Help 4 HD Live!

Brenda started at the UWMC in 1995 after graduating as a registered nurse. She has devoted her career to working exclusively with patients with neurological disease in Urology. She began working half-time with patients and families in the Huntington’s disease clinic 10 years ago while continuing to work in Urology. Brenda has a passion for her patients and their families and has found her work in...

Jackie Harrison is a member of the HD community who created a very fun way to bring awareness to HD. Visit @sybilontour on Twitter to see all the amazing places Sybil has been. :)

Ask Autumn

Dr. Wild is a Professor of Neurology at University College London, a Consultant Neurologist at the National Hospital for Neurology and Neurosurgery in London’s Queen Square, and Associate Director of UCL Huntington’s Disease Centre. He runs clinics in general neurology, neurogenetic movement disorders and Huntington’s disease. He leads a team of researchers aiming to accelerate the development of...

Toronto author and public speaker, Erin Paterson, tested gene positive for Huntington’s Disease (HD) in 2006. Shortly after she started suffering from depression, then received more crushing news, she was infertile.  Despite those diagnoses she was determined to have a family and live a joyful life. Her stories have appeared on over a dozen sites including KevinMD, TheMighty and HuntingtonsDisease...

Lisa Mymo is responsible for the strategy and execution of AllianceRx Walgreens Prime’s specialized programs, services and offerings.  Lisa and her teams are focused on best in class performance in the areas manufacturer and HUB services, patient access, patient services, financial services, implementation, pharma solutions and pharmacovigilance and REMS compliance.  Lisa has 25 years working and...

Signs from above

Sophie St-Cyr, PhD of Children's Hospital of Philadelphia joins us to talk about the heart. Heart disease is the second cause of mortality from Huntington'sand patients present an increased incidence of heart failure and a smaller heart. This heart pathology will need solving to improve the longevity and quality of life of HD patients. Dr. St-Cyr will explore the contribution of two RNA-binding pr...

Let's Be Candles

Londen Tabor Joins Help 4 HD

Bridging The Gap with Seth and BJ

Shelby Lentz talks about her new book.

Louise Vetter is the Chief Executive Officer of the Huntington’s Disease Society of America (HDSA), the largest public not-for-profit organization devoted to the fight against Huntington’s disease (HD). Since joining HDSA in 2009, she has led the expansion of the Society’s reach with new programs and initiatives to strengthen the web of support for the HD community, advocate for better access to c...

Christian Neri is a Research Director with a demonstrated history of working in the research industry. Skilled in genome science, computational biology, machine learning, translational research, R&D, target discovery, drug discovery, molecular diagnosis, clinical research, predictive analytics, business development, international business, and strategic sourcing. Skilled in Expert-Evaluation o...

Seth, BJ and I talk about making changes in the HD community If you are interested in participating, please email Lauren Holder at lauren@help4hd.org

Mike is a Neurology Registrar at the National Hospital for Neurology and Neurosurgery in London, and works on clinical trials in genetic diseases. He graduated from Cambridge in 2009 and completed a PhD in neurogenetics at UCL in 2018. His research with Prof Sarah Tabrizi uses stem cells and cutting edge genetics to understand neurological diseases and create new treatments. His focus is on repeat...

Katie Jackson and others from Help 4 HD recently went to the National Sheriff's Association conference to educate law enforcement about HD and JHD. 

Daniel O’Reilly Ph. D. is currently a Post-Doctoral Associate at Khvorova Lab, RNA Therapeutics Institute,University of Massachusetts Medical School, Worcester, MA.  Previously a Ph. D. student in Prof. Masad Damha’s lab at McGill University in Montreal, Canada. Dan earned his MSc in Chemistry from the University of Southampton, UK.  It was there that he was first introduced to Nucleic Acid Chemis...

Planning a Memorial Service for during a pandemic

Francis O. Walker, MD, Professor of Neurology and Director of the Movement Disorder Clinic at Wake Forest University, has had significant involvement in clinical care and research in Huntington’s Disease for over 30 years. Following residency training in Neurology at the University of Iowa and fellowship training in Movement Disorders at the University of Michigan, he joined the faculty of Wake Fo...

Samantha Griffin is a member of the HD community. She was a caregiver for her mom since the age of 15.

Dr. Hugh Rickards and I delve into the topic of diagnosing HD and what it means.  "People with HD may consult with a psychiatrist, a neurologist and a psychologist for their diverse symptoms, but what they really need, says Hugh Rickards, FRCPsych, MD, is a “Huntingtonologist”: A doctor who has been trained in all the diverse manifestations of the disease, from motor control to emotional issues to...

For more information on how you can get involved, please visit www.hdsa.org/takeaction

Next Generation of HD Warriors

Professor Hugh Rickards is a self-avowed "HD-nerd".  He loves all things HD and has been running a service for people with HD in Birmingham, UK since 1997.  He's particularly interested in how people with HD view the world.  He founded the HEATED project (Huntington's Equal Access to Effective Drugs) in 2020 to identify any barriers to effective treatment for people with HD and to find ways to ove...