Unstoppable Strides: Navigating Runner's Dystonia

In this episode, we talk with Shannon Webb, a newly diagnosed runner with dystonia. She shares what she has tried, where she is in her progress and what she hopes to have happen in the future.  Here is a link to the University of Illinois - Chicago's ASPIRE  Resilient Athlete Program. Thanks for listening.  Support the show The information shared in this podcast is not intended to diagnose. r...

Julie and JoJo are joined by Victoria Upson in this episode to hear her journey with running and Runner's Dystonia. Victoria shares a lot about her symptoms and how her persistence have allowed her to move forward in positive ways.  You can find Victoria on YouTube - https://www.youtube.com/@dystonicrunner and Instagram - https://www.instagram.com/dystonicrunner/ Support the show The informat...

Julie and Joelle sit down with Bree Williamson to learn about her experience with Re+active PT. This is to share information and not to recommend any particular programs. If you are interested, the website for R e+active is here.  Support the show The information shared in this podcast is not intended to diagnose. recommend nor treat medical conditions. We are not licensed medical professionals an...

Ih this episode, Julie and JoJo chat with fellow Dystonic runner Maria Winters. Maria has successfully used the principles from the Postural Restoration Institute (PRI) to enhance her healing progress. She shares how symptoms first exhibited, what she had tried and how she is doing now after several years' worth of this type of therapy. Just to note, that we are not promoting PRI as a "c...

Julie and JoJo discuss how they have managed comments, questions and reactions from other people. If you have comments or questions, we would love to hear.  Support the show The information shared in this podcast is not intended to diagnose. recommend nor treat medical conditions. We are not licensed medical professionals and do not take the place of your team of medical professionals. You can fin...

In this episode, we do a deep dive into the Farias Dystonia Recovery Program. Benefits, Drawbacks, Cost, etc.  The Dystonia Recovery Program (DRP) is an online platform tailored for individuals with various forms of Dystonia, including Cervical Dystonia, Hand Dystonia, Leg Dystonia, Blepharospasm, Oromandibular Dystonia, Facial Dystonia, Spasmodic Dysphonia, and Musicians’ Focal Dystonia. Develope...

In this episode we talk with cyclist Chris Melia about her presentation of Focal Dystonia. Chris is a former runner and now a cyclist who recognized the signs of dystonia in 2021. She relates to us how it presented and how she detected it. Since that time, she has made much progress and this episode details what she has done to move forward. Much of what Chris shares is less about the physical and...

In this episode, JoJo and Julie review all of the treatments tired for dystonia, explaining what seems to be working and what didn't work. It's a long list and NOT comprehensive by any means. Keep in mind that this is based on our own needs, tolerances and preferences - and may not work for you. In addition, some things that did not work for us may be working for you. We are all unique i...

In this episode, JoJo and Julie describe our intentions for this show and give background information on what is know as Runner's Dystonia, how it presents and why it is so hard to diagnose, much less understand. We briefly share our own personal stories and journeys from initial days of knowing something was "wrong" and how we are leveraging our newly discovered resilience.  Our in...