PodcastDX

On today's show we are speaking with Christina Coates about Hypertrophic olivary degeneration (HOD) a rare neurological condition caused by degeneration in the brain stem, the structure that connects the brain to the spinal cord.  Signs and symptoms include palatal tremors, lack of movement coordination (ataxia), Holmes tremor, vision problems, muscle weakness, and gait impairment, along with an M...

On this episode we have the honor of speaking with Robyn A. Maguire.  She is a mother to 3 wonderful children. Her oldest is learning how to drive and excelling in her academics as a freshman in high school. Her middle child's super into sports and music. Right now he's teaching himself how to play the guitar. Her youngest son Zeke, smiles like sunshine, he warms the room. Funny, because his condi...

This week marks four years as co-hosts on PodcastDX.  For today's show we will be recalling some of our most memorable interviews from these past four years.  We have had the honor of speaking with 151 guests and have posted 209 episodes so it wasn't an easy task but with input from everyone on the team, I think we had success!   ​ I want to take the time to thank our listeners from around the wor...

 Factitious Disorder Imposed on Another (FDIA), also known as Munchausen Syndrome by Proxy (MSbP) is a very serious form of child abuse. The perpetrator, usually the mother, invents symptoms or causes real ones in order to make her child appear sick. Our guest today, Craig Lewis, not only survived the ordeal but has written a book on his experiences and is a Peer Counselor to help others.  ​ Craig...

  On this week's episode we are discussing Tuberculosis, or TB.  Currently the infection has a rate of infection that is only 2.2 per 100,000 persons.  TB is more common in countries where many people live in absolute poverty because people are more likely to: live and work in poorly ventilated and overcrowded conditions, which provide ideal conditions for TB bacteria to spread suffer from malnutr...

Our guest on today's show is Dan Dry Dock Shockley,  a retired Navy, Operation Desert Storm; Enduring and Iraqi Freedom veteran and 10 year hereditary colon cancer WARRIOR.  One of the risk factors for colorectal  cancer  is a  family history  of the disease. Colorectal cancer is called "hereditary" or "inherited" when several generations of a family have it. Experts have found gene changes (also...

Today's show features Anna Cooper.  Anna is the sister of another one of our guests; Faith Cooper who talked with us S9E11 on JRA and S10E11 on EDS.   Addison's disease, also called adrenal insufficiency, is an uncommon disorder that occurs when your body doesn't produce enough of certain hormones. In Addison's disease, your adrenal glands, located just above your kidneys, produce too little corti...

We have the honor of speaking once again with Sheila Ames, a registered nurse in Northern California who has been diagnosed with a rare type of a primary immunodeficiency known as common variable immunodeficiency or CVID for short.  At the time of her diagnosis she was working as an ICU nurse and her first doctors order was: no more exposure to infectious patients.  This diagnosis not only changed...

On today's show, we have the honor of speaking with Evelyn Gamble.  Evelyn has been dealing with a condition called Hypogonadotropic Hypogonadism, a form of hypogonadism that is due to a problem with the pituitary gland or hypothalamus.  Hypogonadism is a condition in which the male testes or the female ovaries produce little or no sex hormones. (credits: Medline Plus)  Hypogonadotropic hypogonadi...

Today we have the honor of speaking with Evelyn Morales.  Evelyn is a beautiful young mother living in Texas, and has had some physical challenges over the past few years.  I started following her on TikTok due to her super positive "I Can Do This!" attitude.  ​ Evelyn's health journey began with a diagnosis of hypothyroidism.  Hypothyroidism is when the thyroid gland doesn't make enough of the th...

On today's show we are talking once again with Kathy Reagan Young!  Kathy is a strong patient advocate in the MS world and hosts a website called FUMSnow and has her own podcast.  She recently began teaching a course called "Patients Getting Paid" and is here to talk about that today.  If you would like to find out more about Patients Getting Paid, you can check out Kathy's Facebook Page Here! And...

On today's show we are talking once again with Kathy Reagan Young!  Kathy is a strong patient advocate in the MS world and hosts a website called FUMSnow and has her own podcast.  She recently began teaching a course called "Patients Getting Paid" and is here to talk about that today.  If you would like to find out more about Patients Getting Paid, you can check out Kathy's Facebook Page Here! And...

A cataract develops when the lens in your eye, which is normally clear, becomes foggy. For your eye to see, light passes through a clear lens. The lens is behind your iris (colored part of your eye). The lens focuses the light so that your brain and eye can work together to process information into a picture. When a cataract clouds over the lens, your eye can't focus light in the same way. This le...

Winter storms and cold temperatures can be dangerous. Stay safe and healthy by planning ahead. Prepare your home and vehicles. Prepare for power outages and outdoor activity. Check on older adults. Although winter comes as no surprise, many of us may not be ready for its arrival. If you are prepared for the hazards of winter, you are more likely to stay safe and healthy when temperatures start to...

On today's show we are speaking once again with Sheila Ames.  As you may recall, Sheila is a Registered Nurse and the founder of "Ames Alchemy Coaching" which can be found on Facebook and Instagram.  Today she joins us to discus her life-long struggles with migraines.  A migraine is a headache that can cause severe throbbing pain or a pulsing sensation, usually on one side of the head. It's often...

According to Mayo Clinic Psoriasis is a skin disease that causes red, itchy scaly patches, most commonly on the knees, elbows, trunk and scalp. Psoriasis is a common, long-term (chronic) disease with no cure. It tends to go through cycles, flaring for a few weeks or months, then subsiding for a while or going into remission. Treatments are available to help you manage symptoms. And you can incorpo...

Patients with Sickle Cell Disease (SCD), often have underlying cardiopulmonary co-morbidities that may predispose them to poor outcomes if they become infected with SARS-CoV-2. ​ Our returning guest today is Agnes Nsofwa RN,MsN,BBA Founder and Executive Director Australian Sickle Cell Advocacy Inc.  

In this episode we will discuss Myasthenia Gravis, an Autoimmune Disease affecting the neuromuscular system of the body with Tasha White.  We spoke with Tasha a few years back and wanted to touch base and see how she is doing in the midst of the pandemic. Tasha White, Director of a new Non-profit organization called "My Walk with MG" located in St. Louis, MO.   The CDC has announced authorization...

Your  immune system  is your body's main defense against germs and illnesses. When you have  lupus , you're more prone to infections because your immune system works differently than most people's. It becomes overactive and attacks your body itself. Our guest on today's show is another repeat guest,  Amber Blackburn.  Amber is a Registered Nurse turned blogger and patient advocate for those with c...

  Narcolepsy is a chronic sleep disorder characterized by overwhelming daytime drowsiness and sudden attacks of sleep. People with narcolepsy often find it difficult to stay awake for long periods of time, regardless of the circumstances. Narcolepsy can cause serious disruptions in your daily routine.  Our guest today is Lindsey who will discuss her life post-covid with narcolepsy.   ​ Lindsey gre...

A hiatal hernia occurs when the upper part of your stomach bulges through the large muscle separating your abdomen and chest (diaphragm). Your diaphragm has a small opening (hiatus) through which your food tube (esophagus) passes before connecting to your stomach. In a hiatal hernia, the stomach pushes up through that opening and into your chest. A small hiatal hernia usually doesn't cause problem...

Squeeze a world of passion, goal driven problem solver and an adventurous triathlete into 5 feet of fun and you get Faith Louise Cooper. Faith Louise grew up in a family of 5 with 2 younger sisters.  At the 12 she was diagnosed with Juvenile Rheumatoid Arthritis, now known as Juvenile Idiopathic Arthritis.  In 2017 she was diagnosed with hypermobility syndrome and was recently changed to Hypermobi...

Hepatitis means inflammation of the liver. The liver is a vital organ that processes nutrients, filters the blood, and fights infections. When the liver is inflamed or damaged, its function can be affected. Heavy alcohol use, toxins, some medications, and certain medical conditions can cause hepatitis. However, hepatitis is often caused by a virus. In the United States, the most common types of vi...

Gina Rapacz is a 48 year old mother of 2 teenage daughters living in the Chicago suburbs.  She recently had a liver transplant after hers failed and she lingered on the transplant list in Chicago for just over a year.  Gina is a powerful woman who has endured a variety of personal tragedies.  There is not a challenge she can't handle.  It is this strength that has allowed her to get through the se...

On this week's show we are speaking once again with Kristine Hoestermann, the founder of " FindYourRare " and she will be explaining how difficult it has been to get a diagnosis for Ehlers Danlos Syndrome and where that diagnosis took her (Brittle Cornea Syndrome & the BRCA Gene for Breast Cancer are the latest two)  Heeeeere's Kristine!   Allow me to introduce myself🦓My name is Kristine (kk). I...