HAE Speaks

The Hereditary Angioedema Association continues to be the galvanizing force advocating and supporting the HAE community.  In this episode, the HAEA staff provides a review of 2021 programs and accomplishments. For more information about Hereditary Angioedema please visit HAEA.org Thank you to our sponsors: BioCryst Pharmaceuticals Ionis Pharmaceuticals Takeda

Bobbi shares her story of living with HAE and describes how the  evolution of treatments has vastly improved over the years. For more information about Hereditary Angioedema please visit HAEA.org Thank you to our sponsors: BioCryst Pharmaceuticals BioMarin

In this episode, Mike and Missy discuss HAEA Meet and Greet events, and answer some important questions.  What is an HAEA Meet and Greet?  Who should attend?  Why should you attend?  For more information about Hereditary Angioedema please visit HAEA.org Thank you to our sponsors: BioCryst Pharmaceuticals

Jenny talks about how she handles having HAE and putting herself first when she is not having the best of days. Jenny is a huge advocate of self care, especially as a person living with a rare disease. For more information about Hereditary Angioedema please visit HAEA.org Thank you to our sponsors: BioCryst Pharmaceuticals Ionis Pharmaceuticals Takeda

In this episode Christine and Mike discuss the US HAEA Virtual Capitol Hill Campaign and the importance of advocating for the HAE. For more information about Hereditary Angioedema please visit HAEA.org Thank you to our sponsors: BioCryst Pharmaceuticals Ionis Pharmaceuticals Takeda

In this episode of the HAE speaks podcast Antonio and Jack talk about their DIY event. They discuss how the idea started and their game plan to make the event a success. For more information about Hereditary Angioedema please visit HAEA.org Thank you to our sponsors: BioCryst Pharmaceuticals Ionis Pharmaceuticals Takeda

In this episode of HAE Speaks podcast Sonia discusses her journey with HAE and how much life has changed since diagnosis. For more information about Hereditary Angioedema please visit HAEA.org Thank you to our sponsors: BioCryst Pharmaceuticals Ionis Pharmaceuticals Takeda

Lisa talks about the HAE IN-MOTION® Event that she and her family participate in.  Enjoying walks together as a family, and entering in the weekly photo contest.  Also, Lisa talks about promoting the event on Facebook. For more information about Hereditary Angioedema please visit HAEA.org Thank you to our sponsors: BioCryst Pharmaceuticals Ionis Pharmaceuticals Takeda

Chaeli discusses traveling with HAE. She talks about how she prepares to travel by car and plane. For more information about Hereditary Angioedema please visit HAEA.org Thank you to our sponsors: BioCryst Pharmaceuticals Ionis Pharmaceuticals Takeda

In this episode of HAE Speaks, Lisa talks about how Team Jack started. Lisa also discusses all of the DIY HAE events Team Jack hosts and attends each year. For more information about Hereditary Angioedema please visit HAEA.org Thank you to our sponsors: BioCryst Pharmaceuticals Ionis Pharmaceuticals Takeda

Episode 12 is hosted by Jess, an HAE patient and HAEA team member. She talks about her journey through diagnosis, her experience traveling abroad, and what she would tell her younger self when she was first diagnosed with HAE. For more information about Hereditary Angioedema please visit HAEA.org Thank you to our sponsors: BioCryst Pharmaceuticals Ionis Pharmaceuticals Takeda

In this episode, Missy, Marti and Marna talk about speaking with your children’s school and teachers of their HAE diagnosis. As mothers of children with HAE, they emphasize the importance of  keeping the school up to date about HAE. For more information about Hereditary Angioedema please visit HAEA.org Thank you to our sponsors: BioCryst Pharmaceuticals Ionis Pharmaceuticals Takeda

Hannah C., an HAE patient, and HAEA team member, talks about her HAE journey, including growing up with an HAE diagnosis, attending school, and overall life while having HAE. For more information about Hereditary Angioedema please visit HAEA.org Thank you to our sponsors: BioCryst Pharmaceuticals Ionis Pharmaceuticals Takeda

Stephanie speaks with Missy about her HAE journey during her pregnancies. For more information about Hereditary Angioedema please visit HAEA.org Thank you to our sponsor Ionis Pharmaceuticals

As you may already know, the HAEA has adapted to the uncertainty provoked by the COVID-19 pandemic by swiftly transitioning our 2020 scheduled programs and events to fun and engaging virtual platforms.  In just a few months, we have successfully developed and launched interactive contests, advocacy training modules, virtual Meet & Greet events, and more to fulfill the needs of the HAEA co...

In this episode of HAE Speaks we connect with Marna and Adina to learn more about the HAEA Support Groups.

Linda P. provides insight to her HAE journey and tips about creating HAE awareness.

Michael G. shares his road to treatment and overcoming his fear of needles.

Episode 4 - Mandy is a mother and caregiver to her son, Luke.   Listen as Mandy shares a part of their journey,  life before and after an HAE diagnosis of a child.

Tony Castaldo, CEO of the HAE Association provides an information packed update on the new HAE treatments that are being developed by 9 companies. Tune in to this  podcast for the latest exciting details about this vitally important HAE research. Here is a list of companies and their websites listed in order as they are discussed in the podcast. BioCryst: www.biocryst.com Kalvista: www.kalvis...

Missy interviews an HAE patient, caregiver and two Brady Club youngsters about COVID. Each of them with great ideas and tips during this time.

Episode 1 HAE Speaks Podcast:  Missy M. shares a glimpse into her life as an HAE caregiver for her husband Mike.   For more information about HAE and the US Hereditary Angioedema Association please visit HAEA.org

A brief overview of HAE and the Hereditary Angioedema Association.