregivers is like, and how Mateo is doing.

In SMA News Today's 8th podcast, Community Editor Kevin Schaefer interviews Wheelchair Rapunzel Founder Alex Dacy. Visit the site here: https://www.wheelchairrapunzel.com

SMA News & Perspectives - April 24, 2018 by SMA News Today

SMA News Today Community Editor Kevin Schaefer interviews Brian Bucher -- a parent of a child with SMA and founder of Aydn's Dream. Brian talks about his family's experience with the disease, his efforts to support the community through promoting live music performances, and his fervent belief that accessibility is a Civil Right. Learn more about Adyn's Dream here: http://www.adynsdream.org and on...

SMA News & Perspectives - March 28, 2018 by SMA News Today

SMA News & Perspectives - March 7, 2018 by SMA News Today

SMA News Today interviews PG Sports Founder Paul Guarino. Visit the PG Sports homepage at: https://pg-sports.com

In SMA News Today's fifth podcast, Community Editor Kevin Schaefer interviews Brynne Willis. Brynne is a graduate student at Johns Hopkins University where she is studying the psychological effects of living with SMA. Listen to her talk about her work, perspectives on living with SMA, and other amazing insights into the SMA community, which she describes as " . . . some of the most positive, resil...

SMA News Today Community Editor interviews Dr. Danielle Sheypuk. Danielle is a renowned clinical psychologist with SMA who focuses her research on SMA and dating.

In SMA News Today's third podcast, Community Editor Kevin Schaefer interviews Josh Garrison -- a person with SMA type 2 who works as an operations manager for Amazon. Josh discusses his work at Amazon, how he adapts and navigates around SMA in his career, how live on his own, his inter-abled relationship with his Fiancee, and tips on how people with SMA can live and work independently.

SMA News & Perspectives - November 28, 2017 by SMA News Today

SMA News Today Community Editor Kevin Schaefer interviews author Ben Mattlin. His new book, "In Sickness and in Health: Love, Disability, and a Quest to Understand the Perils and Pleasures of Inter-abled Romance." Ben has written for the New York Times, Washington Post, Financial Advisor, and appeared on NPR. Read more about his work at http://www.benmattlin.com.

Today's flash briefing talks about the amino acid diet in SMA management, and KINOVA's JACO robotic arm for SMA patients.

In SMA News Today's first podcast, Community Editor Kevin Shaefer interviews Christine Getman Director of the organization Magic Wheelchair. She talks about her work at Magic Wheelchair, experiences with Spinraza, and living with and overcoming the challenges of spinal muscular atrophy type 2.