Help 4 HD Live!

For more great information on research, please visit hdbuzz.net.

For more information, please visit join-hd.org

Please visit www.championsforhd.org/donate or http://www.ringwarscarolina.net/

Louanne's bio:  I stood at the foot of my husband's hospital bed... "Where is the book?" I asked the doctor. "What book?" he asked... "The book that tells me how to do this..." I was 33 years old and my 35 year old husband lay in the bed, just pronounced brain dead. It was the most devastating loss I had experienced in my life. Through this unexpected blow in life, I learned many lessons that I di...

Katie Jackson and I talk about the recent research announcements.

https://www.youtube.com/watch?v=1ytFB8TrkTo

FDA Listening Session Breakdown with Danielle

We talk about Roe vs Wade being overturned and how that can affect the HD community

For more information about HDBuzz, please visit their website or twitter.

Ashley Ferreira has worked in the non-profit sector for over 10 years, 4 of those years in the rare disease space. She currently serves as one of PicnicHealth's Community Partnership Managers where she works with different advocacy and patient organizations to share about the power of real-world data research and the importance of owning and having access to one's medical records. She currently re...

Law Enforcement Education with Vicki Owen. If you'd like to contact Vicki to get materials to hand out to your local law enforcement, you can email her at vicki@help4hd.org. 

Alzheimer's & Brain Awareness Month with Karen Owens. Link to Monthly Programs https://www.alzconnected.org/ https://www.alzheimersnavigator.org/ Link to Live Well Modules

This is HD with Teresa Snider

Seth and BJ join me to talk about the upcoming FDA listening session

Dr. Anne Kloos received her physical therapy degree from the University of Wisconsin-Madison and her doctoral degree in biology/neuroscience from Cleveland State University. She is currently a Professor Clinical in the Physical Therapy Division at the Ohio State University (OSU) where she teaches adult neurorehabilitation and neuroscience courses. Her research is focused on balance and gait interv...

Jenna Heilman joins me to talk about collaboration

Beth Borowsky is an Executive Director and Senior Global Program Clinical Head in Neuroscience at Novartis Pharmaceutical Corporation, where she has been since 2018. Prior to Novartis, Beth spent 12 years doing clinical research and development for Huntington’s Disease, first at CHDI Foundation, where she was the Director of Translational Medicine, and then at Teva Pharmaceuticals, where she was a...

Nicola is the co-founder and editor-in-chief for Rare Revolution Magazine. With a strong background in design and a passion for writing, Nicola is the driving force behind their creative vision, and uses her strategic experience in large-scale project planning to oversee their varied work, including RARE Youth Revolution. Nicola is co-founder and trustee of the charity Teddington Trust, volunteeri...

Karen Anderson, MD, is a psychiatrist specializing in neuropsychiatry, and director of the Huntington’s Disease Care, Education and Research Center at MedStar Georgetown University Hospital. Dr. Anderson sees adult patients and families dealing with behavioral symptoms caused by neurological conditions such as Huntington’s disease, Parkinson’s disease, Alzheimer’s disease and brain injuries. She i...

Join us to hear about what Help 4 HD International is doing for awareness during the month of May. 

For more information: https://iamals.org/stories/jean-swidler/

Please reach out to Londen Tabor (Londen@Help4HD.org) or Lauren Holder (lauren@help4hd.org) to donate to Autumn's Adventure Fund. :)

Dr. Hayden is the CEO of Prilenia. He is an accomplished scientist and physician. He is a Killam Professor at the University of British Columbia and Senior Scientist at the Centre for Molecular Medicine and Therapeutics. He is also a Canadian Research Chair in Human Genetics and Molecular Medicine. Dr. Hayden was the President of Global R&D and Chief Scientific Officer at Teva from 2012-2017....

Happy Social Work Day and Social Work Month to all the social workers out there!!

CHDI is currently having their HD Therapeutics Conference! HDBuzz has been reporting via live tweets on Twitter - they've done a great job in sharing the research. Seth Rotberg and Lauren Holder have been following along, and give a review.